Nice to hear from you Julie, let's hope our wheels and circles don't get mixed up could be a right mess!
I think my walking problems stem from where my bone m are located and in particular the spread on my pubic bone. On the scan this is the deepest black. This is where I had RT and within 59 yards I can feel it which discourages walking further. Also both thighs have bone Mets and they would ache much more without pain killers. So though RT ameliorated the extreme pain it's basically a weakness in my body! I guess where you get the heaviest deposit this will produce the problems. I have no strength in my right arm and this again is down to mets on my right shoulder. Because it's not load bearing I can manage that better providing I do not try to use it or lift stuff.
The PSA numbers are also interesting though I have concentrated on pattern rather than size. I have had low numbers since diagnosed only 7.5 but Gleason 9 and bone mets but relative to that it has suddenly grown again. I guess it's time for enzo.
Thanks Si and Chris too. As the week draws to a close the main pain in the middle of the back has started to recede. It's been a tough week but I am hoping the rest I have had will help me through a busy two weeks.
Could be a bidding war for the book assuming it ever reaches the public. But I shall try and keep one by for you Julie!
Edited by member 09 Jan 2016 at 13:06
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