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Diagnosed 4th August 2016

User
Posted 28 Aug 2016 at 19:31

Hi.

Had my results on the 4th August 2016. Gleason 8, PSA 6.5, Right side 4/10. Bone scan came back as negative.

Spoke to consultant last week to discuss treatment and the options are Robbie the Robert v RT and Hormones.

A lot of what the consultant said washed over me but my friend who came with me is a Theatre nurse took onboard the finer details, at the same time was give the option of a Preoperative Assessment which I took.

Next week I have an appointment with a consultant in Clinical Oncology at UHW Cardiff.

The last couple of weeks have been a roller coaster of emotions but I think by keeping positive and fit will hold me in good stead  

 

"I have two Doctors, my left leg and my right. When mind and body are out of gear, I know that I shall have only to call in my two Doctors and I shall be well again"

G.M. Trevelyan.

 

 

 

 

 

 

 

 

 

 

 

 

User
Posted 29 Aug 2016 at 08:11

Good morning Sherpa and welcome to the site

A number of the men on here cope with their cancer at the same time as continuing their lives as they did before - walking, running etc.

Look up the profiles of gunwharfman or irun among others and you'll see what I mean. 

It's good that you took a friend with you to the appointment (especially a medical friend)

As you found out - there is much to take in when you are given the verdict.

We are here to help. There will be men and their families on here with the same, or near enough results to yours to completely understand how you feel.

Having said that, no matter what scores any of us got, we were all where you are now and do know what that feeling is like.

Ask away any questions, somebody is bound to know the answer or point you in the right direction.

Best Wishes

Sandra
******

Edited by member 29 Aug 2016 at 11:53  | Reason: Not specified

We can't control the winds - but we can adjust our sails
User
Posted 29 Aug 2016 at 17:29

Bear in mind Sheroa,

Forums tend to be populated with people experiencing problems and looking for help. There are probably, possibly, thousands of men out there who achieve a good outcome and never appear here?

Starting out as "positive and fit" is a good place to begin. That gives you treatment options that might not be open to an unfit person, Robbie the Robot for example.

As to your your treatment choice? That should be yours, and yours alone.

Only you will have to live with the consequences.

I am 1204 days, 28899 hours, 1733965 minutes and 104037945 seconds post Robbie op and doing ok.

A PCa diagnosis is not necessarily life ending and not necessarily life changing.

atb

dave

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User
Posted 30 Aug 2016 at 20:10

Had the follow up consultation today at UHW Cardiff with the Clinical Oncology consultant and came out of it feeling a bit clearer in my mind, this time I took a friend who had PC six years ago and is doing well.

However the choice of treatment just seems so daunting and so personal and I am not certain if and how I will decide at present! But one thing for certain only I can make that decision.

 

My full stats are

PSA 6.5

Gleason 8 (5+3)

Stage T2A

Bone Scan Negative

 

The consultant confirmed the cancer is contained within the "envelope" and is small but is aggressive and thus will need treatment sooner rather than later.

In addition he mention that the results were uncommon!

Was wondering if anyone else has had similar results?

 

 

 

 

 

 

 

 

 

 

User
Posted 30 Aug 2016 at 20:46

5+3 is unusual - and a 5 with T2a as well! Off the top of my head I can't think of anyone else with similar results on here, but there have been so many new members recently it is getting hard to recall everyone's scores. Certainly, with a 5 it is best not to dally too long deciding which treatment to opt for.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 30 Aug 2016 at 22:53

Hi Sherpa
I was diagnosed on the 16/8/16, I wasn't given my results, just told I have a significant cancer Gleeson 7 visible on MRI, PSA 5.2. Off for bone scan etc this morning, my specialist is confident it will be clear but that whole fear thing just creeps in. Great to be able to share on this forum. Does anyone know why it takes 2 weeks to process the results of these tests? I find the task of choosing treatment overwhelming right now, it's just as well that the appointments are set so far apart, I need that time.
All the best from Stevo

User
Posted 31 Aug 2016 at 02:04

Hi Steve,

As regards waiting times for test results, I don't know how the system works in OZ and it may vary from one territory to another. Even in the UK within the NHS waiting times can vary between hospitals as some are more busy than others. Also, delays are sometimes caused due to results being discussed by a Multidisciplinary team when they meet to consider tests and scans of a number of patients and after this the respective patients are informed.

Making a treatment decision is not easy for most of us, especially if there are a number of options. Hope whatever you decide works well for you.

Barry
 
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