I am a reluctant newby here

I don’t post much but I read all the posts and I have seen so many recently that reminded me of how I felt when I started this thread in 2014 so I thought it may help newer reluctant members here ( as I was then) have some hope.  I do understand that not everyone is like me but on diagnosis I too had no idea what the future would be but did have my urologists prognosis of maybe only 2 years hanging over me.

I ran a bit before I was ill, maybe two plodding marathons a year , diagnosed T4n1m1a but since diagnosis running is what gets me through the day. 

I have run every day for the last 420+ days but due to covid all my overseas ultramarathons have been cancelled.

on March 1st I started a 9 day 386 mile virtual race and ran/shuffled/walked 42 miles a day every day until I finished on Tuesday and somehow coming 4 th in the process and raising a few more £ thousand for PCUK. I am no athlete but prostate cancer has given me an inner strength I never knew I had to just go for it and live for the day whenever there is the opportunity to do so.

i have been very lucky, I have had abiraterone for over 5 years now, my PSA went from 342 to 0.1 which is where it has roughly been for years now, I know it won’t last forever but life is now so please if you are in a dark place mentally but have the physical ability to do something you like please do it as one never wants to look back on a wasted day in time to come.

make the most of it

Congratulations to Irun whose book, Dead Man Running, will be available on Amazon in September.

https://www.amazon.co.uk/Dead-Man-Running-Story-Alive/dp/1785319884/ref=mp_s_a_1_1?dchild=1&keywords=dead%20man%20running%20kevin%20webber&qid=1624996816&sprefix=dead%20man%20running%20kevin%20&sr=8-1&fbclid=IwAR1lS8iAtCZe4uzungt3h_Lx_dGP-eCVnzWk8Jwa7mvQ-OiVjTrTUCY1AvI

Edited by member 05 Jul 2021 at 12:28  | Reason: Not specified

Thanks  Lyn, I’ll be buying it when it comes out. 

Look forward to reading Kev’s book.

Hi, it’s been a while since I posted but I wanted to share where I am and maybe inspire people to make the best of every day no matter where they are on the pca journey .

So it’s 8.5 years now since I was told I may only have 2 ,  I decided to run lots  through chemo and just never stopped (bit like Forest Gump). 

I remember thinking that my situation was hopeless but it dawned on me that at my end whenever that may be I won’t say “I wish I spent more time being sad and staying in” but I may regret not pushing life to the max every time I could .

first the scores, T4N1M1A on diagnosis , PSA 342 . Today , PSA 0.12. I had a blip last September when it rose yo 0.28 in a month. That followed 6 months when I did not run much due to injury , double hernia and food poisoning . 
why the drop again ? Obviously I dont know but I started running every day again in December (minimum 3.3 miles for the 33 men who die every day in the uk of this bu@@er of a disease) and average about 6. 
I gave up alcohol on 31/12/22. Why ? Because I wanted to run for as long as I can and I thought it may help . Do I feel better ? Not much BUT , I have lost 13 lb, sleep like a baby opposed to having broken sleep before and my “motions” have improved greatly and my running is getting better .

I have run over 15,000 miles in the last 8 years . Next up is the Brighton Marathon in 4 weeks and then off to Bhutan for a 200k race with 35,000ft of ascent. 

I have been on abiraterone since January 2016, I have been lucky , it appears to be working still , not everyone is as lucky I know .

I hope anyone reading this will realise that what you do can be up to you to some extent . I am no athlete , never very good but every day as my wife says.  “If I feel ok it’s going to be a good day” and just do stuff .

From almost day 1 , PCUK , this forum, fundraising , speaking , writing a book etc have given me a sense of worth and purpose so i guess my messages are live life the best your situation allows  every day , don’t worry about what you can’t change and so something to stop others being where we all are in time to come .  Thanks for reading 

Thanks for the post irun. Whatever your doing you're doing it right.

P822 Welcome aboard.

We raised over £4k, got a double page feature on what and why in the Daily Express plus loads of other local media coverage .

Our average age 55 all ordinary guys .

So if we can do that please believe in what may be possible for you ? Anything anyone can do to raise funds, awareness and personal joy with a sense of purpose and worth has got to be worth it .

None of know how long we have, be it fitness or friends so don’t waste a minute and try any of those aims above to help no man ever have to be stage 4 again . Live for the day .