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I am a reluctant newby here

User
Posted 22 Mar 2015 at 11:48

Irun, if you work for the company I am thinking of, you certainly are very fortunate. A year off for your colleague!!! That would have been wonderful for my OH but hell for me.

Steve, bad news but I don't want to respond on Irun's thread. Can you move the bulk to yours?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 22 Sep 2015 at 20:02
So following my last year of hell I had the results from my full body MRI to see what chemo, RT, zoladex, biclutamide and dietary changes had achieved.
Happy with result as Onco said no cancer traceable in my body which is the best possible outcome. My PSA was 0.4 5 weeks ago and another test due in a couple of weeks.
Sadly I don't think the results change anything long term but I guess it is great to have everything as small as possible for when things start to move. Apparently I remain T4M1N1a despite the news today.
A far better position than I thought in the very dark months at the end of last year.
Kev

Dream like you have forever, live like you only have today Avatar is me racing in the Sahara April 2018

User
Posted 22 Sep 2015 at 20:28

Kev
No cancer traceable must be the best outcome possible. I'd be happy with that.
Have faith , you're strong and doing the right things, that's all you can do.

I'm following behind you by 3 months and hope I'm same as you with no cancer traceable.

Good luck with your 2nd year and keep running and posting


Paul

User
Posted 22 Sep 2015 at 20:31
BOOM what great news Kev so happy for you
Now what about that drink 😜
Don't deny the diagnosis; try to defy the verdict
User
Posted 22 Sep 2015 at 20:37

Lots of news today and Kev yours is as good as it can be. Hope you celebrate the news, long slog worth it.

User
Posted 22 Sep 2015 at 20:53

Very good news Kevin,

Really pleased for you all.

How is the training going?

Looking forward to raising a beer with you at the next bash.

dave

Do all you can to help yourself, then make the best of your time. :-)
User
Posted 22 Sep 2015 at 20:55
Hi kev
Brilliant results, very pleased for you. Keep running and enjoying life.
Lesley
User
Posted 22 Sep 2015 at 20:58
Kev
fantastic ...amazing I think I need to decide which of the incredibles you need to be. I guess no-one can prove better that hitting this cancer with everything you can as quickly as you can really does work for some Men.
As for your staging I dont think they can change that but no trace of cancer sounds like you are in the best place possible.

Love to you and yours
xxx
Mo
User
Posted 22 Sep 2015 at 21:22

Hi,


That's really great news, Kev.


Keep fighting.


Steve

User
Posted 22 Sep 2015 at 22:03

I second that BOOM from Si way to go Kevla , I certainly know how hard you battled last year but look at those results well done you.  No it doesn't change your prognosis but TODAY IS A GOOD DAY.  Sending you much love .


BFN


Julie X


 

NEVER LAUGH AT A LIVE DRAGON
User
Posted 22 Sep 2015 at 22:05

Just wanted to add for those of us in the mets club we are out in force today , we are popping up all over the place.


BFN


Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 22 Sep 2015 at 22:14

Originally Posted by: Online Community Member


Just wanted to add for those of us in the mets club we are out in force today , we are popping up all over the place.


BFN


Julie X



And long may that continue !!!


 


Well done Kev. Very very pleased for you

We can't control the winds - but we can adjust our sails
User
Posted 22 Sep 2015 at 22:22
Brilliant news Kevin,

Keep on running....

Arthur
User
Posted 22 Sep 2015 at 22:24
Great to hear that as of now there is "no traceable cancer". That sounds like good news to me.

No doubt you will keep up with your running - I am sure this has helped you with the outcome of your treatment.

Wishing you all the best and hoping the good results continue.

Kind regards.
User
Posted 23 Sep 2015 at 01:23
Well done you great news.
Carol
User
Posted 23 Sep 2015 at 09:29

Brilliant news Kev...you've been through a lot but you have achieved the best possible outcome. Sounds like you have a great medical team

Bri

User
Posted 23 Sep 2015 at 23:12

It makes a change to see some good news Kevin, well done mate.


Chris.

User
Posted 26 Sep 2015 at 21:23

excellent news ....

User
Posted 18 Jan 2019 at 22:34

Hi all.


There has been so much bad news on this site recently and far too many men being diagnosed with advanced prostate cancer that i thought i would  resurrect my first thread and update where i am to hopefully give a good story to balance some of the not so to encourage others not to give up if they have any control on their situation. i know i am luckier than many.


in a nutshell T4 n1 m1 a, psa 342 on diagnosis G9. early chemo and radiotherapy despite spread to lymphs in pelvis, aorta and throat, no bone mets.


reading my initial posts brings back memories of pure fear and sadness but...............


i have and continue to run some of the toughest ultra marathons in the world raising funds for prostate cancer uk all with advanced prostate cancer. in 6 weeks i set off for the arctic to race 380 miles non stop pulling a sledge solo, 2 weeks later i will be back in the Sahara racing 150 miles there.


i was put on abiraterone as my psa was rising again after chemo/rt/biclutamide less than a year after initial treatment. i was told that abiraterone may or may not work however this week , 3 years after starting abiraterone, my psa was its lowest ever 0.05, i have had minimal side effects from this or any of my treatments to date.


yes this is a rubbish disease, yes it messes with our bodies, heads, hearts, family and friends but if you are lucky enough to be able do things please do them and plan to do them. i could have easily given up 4 years ago, i know at times i wanted to but i look back now and realise how much of life i would have missed out on if i had given up. we can control more than we think most of the time.


i know the ride for me will end one day all too soon but i will have no regrets when it does by loving the life i have whilst i have it.


if i could have given one piece of advice to me 4 years ago in hindsight early on it would have been plan something good for tomorrow every day no matter what the day is going to be so that you never wake uo with the thought "what shall i do today" as thats when you leave space for the dark and sad thoughts and those do no good for anyone.


i hope you are able to enjoy something this weekend, www.makethemostofit.org never give up.


kev

Dream like you have forever, live like you only have today Avatar is me racing in the Sahara April 2018

User
Posted 19 Jan 2019 at 07:37
Thankyou Irun ,my husband Gary had a very similar diagnosis PSA 23 G9 N1M1a just over 3 yrs ago and has the same mind set as you ,unfortunately due to needing 2 knee replacements can’t quite do the running bit !!! . His PSA has remained as undetectable for 21\2 years and he continues to work , sometimes it’s good to be reminded that life is such a precious thing and make the most of every day .
You are a great inspiration and I wish you well in your next adventure.
Best wishes
Debby
User
Posted 19 Jan 2019 at 11:05

Thank you Merivale and Irun! Your posts are really inspiring.


My husband had his results on Thursday 17/1/18 - PSA 90.5, Gleason 9, spread to bones -pelvis and clavicle, spread to lymph nodes. Not what we wanted to hear! Obviously we are still getting over the shock and having some very dark times but we are also managing to have moments of 'normality'. We have wonderful family and friends and we are all in this together. 


I have read some of your posts/profiles to my husband and we have looked at your website Irun. He is starting to get the message that life can go on, so thank you!


He is 58, a retired PE teacher and has always kept himself fit. He played football and he still coaches volleyball. He has always been a runner and he is now inspired to carry this on and can see the great benefit of it both physically and mentally.


The hospital phoned on Friday (the day after his results) and he is seeing an Oncologist at 9am on Monday morning. They certainly dont waste any time! He has been on hormone tablets since 17th December when he first saw the urologist. On Thursday they gave him his first hormone injection. I'm not sure if anybody can give us some idea about what may happen next. Is he likely to be given radiotherapy/chemotherapy anytime soon or just left on hormone therapy? Would you say that he is classed as advanced and t3 or t4? We couldnt take it all in the other day as much as we tried.

User
Posted 19 Jan 2019 at 12:17

Great post Kev, as always. Very uplifting despite the hell that is PC. I hope your Arctic trek goes well.


Ian

User
Posted 19 Jan 2019 at 14:51
Hi Deblc
If you post your husbands details and questions on your own post you will get a lot of information and help from other members.it may get lost on someone else’s post .its usually pretty quiet at the weekend but others will get back to you .
Sorry you find yourself and hubby in this position but as you can see from iruns post and mine there is hope that a relatively normal life can continue .
Best wishes
Debby
User
Posted 19 Jan 2019 at 15:55

Thank you Debby, will do.

User
Posted 19 Jan 2019 at 15:58

Hi Kev, 


Great idea to post your original thread.  You have done so much to inspire others, including me ar


Thanks  


Take care 


Steve 

User
Posted 20 Jan 2019 at 12:06
As you know Kev, I follow you closely through your FB posts on your running and will say here what I say to you there.

Hackneyed word these days as it is used for silly little things sometimes but Inspiration is what you are to me and to many others.

Keep up the good work young man!!!!
We can't control the winds - but we can adjust our sails
 
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