Hi, it’s been a while since I posted but I wanted to share where I am and maybe inspire people to make the best of every day no matter where they are on the pca journey .
So it’s 8.5 years now since I was told I may only have 2 , I decided to run lots through chemo and just never stopped (bit like Forest Gump).
I remember thinking that my situation was hopeless but it dawned on me that at my end whenever that may be I won’t say “I wish I spent more time being sad and staying in” but I may regret not pushing life to the max every time I could .
first the scores, T4N1M1A on diagnosis , PSA 342 . Today , PSA 0.12. I had a blip last September when it rose yo 0.28 in a month. That followed 6 months when I did not run much due to injury , double hernia and food poisoning .
why the drop again ? Obviously I dont know but I started running every day again in December (minimum 3.3 miles for the 33 men who die every day in the uk of this bu@@er of a disease) and average about 6.
I gave up alcohol on 31/12/22. Why ? Because I wanted to run for as long as I can and I thought it may help . Do I feel better ? Not much BUT , I have lost 13 lb, sleep like a baby opposed to having broken sleep before and my “motions” have improved greatly and my running is getting better .
I have run over 15,000 miles in the last 8 years . Next up is the Brighton Marathon in 4 weeks and then off to Bhutan for a 200k race with 35,000ft of ascent.
I have been on abiraterone since January 2016, I have been lucky , it appears to be working still , not everyone is as lucky I know .
I hope anyone reading this will realise that what you do can be up to you to some extent . I am no athlete , never very good but every day as my wife says. “If I feel ok it’s going to be a good day” and just do stuff .
From almost day 1 , PCUK , this forum, fundraising , speaking , writing a book etc have given me a sense of worth and purpose so i guess my messages are live life the best your situation allows every day , don’t worry about what you can’t change and so something to stop others being where we all are in time to come . Thanks for reading