I am a reluctant newby here

Think I've read that sore feet can happen with the Taxols. Using skin treatments such as Palmers cocoa butter might help.

Tongue & throat sound like reactions & they may play with the steroids to help you.

Mick had tingly hands and feet at times during chemo, he did not have the black tongue thing but that is a very common side effect of 2 groups of drugs that I know of, one is certain antibiotics and the other is from drugs containing Bismuth (commonly used in indigestion/acid reduction treatments)

Anti biotics are often given with chemo as a preventative measure so if you were given these it may be them not the Docatexel itself. Definitely worth checking with your Oncologist tomorrow as he may be able to change that about a bit.

I believe it is caused when drugs iterfere with the naturally formed bacteria in the mouth and can produce changes in clolour from greeny brown to black and a furry sort of feel to the tongue. I am also fairly sure it is harmless just a bit weird and should fade in between treatments and go completely at the end of treatment.

Good luck tomorrow

xx

Mandy Mo

Sorry you're in such pain from the stimulation of your bone marrow. (to combat your neutropenia). I think about 40% of people do get bone pain as a side effect. Often it can be managed by paracetamol, as long as your chemo team/ oncology say its OK to take. I hope you got the sister's phone call...it sounds blooming uncomfortable.

I do hope you're feeling a bit better this morning...

Sue

Edited by member 22 Jan 2015 at 09:18  | Reason: Not specified

Kev I've taken a look at the info on the Macmillan site and it sounds like the pain is likely to be a side effect of the Zarzio. Makes sense really if the pain started following your first couple of injections. I've tried to put link below

http://m.macmillan.org.uk/article/name/cancerinformation-cancertreatment-treatmenttypes-supportivetherapies-haematopoieticgrowthfactors

bri

Edited by member 22 Jan 2015 at 07:46  | Reason: Not specified

Been worried about you, hoping they were sorting you out. Hope you're feeling a bit better now.

I thought they would admit you as you seemed to be in so much pain. It's a bit scary when you just wonder when it is going to stop but at least, when you're in hospital you're in the best place to get sorted.

I hope after the last couple of days you have a really nice weekend.

Hope it gets better for you.

Best Wishes,

Steve

So Glad that you are back home Kev and things are easier but I have to agree with Mandy Mo , taking things a little easier for the time being doesn't mean giving up on your old way of life , it just means taking care of yourself and slowing down for now. These are strong treatments that you are having. Be kind to yourself.

BFN

Julie X

Hi Kev,

I just wanted to say that I think you're amazing training for a marathon while having chemo.  

My dad's just been diagnosed with aggressive PC.  He has a Gleason score of 9 and we're just awaiting further scans to see if it's spread.  He is 75 but runs regularly.  He did his last half marathon in October.  One thing that upset him was that he might have to give up running but you have given me hope that maybe he can carry on, but maybe at his age, stick to the 5Ks and 10Ks :)

I've just read through the whole thread and am pleased to hear that after the awful time you had when you first started chemo, you are now doing really well.

I hope you have a really special 50th birthday.  You deserve it!  Look after yourself.

Chardonnay

What a great post! I hope you have a fantastic day. Enjoy every moment. Sorry I can't be there to buy you a drink, perhaps on your 60th? That would give me a great deal of pleasure, for obvious reasons.

I will raise a glass to you this evening. Here's to many more Happy Birthdays !

Remember... Today is the first day of the rest of your life... can't think where I've read that before.

Steve

Happy birthday Irun - have a lovely day.

Perhaps, as you may not live to be 100, you could cram some extra life in now while you are still fit & healthy ..... take a leaf out of your brother's book and get a few extra wives while you still can!

Hi Kevin,

I was diagnosed just before my 60th and found myself hospitalised on the actual day due to a bad UTI! So I do know the poignancy of a birthday. Each birthday that has followed is greeted with much enthusiasm and that positivity keeps bringing the birthdays on, soon be by 63rd so managed to survive with bone mets for three years so far which is great. Maintaining your running whilst undergoing chemo says loads about your overall levels of fitness which will help you deal with the down times as well as can be expected. Wonderful fund raising too.

I recall celebrating my fiftieth as it was around 20 years since I had had testicular Cancer and for the first time saw light at the end of the tunnel. Within ten years that light was extinguished but looking at the quality of my birthdays and my life sustains me well and this is so important if you can keep those dark thoughts at bay.

Hope to meet up in June. I know you wanted to get to Newark but were not well enough then. Glad to see you are now thriving much better.

Hi Kevin,

I'm really sorry to hear about your PSA rise, especially at a time when you were least expecting it.

I'm pretty much a novice when it comes to PSA levels with various treatments, but I know how worrying a rise can be.  Hopefully, a change of medication will sort things out.  My PSA almost doubled just before I started radiotherapy, so I know how you feel.

You have been such a good friend and always helped me through difficult times with your supportive posts, I only wish that I can do the same for you now.

I just wanted you to know that I wish you all the luck in the world that things will get back on course, you were doing so well with your treatment.  I'm sure it will.

Try not to worry.

Your friend,

Steve

Edited by member 24 Feb 2015 at 23:11  | Reason: Not specified

That's really good. Fantastic publicity for the cause. I'm sure you will raise more money in sponsorship for the marathon. I envy you being able to complete. My plans to run the Reading Half Marathon on Sunday had to be shelved months ago when I had the heart attack. My cardiac consultant told me I wouldn't be able to run it and he was right, not fit enough. He said he might agree to me doing it next, providing treatment goes well.

Anyway, have a great day tomorrow and I hope your team wins.

Steve.

Well done Kev, Proud of you mate

Si

OMG another super hero, now I see what the running is all about. You see for me it's a bit difficult to get my head around running as I have only done this twice in my life, once was for the 5c Bus along the London rd (heading into Southend)http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-kiss.gif the other time was when I nearly missed the 5c back in the opposite direction. http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-kiss.gif

What I am saying is if you are running for a purpose IE you might miss your Bus then I get it, but running for the sake of running this really doesn't make sense to me.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-kiss.gif.

I am only joking (not about running for Buses that bit is real ) but WELL DONE YOU. all I can say is , we need runners like you in life the £13000 raised also struck a chord as this was Trevor's starting psa.

So as long as you feel well enough KEEP RUNNING.

BFN

Julie X

Hi Kev,
Hope it all goes really well today, and you have a great day! Thanks for posting the link so we can all see the amazing things that are being done to raise the profile of PCa.
Well done for making a difference,
Miss x

brilliant Kev

another superhero you rock i hope you have a fantastic day. i know you are careful not to push yourself too hard.

xx

mo 

Yes Bri but you work in a culture of wellbeing - I think banking may be a different kettle of fish. All I was saying to Kev was had he had that conversation with his employer to avoid getting a stage 1 letter from HR! I worked in local authority, like you, and this would have triggered a disciplinary investigation without a shadow of a doubt, although you would hope the outcome of the investigation would be in the employee's favour.

I really hope my comment hasn't come across as critical of Kev .... it wasn't meant to be. I just suddenly foresaw a potential problem and wanted to be helpful.

You are amazing Kevin and hope all goes well.  Will donate to your page tho you wont recognise the name.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif El

Well done for yesterday, you've helped all of us by your efforts. I think your employer would be proud to have you within their organisation for the determination and strength of character you have shown in fighting this disease. You are a very good advert for the quality of employee they employ. It nice that they acknowledge this.

I'm feeling rather sick because the Reading Half Marathon takes place today. Feel as if I'm missing the party. Still, I'm going to enter a couple of shorter distance races a soon as I'm able.

I'm probably not going to be posting much until I sort certain things out. I've got a feeling that my internet has just been cut off, maybe the phone too and I don't want to use the data limit on my mobile too much because I've already gone over my limit while in hospital. I plan to return to work next weekend and I've just been told that my benefits will stop straight away, it's just the Department of Work & Pensions way of helping you out: to live with no money for a month or so after being on very limited benefits for four months. We've decided to put the house up for sale this week.

Kevin, keep up the fight, you're showing all the way to battle this horrible disease.

Hope to see you in June?

Steve

Edited by member 22 Mar 2015 at 16:15  | Reason: Not specified