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User
Posted 07 Jul 2017 at 10:07

Good morning, all (for such it is)  I was diagnosed with metastatic prostate five years ago(Gleason 5-5), and have been on Zolodex ever since, joined recently by a daily bicalutamide tablet as the PSA has advanced to 11.5. I am due to visit a specialist on 11th September, unless a bloodcheck next Monday (10/07/2017)shows up any increase in the count. 

During this time I have got on with my life and enjoyed as much as an 81-year-old can. I am a walker and try to walk around 1500-1800 miles per year in all terrains. Last year I managed 2034 ! I do admit to slowing down a little.

I also play in a flute band and a ukulele group, travelling the country in pursuit of jobs at which to perform.

I have the usual urinary problem suffered by all carriers, such as "when you gotta go, you gotta go !", but an open air environment usually helps with that one.

At my last meeting the specialist indicated that the treatment would most likely change and mentioned, as a requirement to have some form of scan during which some "black gunge" is input so that they can see what is going on more clearly. No idea of the name of the procedure, perhaps someone out there may have an idea. The results of it will deduce the next stage of treatment. Chemo, Enzalutamide and Abiritarone have all been mentioned, so I must just wait and see. I do know that there will be no radiotherapy.

That is about all for now. I will report on the result when it is known. Now I am off to the Netherlands to listen to the Andre Rieu concerts in Maasatrict, another enjoyment .

User
Posted 07 Jul 2017 at 23:06

Sometimes MRI scans are given with what is called "contrast" (black gunge?) to help the medics better interpret the scan. This may be actually injected at the outset or part way through the scan but usually a cannula is inserted beforehand. There can be a sense of a temperature change in the chosen arm for a time.

Wish you well with whatever treatment you have.

Lucky you off to see Andre Rieu in his home country. My wife and I both enjoy his concerts on TV.

Barry
User
Posted 09 Jul 2017 at 09:09

Thank you for that, Barry, and I will enjoy the concert on your wife's and your behalf.

 
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