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User
Posted 15 Oct 2014 at 22:50
It is now 12months since my RRP and there have been some changes, some good, some not so,its good that I usually only get up once a night instead of two or three times, sometimes not at all, its even better that if I choose to I could Pee over a five bar gate,I must try that sometime, though I suppose that best of all is that as far as I am aware, I no longer have the dreaded C within me, though I do have my PSA result to look forward to next Tues so I will let you know. One of the not so good changes as most of you will know is E/D. Well today I saw for the third time Wendy my E/D nurse, she's quite lovely, though not in any sexual way,you wouldn't get a stiffy on if she sat there naked,but lovely just the same.She was as all ways pleased to see me,at least that's the impression I get,and between us we decided that I can now get 80% erect, I've been on 50mg a day sildenafil for about 6months, so now in order to perhaps regain the missing 20% she's given me a dozen 100mg sildenafil to take one or two a week and see what happens,hopefully things will be looking up,and if not there's always the pump,though I don't use it as much as maybe I should. Will keep you informed of progress, and PSA result next week. Best wishes to you all Diesel x
User
Posted 19 Oct 2014 at 20:33
Hi Lynn, I did write a reply to your post today, but when I posted, it disappeared,told Sadie, whether it will be found who knows? Your points are noted. Diesel X
User
Posted 21 Oct 2014 at 19:06

So I got my PSA result today 12 months after RRP and, deep joy , it stays at <0.01 with that and my 80% erections who could ask for anything more? Well I could actually, the missing 20%, no, I jest, I'm sure I will get there eventually, all these things take time and its only been a year, as well as that with Lynn on my side, can't fail. Best Wishes All Diesel. X

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User
Posted 16 Oct 2014 at 12:05

I'm in much the same position although my operation was 6 months ago. I'll be interested to see what happens with you Diesel

User
Posted 16 Oct 2014 at 15:25

Keep us informed Diesel.

 

My op was in June.  I'm on 25mg sildenafil a night with 100mg once a week.  There is some life down there but nothing useful yet!  I know there is a long way to go.

 

User
Posted 16 Oct 2014 at 16:08

6 months on, my pump gives me about 70%,although it takes about 4/5 attempts. Sildenafil has no effect at all, although I sometimes feel there is the occasional twinge. Off to Christie's next week, but will have the latest PSA result tomorrow.

Stay Calm And Carry On.
User
Posted 17 Oct 2014 at 14:15

I'm post op 5 months, unable to take Cialais or Sildenfield due to side effects, but the good old hand pump is reliable, gives me 90% +

its a love hate relationship, but I perservere....good luck guys

User
Posted 17 Oct 2014 at 17:16

It seems that no cocktail of drugs can be guaranteed to work for everyone? I have tried mix and match at various times with mixed or no effect. The most I have tried in one evening is the 1 evening Cialis + 2 Viagra. Result, no better than the usual stirring. That was about 6 months after my operation. I think the daily Cialis tablet is working well for me. With the appropriate stimulation I can manage quite well indeed thank you very much. The ED specialist at Reading told me that it can take up to 2 years on average to achieve your recovery performance and condition. Some people continue improving beyond that time. I have another 7 months to improve in.

Titanic - I too had side effects with the Cialis, mostly head and leg ache, 5/10 pain scale, but persevered and took painkillers to overcome these. It was worth it for the long term benefits. Pain stopped about 1 month after starting. Not sure if this may help you or persuade you to give it another go?

ATB

Dave

User
Posted 17 Oct 2014 at 17:49

Qwerty....Dave, 

the calias gave me cronic heartburn/reflux and other symptoms, I did try half the dosage but it still gave me problems, I'm better off not taking it, Viagra didnt do anything at all, I know its early days, but i didnt feel very well in general taking it,so its the long hard slog for me !

 

                                                                                  Regards, john

User
Posted 17 Oct 2014 at 21:35

I had the reflux issue as well, and some heartburn, still have it when I eat spicy food. Still taking the Cialis. The benefits outweighed the side effects for me, still do. You know your body and you have to do what works for you.

ATB

Dave

User
Posted 17 Oct 2014 at 23:48

Hi Diesel,
thanks for the message.

I don't really get where the nurse is coming from with the instruction to take 100mg a couple of times each week. Surely the advice should have been "try 100mg dose whenever you feel in the mood but don't take it more than twice each week." Taking a tablet simply because it is the right day is not going to work no matter how high the dosage. What state is your head in? Worrying about whether it will work, how hard it will be, how long it will last can all be self-fulfilling :-(

Have you tried Levitra yet? John found that this acted as some kind of catalyst which kick-started the significant improvement (although this could have been psychological rather than purely physical and he was at least a year further down the line than you)

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 17 Oct 2014 at 23:52

DD, you have maybe more than 7 months of hope. John's greatest improvement was after the 24 month mark, interestingly at the point that he was just about giving up and maybe he stopped trying too hard?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 18 Oct 2014 at 00:40

Lyn,Hi, Thanks, and yes I do realise that.  Your's and John's experience does give continued hope beyond the 2 years guidelines.  They are after all only guidelines.  And I will make the most of it in a restrained manner. Yeah RIGHT!!! I will go for it hammer and tongs and "exercising" at least twice a day, more when I can manage it. I have dealt with my ED recuperation and recovery.  Thank God for humour and low PSA rests.Dave

Edited by member 18 Oct 2014 at 09:49  | Reason: Not specified

User
Posted 19 Oct 2014 at 20:33
Hi Lynn, I did write a reply to your post today, but when I posted, it disappeared,told Sadie, whether it will be found who knows? Your points are noted. Diesel X
User
Posted 21 Oct 2014 at 19:06

So I got my PSA result today 12 months after RRP and, deep joy , it stays at <0.01 with that and my 80% erections who could ask for anything more? Well I could actually, the missing 20%, no, I jest, I'm sure I will get there eventually, all these things take time and its only been a year, as well as that with Lynn on my side, can't fail. Best Wishes All Diesel. X

User
Posted 21 Oct 2014 at 19:46

Excellent news Diesel.

As you mentioned medication in your opening post, I hope you will be okay with then following? I had my meds reviewed on Monday. A GP I had not met, told him I am on 5mg Cialis daily for circulation to encourage recovery post op, 1 x 50mg Viagra for an event. He had never heard of Cialis being given for circulation.

I wonder what would happen if I took 20 x 5mg Cialis in one go?

Dave

 
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