There has been so much bad news on this site recently and far too many men being diagnosed with advanced prostate cancer that i thought i would resurrect my first thread and update where i am to hopefully give a good story to balance some of the not so to encourage others not to give up if they have any control on their situation. i know i am luckier than many.
in a nutshell T4 n1 m1 a, psa 342 on diagnosis G9. early chemo and radiotherapy despite spread to lymphs in pelvis, aorta and throat, no bone mets.
reading my initial posts brings back memories of pure fear and sadness but...............
i have and continue to run some of the toughest ultra marathons in the world raising funds for prostate cancer uk all with advanced prostate cancer. in 6 weeks i set off for the arctic to race 380 miles non stop pulling a sledge solo, 2 weeks later i will be back in the Sahara racing 150 miles there.
i was put on abiraterone as my psa was rising again after chemo/rt/biclutamide less than a year after initial treatment. i was told that abiraterone may or may not work however this week , 3 years after starting abiraterone, my psa was its lowest ever 0.05, i have had minimal side effects from this or any of my treatments to date.
yes this is a rubbish disease, yes it messes with our bodies, heads, hearts, family and friends but if you are lucky enough to be able do things please do them and plan to do them. i could have easily given up 4 years ago, i know at times i wanted to but i look back now and realise how much of life i would have missed out on if i had given up. we can control more than we think most of the time.
i know the ride for me will end one day all too soon but i will have no regrets when it does by loving the life i have whilst i have it.
if i could have given one piece of advice to me 4 years ago in hindsight early on it would have been plan something good for tomorrow every day no matter what the day is going to be so that you never wake uo with the thought "what shall i do today" as thats when you leave space for the dark and sad thoughts and those do no good for anyone.
i hope you are able to enjoy something this weekend, www.makethemostofit.org never give up.