I am a reluctant newby here

Irun, if you work for the company I am thinking of, you certainly are very fortunate. A year off for your colleague!!! That would have been wonderful for my OH but hell for me.

Steve, bad news but I don't want to respond on Irun's thread. Can you move the bulk to yours?

Kev
No cancer traceable must be the best outcome possible. I'd be happy with that.
Have faith , you're strong and doing the right things, that's all you can do.

I'm following behind you by 3 months and hope I'm same as you with no cancer traceable.

Good luck with your 2nd year and keep running and posting

Paul

Lots of news today and Kev yours is as good as it can be. Hope you celebrate the news, long slog worth it.

Brilliant results, very pleased for you. Keep running and enjoying life.

Lesley

Hi,

That's really great news, Kev.

Keep fighting.

Steve

Just wanted to add for those of us in the mets club we are out in force today , we are popping up all over the place.

BFN

Julie X

Keep on running....

Arthur

Carol

It makes a change to see some good news Kevin, well done mate.

Chris.

Hi all.

There has been so much bad news on this site recently and far too many men being diagnosed with advanced prostate cancer that i thought i would  resurrect my first thread and update where i am to hopefully give a good story to balance some of the not so to encourage others not to give up if they have any control on their situation. i know i am luckier than many.

in a nutshell T4 n1 m1 a, psa 342 on diagnosis G9. early chemo and radiotherapy despite spread to lymphs in pelvis, aorta and throat, no bone mets.

reading my initial posts brings back memories of pure fear and sadness but...............

i have and continue to run some of the toughest ultra marathons in the world raising funds for prostate cancer uk all with advanced prostate cancer. in 6 weeks i set off for the arctic to race 380 miles non stop pulling a sledge solo, 2 weeks later i will be back in the Sahara racing 150 miles there.

i was put on abiraterone as my psa was rising again after chemo/rt/biclutamide less than a year after initial treatment. i was told that abiraterone may or may not work however this week , 3 years after starting abiraterone, my psa was its lowest ever 0.05, i have had minimal side effects from this or any of my treatments to date.

yes this is a rubbish disease, yes it messes with our bodies, heads, hearts, family and friends but if you are lucky enough to be able do things please do them and plan to do them. i could have easily given up 4 years ago, i know at times i wanted to but i look back now and realise how much of life i would have missed out on if i had given up. we can control more than we think most of the time.

i know the ride for me will end one day all too soon but i will have no regrets when it does by loving the life i have whilst i have it.

if i could have given one piece of advice to me 4 years ago in hindsight early on it would have been plan something good for tomorrow every day no matter what the day is going to be so that you never wake uo with the thought "what shall i do today" as thats when you leave space for the dark and sad thoughts and those do no good for anyone.

i hope you are able to enjoy something this weekend, www.makethemostofit.org never give up.

kev

Thank you Merivale and Irun! Your posts are really inspiring.

My husband had his results on Thursday 17/1/18 - PSA 90.5, Gleason 9, spread to bones -pelvis and clavicle, spread to lymph nodes. Not what we wanted to hear! Obviously we are still getting over the shock and having some very dark times but we are also managing to have moments of 'normality'. We have wonderful family and friends and we are all in this together. 

I have read some of your posts/profiles to my husband and we have looked at your website Irun. He is starting to get the message that life can go on, so thank you!

He is 58, a retired PE teacher and has always kept himself fit. He played football and he still coaches volleyball. He has always been a runner and he is now inspired to carry this on and can see the great benefit of it both physically and mentally.

The hospital phoned on Friday (the day after his results) and he is seeing an Oncologist at 9am on Monday morning. They certainly dont waste any time! He has been on hormone tablets since 17th December when he first saw the urologist. On Thursday they gave him his first hormone injection. I'm not sure if anybody can give us some idea about what may happen next. Is he likely to be given radiotherapy/chemotherapy anytime soon or just left on hormone therapy? Would you say that he is classed as advanced and t3 or t4? We couldnt take it all in the other day as much as we tried.

If you post your husbands details and questions on your own post you will get a lot of information and help from other members.it may get lost on someone else’s post .its usually pretty quiet at the weekend but others will get back to you .

Sorry you find yourself and hubby in this position but as you can see from iruns post and mine there is hope that a relatively normal life can continue .

Best wishes

Debby

Hi Kev, 

Great idea to post your original thread.  You have done so much to inspire others, including me ar

Thanks  

Take care 

Steve 

So here I am again hoping to give hope for some having read such sad news on the site this morning so my apologies if I unintentionally offend anyone.

Last night I returned from having completed the Marathon Des Sables 250k foot race across the Sahara for the 4th time in 4 years all since I was diagnosed with T4 prostate cancer. I realise from my years reading most posts on this site that I am lucky for so many reasons but also want others on the pca rollercoaster to see that the way ahead is not always only sadness and fear but if you want something enough and circumstances allow you still can achieve so much. 

I wanted to run this race since I was 20 and read of the first ever one. It took 30 years and (sadly) pca for me to achieve that dream and now it’s x4 ( I also believe I am the only person to have done the race 4 times with any T4 cancer). 

If you are reading this with despair of life perhaps think about what you too may be able to achieve despite being where you are and make the most of today and every day you can.

You can if you wish see what I have been lucky enough to achieve in the last 4 years on my site www.makethemostofit.org together with my personal hopes for the next adventure. 

I have my monthly blood test next week but then, I am off walking the 500 mile Camino De Santiago with my brother in memory of my late father who also had pca, it’s another impossible dream that may now become possible for me. Thanks for reading, never give up, Kev 

Chris I assume you have had the bad knees for ages and they are not related to your PC?

I ask because I am really struggling with hip pain at the moment and despite having had it looked at twice and being told it's arthritis it seems to get worse to the point it now disturbs my sleep if I lie on wrong.... 

I was sent this link from a lady I know in NZ who I ran the marathon des Sables with in 2018 and now has breast cancer.

there are many links to pca in the text and video so it’s worth a read/watch. Whilst I still run big distances it indicates that exercise in general is good to fight cancer ( under supervision if you are new to it or are upping what you do)

i went for a run the day after my first chemo, this video indicates I could have done something straight after chemo on the same day! If nothing else if you are starting chemo don’t be sedentary if you have the ability to do something.

get out and enjoy the sunshine today if you can 

kev https://fitness.mercola.com/sites/fitness/archive/2017/03/24/exercise-benefits-for-cancer.aspx

https://fitness.mercola.com/sites/fitness/archive/2017/03/24/exercise-benefits-for-cancer.aspx

Dear irun, 

Reading your post and history has really helped me. I have only recently posted on the forum about the shock and worry following my husbands diagnosis which is similar to yours (T3aM1N1, PSA 287 and Gleason 8).

He was diagnosed in July and I still feel  very much as you describe in your first posts.  So,  thank you for your update and advice which I am sure will help others feel more positive, it has certainly uplifted me today.

Mrs MAS 

Edited by member 15 Oct 2019 at 14:12  | Reason: Spelling

 I follow your ultra running, it gives us great strength. David was diagnosed 4 yrs ago Gleason 9 Tb3 N0 M0. He is 69, we have an acre of garden, grow our own food, swim twice a week over an hour each swim, he sings and plays every day. We are also have a house gym we use in the winter. He does charity gigs to raise awareness about PCa and works with a local charity. Keeping active is good for each one of us, live each day to the full. It ain’t no good sitting in deaths waiting room is it. 

Thank you Irun, you are an inspiration to many.

Leila. 

Keep doing what you do best and get some more overseas marathons under your belt as soon as this global lockdown is over.

Keep safe and well

Great update Kev. You are an inspiration.

Stay safe and keep well.

Kev is an inspiration to us all.