I am a reluctant newby here

User

Posted 17 Nov 2014 at 14:38

Thanks again everyone, very reassuring. The n1m1 bit is about the cancer being in my groin area lymphs and outside my groin area lymphs as it apparently refers to any cancer spread outside the groin, luckily it's not in my bones though. Feeling good about it, am getting tired easily though, is that the cancer or the hormone drugs?

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User

Posted 17 Nov 2014 at 15:08

Could well be the HT kicking in + the aftershock of diagnosis which drains you for a wee while. Your body should adjust to the hormone changes but some fatigue can be part of the territory. Try to get sufficient rest time as that does help the body overall.

User

Posted 13 Jan 2015 at 19:38

Hi all. My first chemo today.

First a big thank you to all the messages of support, big boost this morning when I was feeling low.

Next my just giving site for my Brighton marathon attempt is now over £3k for PC uk which is great to give something back

Next the consultant said my PSA had gone from 342 in October, 65 November to only 3.6 today, he we pleased too. My testorone was down from 7 to 1 too

Finally the chemo, by some fluke the nurse was the sister of a good friend of my wife's, went really well, no affects so far but am not naieve enough to think that I will be 100% for the next few days.

So a good day all round, can't think it could have gone better.

Thanks again everyone.

Kevin

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User

Posted 13 Jan 2015 at 20:21

Hi Kevin,

Glad you had a good day and everything went well, you also sound very positive which is a very good attribute to have when fighting this disease. Hope everything continues to go well for you, good luck with the rest of your treatment.

Regards,

Gerry

User

Posted 13 Jan 2015 at 20:32

Good for you Kevin for being so positive.
Wishing you a good night of restful sleep.
Best Wishes
Sandra

We can't control the winds - but we can adjust our sails

User

Posted 13 Jan 2015 at 20:39

Great news mate, hope it continues.

Keep in touch

Don't deny the diagnosis; try to defy the verdict

User

Posted 13 Jan 2015 at 20:46

Great news Kev on all fronts long may that continue.

User

Posted 13 Jan 2015 at 20:52

Glad it went as well as it could Kev

All the best

Bri

User

Posted 13 Jan 2015 at 21:29

Good stuff Kev,

glad to hear you are responding well to the treatment to date.
Hopefully chemo will be another tool to push things onwards.

Thinking of you,

Kevin

p.s. Kev / Kevin, one of us is going to have to change our names :)

User

Posted 14 Jan 2015 at 02:13

Hi Kevin,

Really pleased everything went well for you today. Great news about your PSA figure too. Hope everything continues to go well for you.

Good luck with your plans for the Brighton Marathon, I'll certainly support you, if I ever get chance to earn any money again. I'm still sulking about having to cancel my Reading Half Marathon entry due to my heart problems.

Anyway, hope the treatment continues to go well.

Steve.

User

Posted 14 Jan 2015 at 20:43

Hi Kevin,

It sounds all good so far congratulations on the psa result that's brilliant news. You are doing tremendously well keep going forward.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 19 Jan 2015 at 15:54

Hi, questions for the forum if anyone knows.

1st dose of docetaxl last Tuesday. Feel generally ok, managed to run 7 k and 5 k no problem , took it easy on purpose but...

1) I have painful feet, hurt at night on the soles

2) my tongue has turned black

3) I have a very sore throat

Saw my GP today who signed me off work for 3 months which is good and said the above.

He said sore throat just get on with it, tongue is usual in chemo ( I did frozen pineapple) but I have not read this side affect anywhere, anyone else had it but painful feet said my be a problem, said my body may not like Docetaxel ( really! Lol ) so should see my consultant onco who luckily I am seeing tomorrow however anyone else hd this experience?

Thanks Kev

Ps any other ideas/ suggestions on anything always welcome

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User

Posted 19 Jan 2015 at 15:58

We havecavfriend that has just completed his chemo and his tongue turned dark green and everything tasted vile.

User

Posted 19 Jan 2015 at 17:55

Think I've read that sore feet can happen with the Taxols. Using skin treatments such as Palmers cocoa butter might help.

Tongue & throat sound like reactions & they may play with the steroids to help you.

User

Posted 19 Jan 2015 at 18:12

Kev bit of info here. It mentions something in this link about numb and or tingling hands or feet and also soreness to the soles of the feet. Just go on the link and scroll down

Hope u feeling ok

bri

https://www.google.co.uk/url?sa=t&source=web&rct=j&ei=Pki9VPa2LIvlUor0gagO&url=http://m.macmillan.org.uk/article/name/cancerinformation-cancertreatment-treatmenttypes-chemotherapy-individualdrugs-docetaxel&ved=0CB0QFjAA&usg=AFQjCNGeKh9vwu9tmlyBRxCzPBKFnGO5iQ

Edited by member 19 Jan 2015 at 18:19 | Reason: Not specified

User

Posted 19 Jan 2015 at 19:52

Kev

Mick had tingly hands and feet at times during chemo, he did not have the black tongue thing but that is a very common side effect of 2 groups of drugs that I know of, one is certain antibiotics and the other is from drugs containing Bismuth (commonly used in indigestion/acid reduction treatments)

Anti biotics are often given with chemo as a preventative measure so if you were given these it may be them not the Docatexel itself. Definitely worth checking with your Oncologist tomorrow as he may be able to change that about a bit.

I believe it is caused when drugs iterfere with the naturally formed bacteria in the mouth and can produce changes in clolour from greeny brown to black and a furry sort of feel to the tongue. I am also fairly sure it is harmless just a bit weird and should fade in between treatments and go completely at the end of treatment.

Good luck tomorrow

Mandy Mo

User

Posted 19 Jan 2015 at 20:18

Hi Kev,

So you had Chemo and so far have run 12 K, well if i had done that i would have sore feet and sore knees as i would have been crawling home.

Black tongue, yep i have just eaten a bag of Thornton liquorice toffee and you know what my tongue is black.

Sore throat, loads of bugs going around, if i stubbed my toe it was all cancer, shut my finger in the car door it was cancer.

You are doing great my friend, when you messaged me to say you was hoping to come to Newark i said to the wife he has Chemo on Tuesday and we are meeting on that Saturday, no chance. You know what i think you will be there, probably you will run there with your wife in a trailer (because she does like a wine http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif)

When i look back at my first Chemo and how i felt you are doing just fine, 12k, 12 bloody K.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

Ring anytime

Don't deny the diagnosis; try to defy the verdict

User

Posted 22 Jan 2015 at 00:12

Saw doc yesterday following 1 St week of chemo, felt alright but he said my white blood cells dangerously low at 1.4 so has put me on Zarzio injections for 5 days. Had the first two and now have excruciating lower back and hip pain in massive spasms every second. Been going on for about 2 hours, phoned emergency number, sister said she would call back in 10 minutes an hour ago, effin h I am in absolute agony. Hot water bottle but can't stay still at all, probably nothing to what comes later but it hurts, hope they call back soon.

Edited by member 22 Jan 2015 at 00:13 | Reason: Not specified

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User

Posted 22 Jan 2015 at 02:02

Kev,

Hope you're getting treatment soon. Not right that you are getting so much pain. Try to focus on ignoring the pain as you do when you're nearing the end of a marathon.

Praying that you are sorted soon. There are drinks on the bar in Newark waiting for us !

Steve

User

Posted 22 Jan 2015 at 06:09

Sorry you're in such pain from the stimulation of your bone marrow. (to combat your neutropenia). I think about 40% of people do get bone pain as a side effect. Often it can be managed by paracetamol, as long as your chemo team/ oncology say its OK to take. I hope you got the sister's phone call...it sounds blooming uncomfortable.

I do hope you're feeling a bit better this morning...

Sue

Edited by member 22 Jan 2015 at 09:18 | Reason: Not specified

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