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Surgery has been scheduled

User
Posted 05 Feb 2015 at 09:59
Hi all,my husband saw the urologist today and we were told the CT scan showed no enlargement of the lymph glands and the bone scan showed no hot spots. He is 73 in good health other than overweight and we have decided on an open prostatectomy to be done on March 10. We were told it was this or RT. His Cancer was picked up in a routine colonoscopy . A nodule was confirmed by DRE. Biopsy was 9 out of 18 cores Cancer. 8 of these were 3+3 but one 4+3 with ductal as well as the usual type Cancer. This is the nodule which is close to the edge. This cancer is obviously not producing much psa because his psa is only 2.3. Whilst I am relieved that surgery appears an option I will not be content until pathology at surgery confirms containment. Should I still be so anxious ? Also I am worried about complications of this surgery but I must stay positive..
User
Posted 12 Mar 2015 at 00:16
Hi all, we saw the urologist today. Catheter is to stay in until Monday . Most of the staples out. Histology report very reassuring. Gleason on histology 3+4 on biopsy 4+3 . Acinar adenocarcinoma 15%. Volume of gland. Both lobes involved but mainly right posterior quadrant where it extends from mid to apex app 15 x 15 mms. pattern 3 predominates 70-80%. Confined to prostate and clear margin.

Edited by member 14 Apr 2015 at 02:45  | Reason: Not specified

User
Posted 05 Feb 2015 at 16:32

Hi, Try not to worry.  Statitistically  his chances are 85 per cent  which is good news.   Make the most of your  time and dont waste it worrying about something you cant change.  I wish you well,El.

User
Posted 06 Feb 2015 at 11:36

Hi Grea. Surgery is always a worry regardless of age I think. I didn't have a fab time let me assure you. It does sound as though your husbands cancer has been caught whilst still in its early stages, and hopefully it will all be under control post op. Like all of us here on this forum, its a wait and see game. Do try and not to worry too much, but its easier said than done. Hope that all goes well. Trevor

User
Posted 06 Feb 2015 at 12:50

Grea

That gives you four weeks to nag him to do his pelvic floor exercises. Hope all goes well and Stay positive.

Thanks Chris

User
Posted 06 Feb 2015 at 15:28

sorry to hear this but lots of us have been through it - it is not an easy journey but in the context of other health issues it is manageable. the pelvic floor exercises are really important and the key to coping with a frequent post operative issue of incontinence. good luck.  

User
Posted 12 Feb 2015 at 08:48

Georgina

Priorities 1, 2 and 3 are all the same. Get rid of the cancer!

After that, for me anyway, it's sort the incontinence, and finally the ED. Yes, the last 2 are very important, but still don't come close to the first 3

Paul

Stay Calm And Carry On.
User
Posted 12 Feb 2015 at 11:59

It was my thought all along that regardless of what kind of cancer is in your prostate, when it's gone it's GONE. 

User
Posted 12 Feb 2015 at 23:43

Georgina, ductal cancer tends to be more aggressive than the usual adenocarcinoma and surgery is believed to be a better option than radiotherapy as the ductal cancer does not respond very well to hormone treatment. In your husband's case they only found one core which is good news but if they find more once they get the gland into a Petrie dish, then the choices for adjuvant or salvage treatment may be a bit different to most men here.

The sooner it is removed, the sooner you will know exactly what you are dealing with.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 16 Feb 2015 at 20:45

Grea

 

that sounds like me you were describing a few weeks before my op, but there was a lot more going on inside that calm exterior and far from resigned. We are all different and cope in our own way. 

 

Thanks Chris

User
Posted 16 Feb 2015 at 21:23

Pleased for you that things are moving on a apace. Less time to worry and wonder, and sooner it will be over and you can both concentrate join recovery.

Have you considered what you will need in the overnight bag? I had the robot so can not suggest clothes, T-bags etc, others will I am sure.

atb

dave

User
Posted 16 Feb 2015 at 21:49
Georgina

Hi you are going to be so busy the operation will be over and done before you can imagine. It is good that you have loads of things to stop you over thinking the day.

I have no experience of operable PCa so will leave the technical side to others far more in the know than me.

Not yet 65 and happily married for 44 years WOW that alone tells me you and your husband and family will cope with whatever is thrown at you.

I am sure you will post before March 2 but I wish you all the best now just in case I miss you.

Xx

Mo

User
Posted 16 Feb 2015 at 23:00

Hi Grea,

Seeing that you are from Australia, reminds me that there is a very good support site that was established by an Australian Terry Herbert. Terry was a great and knowledgeable guy and sometimes contributed to our forum. Unfortunately, he passed away but his support legacy YANA, (You Are Not Alone Now) remains and has members and their stories from many countries. http://www.yananow.org/Links.shtml

Barry
User
Posted 24 Feb 2015 at 09:54
Thinking of you Georgina not long to wait now... Of course you should stay with us here PCa is what it is here, in the United States, In Oz or on Mars for all we know.

Best wishes for your Husband to have successful surgery and a positive outcome.

xx

Mo

User
Posted 24 Feb 2015 at 11:00

Originally Posted by: Online Community Member

 I am not looking forward to the pathology result in case it is not good news. I am a bit suspicious because the surgeon is taking some or all of the lymph glands which must indicate some concern that they are affected. Georgina

Hi Grea,

Always a nerve racking time waiting for results.......even more so I found when awaiting Path results.....

With a full histology report at least you have a much clearer picture of the extent of the disease etc as biopsies and MRI scans  do not always show the full story.  

Try not to worry too much about the significance of the proposed lymph node removal / sampling.... although my MRI scans didn't show any concerns beyond the prostate my surgeon removed 3 nodes for dissection as a precaution ( they were all clear )

I was told some surgeons routinely remove some lymph nodes as a matter of course when I queried this....

Please do remain on this forum and keep us posted of your husbands progress.

Best Wishes to your husband  for a successful procedure and a successful outcome

Luther

User
Posted 24 Feb 2015 at 11:32

Hi Georgina

Thinking of you and your oh over the next week or so. Wishing you the very best and hope to hear from you in the near future.

Trevor

User
Posted 25 Feb 2015 at 07:11

Hi just to reassure you it is common practice to remove a sample of lymph nodes to check there has been no spread. I had 15 removed and all were clear

Bri

User
Posted 04 Mar 2015 at 04:14

Glad it all went well for Erwell Georgina.
Long may his progress continue.
All the best
Sandra

We can't control the winds - but we can adjust our sails
User
Posted 04 Mar 2015 at 06:42

Excellent news, first hurdle successfully overcome. Make sure he does not overdo anything now.

dave

User
Posted 04 Mar 2015 at 08:19
Hi Georgina

I have been looking out for this post, so happy that Erwell has sailed through the operation. Now make sure he is pampered and loved much throughout his recovery.

A happy start for my day here in Blighty

xx

Mo

User
Posted 04 Mar 2015 at 08:25

Great news Georgina, Erwell can start the recovery process now though if a cricket fan he may find it harder to recover from defeat last week to NZ! Good luck on your journey!

User
Posted 04 Mar 2015 at 15:48

Georgina

Delighted to see all went well. Best of luck to Erwell in his recovery.

Once upon a time, I would have watched the cricket avidly. I now avoid it like the plague!

Paul

Stay Calm And Carry On.
User
Posted 04 Mar 2015 at 16:49

Good news. Take it easy and get well soon.

 

Steve

User
Posted 04 Mar 2015 at 17:03

Best wishes to your hubby for a speedy recovery....

PS.... Being an Englishman I shall avoid mentioning the cricket.....http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif

User
Posted 04 Mar 2015 at 19:34

Brilliant news Georgina. Wishing you both the very best for a speedy recovery.

User
Posted 04 Mar 2015 at 21:14

Hi

Hoping he makes a speedy recovery and the histology report is good

Bri

User
Posted 06 Mar 2015 at 08:20

Excellent. It looks like all went well. Plenty of cricket for him to watch whilst you do all the running around for a few weeks!

Paul

Stay Calm And Carry On.
User
Posted 06 Mar 2015 at 08:44

Too good to be true means you're waiting for the other shoe to drop!!

Erwell will be fine. Enjoy having him home and I'm sure you will be driving him mad with all the pampering you want to do.

All the best
Sandra

We can't control the winds - but we can adjust our sails
User
Posted 06 Mar 2015 at 08:46
Paul, I am sure Erwell will be watching cricket the Aussies have got some brilliant young players coming through just as we should have and yet over here all I get from cricket loving friends is "bring back Pieterson"

Georgina it must be lovely to have him home so soon after his open surgery, lots of fluids (tea and water and maybe the occasional Fosters!!) lots of good home cooking and plenty of loves and cuddles and follow all the post op advice. Next thing you know he will be out on the deck doing end of season BBQs

xx

Mo

User
Posted 12 Mar 2015 at 00:24

Great news Georgina.

User
Posted 12 Mar 2015 at 00:51

Brilliant news - onwards and upwards now x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 12 Mar 2015 at 07:33
Georgina

That is wonderful news, Maybe next time some of us get together we could try and skype you out there to say hello.

That or I need to revisit Australia and New Zealand. Last time we managed to go to Darwin, Cairns, Brisbane, Sydney, Melbourne and Hobart. I would love to go to the West coast next time.

best wishes

xx

Mo

User
Posted 12 Mar 2015 at 09:04

Excellent news, Georgina.

Be patient over Erwell's recovery. I hope he didn't laugh too much at our pathetic efforts v Bangladesh. Truly awful!

Mo - I think England's problems go far beyond Kevin Pieterson. I know if we had Fergie in charge, he would find a way of integrating him. He gave Cantona free reign to bring the best football wise out of him.

Paul

Stay Calm And Carry On.
User
Posted 12 Mar 2015 at 09:24

Hi Grea, really good news. Wishing you well and continued good news.

Trevor

User
Posted 12 Mar 2015 at 18:00

Hi Georgina,

That is such good news, i wish your husband a speedy recovery.

Si

Don't deny the diagnosis; try to defy the verdict
User
Posted 12 Mar 2015 at 19:04

good news and a curative sounding histology

Fingers crossed for the PSA test

Bri

User
Posted 12 Mar 2015 at 19:16

Brilliant news Georgina know it is onwards and upwards. A good news day.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 16 Mar 2015 at 00:57

Hi Grea,
the treatments you have read about, daily cialis, to help with recovery of erectile function are not relevant if your OH has had all nerves removed. Without nerves he will not be able to get a spontaneous erection so event tablets like Cialis, Viagra and Levitra will not work either.

In England, men that have had the op are entitled to a proper vacuum pump on the NHS (not to be confused with the cheap ones available from sex shops) but I understand that in Australia these are very difficult to come by and can be very expensive. The vacuum pump has two functions - used daily to maintain the size and health of the penile tissue or used with constriction rings to have penetrative sex.

For men with no nerves, or for whom Viagra etc doesn't work for other reasons, there are two other options - an injection called Caverject or pellet called Muse. He could talk to the GP about pumps for the time being and then injections & pellets when he sees the surgeon. In the meantime, as soon as possible it would be good if he learns how to have an orgasm without an erection - this is possible with oral sex (if he isn't too leaky) or by masturbation and made easier if he (or you) use lots of lube.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

Show Most Thanked Posts
User
Posted 05 Feb 2015 at 16:32

Hi, Try not to worry.  Statitistically  his chances are 85 per cent  which is good news.   Make the most of your  time and dont waste it worrying about something you cant change.  I wish you well,El.

User
Posted 06 Feb 2015 at 11:36

Hi Grea. Surgery is always a worry regardless of age I think. I didn't have a fab time let me assure you. It does sound as though your husbands cancer has been caught whilst still in its early stages, and hopefully it will all be under control post op. Like all of us here on this forum, its a wait and see game. Do try and not to worry too much, but its easier said than done. Hope that all goes well. Trevor

User
Posted 06 Feb 2015 at 12:50

Grea

That gives you four weeks to nag him to do his pelvic floor exercises. Hope all goes well and Stay positive.

Thanks Chris

User
Posted 06 Feb 2015 at 15:28

sorry to hear this but lots of us have been through it - it is not an easy journey but in the context of other health issues it is manageable. the pelvic floor exercises are really important and the key to coping with a frequent post operative issue of incontinence. good luck.  

User
Posted 12 Feb 2015 at 08:29
My OH has had his operation brought forward to March 2.. I am relieved about what the urologist is saying but would like to know a bit more about the one core of ductal cancer that showed up on his biopsy and gave a 4+3 gleason score. I am also wondering why his PSA is only 2.3 . The urologist is doing an open prostatectomy , taking lympyh glands and attempting nerve sparing on the side most unaffected by Cancer. When these things are considered what do people think ? Georgina
User
Posted 12 Feb 2015 at 08:48

Georgina

Priorities 1, 2 and 3 are all the same. Get rid of the cancer!

After that, for me anyway, it's sort the incontinence, and finally the ED. Yes, the last 2 are very important, but still don't come close to the first 3

Paul

Stay Calm And Carry On.
User
Posted 12 Feb 2015 at 11:59

It was my thought all along that regardless of what kind of cancer is in your prostate, when it's gone it's GONE. 

User
Posted 12 Feb 2015 at 23:43

Georgina, ductal cancer tends to be more aggressive than the usual adenocarcinoma and surgery is believed to be a better option than radiotherapy as the ductal cancer does not respond very well to hormone treatment. In your husband's case they only found one core which is good news but if they find more once they get the gland into a Petrie dish, then the choices for adjuvant or salvage treatment may be a bit different to most men here.

The sooner it is removed, the sooner you will know exactly what you are dealing with.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 16 Feb 2015 at 01:37
ECG and blood and urine tests today. Tomorrow is the incontinence clinic for advice re pelvic floor exercise and Wednesday pre admission clinic . What with our 44th wedding anniversary on Friday my 65 th birthday on Sunday and our grandaughter who we played a big role in rearing is 21 on Monday we are going to up to the big day 2 March before we know it. I feel the butterflies but as usual my OH is calm resigned and more interested in the cricket. I sometimes wonder whether ignorance truly is bliss lol

Edited by member 16 Feb 2015 at 03:59  | Reason: Not specified

User
Posted 16 Feb 2015 at 20:45

Grea

 

that sounds like me you were describing a few weeks before my op, but there was a lot more going on inside that calm exterior and far from resigned. We are all different and cope in our own way. 

 

Thanks Chris

User
Posted 16 Feb 2015 at 21:23

Pleased for you that things are moving on a apace. Less time to worry and wonder, and sooner it will be over and you can both concentrate join recovery.

Have you considered what you will need in the overnight bag? I had the robot so can not suggest clothes, T-bags etc, others will I am sure.

atb

dave

User
Posted 16 Feb 2015 at 21:28

oops.

 

d p sorry

 

dave

User
Posted 16 Feb 2015 at 21:49
Georgina

Hi you are going to be so busy the operation will be over and done before you can imagine. It is good that you have loads of things to stop you over thinking the day.

I have no experience of operable PCa so will leave the technical side to others far more in the know than me.

Not yet 65 and happily married for 44 years WOW that alone tells me you and your husband and family will cope with whatever is thrown at you.

I am sure you will post before March 2 but I wish you all the best now just in case I miss you.

Xx

Mo

User
Posted 16 Feb 2015 at 22:34

Hi all, yes Mo we are blessed with a large and loving family. As you may have realised we live in Australia so some things re pca may be a bit different. However, I am sure the pain and anxiety felt by folks is exactly the same so I am very grateful for the information and support I have received on this site. We have travelled to the UK many times as until recently our eldest son lived in Kingston-on-Thames with his British wife and two children. They have now moved to Oz and live in Melbourne. Cheers Georgina

User
Posted 16 Feb 2015 at 23:00

Hi Grea,

Seeing that you are from Australia, reminds me that there is a very good support site that was established by an Australian Terry Herbert. Terry was a great and knowledgeable guy and sometimes contributed to our forum. Unfortunately, he passed away but his support legacy YANA, (You Are Not Alone Now) remains and has members and their stories from many countries. http://www.yananow.org/Links.shtml

Barry
User
Posted 24 Feb 2015 at 08:59

Hi Barry I checked the site you suggested and found some useful information although it has not been updated lately. I hope you folk don't mind me continuing on here even though I am from Oz. My husband's surgery date is nearly here and it will be a relief to have it all over although I am not looking forward to the pathology result in case it is not good news. I am a bit suspicious because the surgeon is taking some or all of the lymph glands which must indicate some concern that they are affected. Anyway what will be will be. I continued to be strengthened by the many positive posts even when the news is not so good. Cheers for now I will hopefully update about his sugery next week. Georgina

User
Posted 24 Feb 2015 at 09:54
Thinking of you Georgina not long to wait now... Of course you should stay with us here PCa is what it is here, in the United States, In Oz or on Mars for all we know.

Best wishes for your Husband to have successful surgery and a positive outcome.

xx

Mo

User
Posted 24 Feb 2015 at 11:00

Originally Posted by: Online Community Member

 I am not looking forward to the pathology result in case it is not good news. I am a bit suspicious because the surgeon is taking some or all of the lymph glands which must indicate some concern that they are affected. Georgina

Hi Grea,

Always a nerve racking time waiting for results.......even more so I found when awaiting Path results.....

With a full histology report at least you have a much clearer picture of the extent of the disease etc as biopsies and MRI scans  do not always show the full story.  

Try not to worry too much about the significance of the proposed lymph node removal / sampling.... although my MRI scans didn't show any concerns beyond the prostate my surgeon removed 3 nodes for dissection as a precaution ( they were all clear )

I was told some surgeons routinely remove some lymph nodes as a matter of course when I queried this....

Please do remain on this forum and keep us posted of your husbands progress.

Best Wishes to your husband  for a successful procedure and a successful outcome

Luther

User
Posted 24 Feb 2015 at 11:32

Hi Georgina

Thinking of you and your oh over the next week or so. Wishing you the very best and hope to hear from you in the near future.

Trevor

User
Posted 25 Feb 2015 at 00:34

Hi again Barry. I have found a forum on the site you suggested although it does not seem as user friendly as this one. Thanks Georgina

User
Posted 25 Feb 2015 at 07:11

Hi just to reassure you it is common practice to remove a sample of lymph nodes to check there has been no spread. I had 15 removed and all were clear

Bri

User
Posted 04 Mar 2015 at 01:28
Hi all ,well surgery is done and dusted. It took four hours and the doctor did not want Erwell to be under anaesthetic for longer so he said that he looked at lymph glands with a microscope and decided no sign of cancer so left them. Not sure what the implications of his will be.. Erwell has recovered remarkably well. Back to the ward 7 pm and spoke to our children on the phone to reassure them he was still alive. Lol. This morning, Oz time, he is showered and sitting in a chair . So far all good. Thanks for the support . He went into this open prostatectomy with me at least well informed. it is so true that knowledge is empowering . I have been able to take it one step at a time. I know there will be many more steps to take but feeling good at present. Georgina
User
Posted 04 Mar 2015 at 04:14

Glad it all went well for Erwell Georgina.
Long may his progress continue.
All the best
Sandra

We can't control the winds - but we can adjust our sails
User
Posted 04 Mar 2015 at 06:42

Excellent news, first hurdle successfully overcome. Make sure he does not overdo anything now.

dave

User
Posted 04 Mar 2015 at 08:19
Hi Georgina

I have been looking out for this post, so happy that Erwell has sailed through the operation. Now make sure he is pampered and loved much throughout his recovery.

A happy start for my day here in Blighty

xx

Mo

User
Posted 04 Mar 2015 at 08:25

Great news Georgina, Erwell can start the recovery process now though if a cricket fan he may find it harder to recover from defeat last week to NZ! Good luck on your journey!

User
Posted 04 Mar 2015 at 13:17
Thanks for the good wishes. Paul he is a cricket tragic I am afraid and was disappointed with said match. Very tired tonight. He has all of the monitors off now and should have been transferred out of Critical Care Unit but there are no beds available so to date he is still in CCU. I am hoping for no set backs so we can ge him home soon. Yes Mo a lot of loving care. I think if anything the experience of Pca has strengthened our relationship.. Cheers Georgina

Edited by member 04 Mar 2015 at 13:20  | Reason: Not specified

User
Posted 04 Mar 2015 at 15:48

Georgina

Delighted to see all went well. Best of luck to Erwell in his recovery.

Once upon a time, I would have watched the cricket avidly. I now avoid it like the plague!

Paul

Stay Calm And Carry On.
User
Posted 04 Mar 2015 at 16:49

Good news. Take it easy and get well soon.

 

Steve

User
Posted 04 Mar 2015 at 17:03

Best wishes to your hubby for a speedy recovery....

PS.... Being an Englishman I shall avoid mentioning the cricket.....http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif

User
Posted 04 Mar 2015 at 19:34

Brilliant news Georgina. Wishing you both the very best for a speedy recovery.

User
Posted 04 Mar 2015 at 21:14

Hi

Hoping he makes a speedy recovery and the histology report is good

Bri

User
Posted 06 Mar 2015 at 05:58

Hi all, Erwell came home from hospital today after only 3 nights in hospital . He has certainly exceeded expectations in recovery from open prostatectomy . Lovely to have him home . Catheter in of course and only paracetamol for pain. Too good to be true I am thinking. Cheers Georgina

User
Posted 06 Mar 2015 at 08:20

Excellent. It looks like all went well. Plenty of cricket for him to watch whilst you do all the running around for a few weeks!

Paul

Stay Calm And Carry On.
User
Posted 06 Mar 2015 at 08:44

Too good to be true means you're waiting for the other shoe to drop!!

Erwell will be fine. Enjoy having him home and I'm sure you will be driving him mad with all the pampering you want to do.

All the best
Sandra

We can't control the winds - but we can adjust our sails
User
Posted 06 Mar 2015 at 08:46
Paul, I am sure Erwell will be watching cricket the Aussies have got some brilliant young players coming through just as we should have and yet over here all I get from cricket loving friends is "bring back Pieterson"

Georgina it must be lovely to have him home so soon after his open surgery, lots of fluids (tea and water and maybe the occasional Fosters!!) lots of good home cooking and plenty of loves and cuddles and follow all the post op advice. Next thing you know he will be out on the deck doing end of season BBQs

xx

Mo

User
Posted 12 Mar 2015 at 00:16
Hi all, we saw the urologist today. Catheter is to stay in until Monday . Most of the staples out. Histology report very reassuring. Gleason on histology 3+4 on biopsy 4+3 . Acinar adenocarcinoma 15%. Volume of gland. Both lobes involved but mainly right posterior quadrant where it extends from mid to apex app 15 x 15 mms. pattern 3 predominates 70-80%. Confined to prostate and clear margin.

Edited by member 14 Apr 2015 at 02:45  | Reason: Not specified

User
Posted 12 Mar 2015 at 00:24

Great news Georgina.

User
Posted 12 Mar 2015 at 00:51

Brilliant news - onwards and upwards now x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 12 Mar 2015 at 07:33
Georgina

That is wonderful news, Maybe next time some of us get together we could try and skype you out there to say hello.

That or I need to revisit Australia and New Zealand. Last time we managed to go to Darwin, Cairns, Brisbane, Sydney, Melbourne and Hobart. I would love to go to the West coast next time.

best wishes

xx

Mo

User
Posted 12 Mar 2015 at 09:00

Good news Georgina.

Hope all goes well in the future.
Best Wishes
Sandra

We can't control the winds - but we can adjust our sails
User
Posted 12 Mar 2015 at 09:04

Excellent news, Georgina.

Be patient over Erwell's recovery. I hope he didn't laugh too much at our pathetic efforts v Bangladesh. Truly awful!

Mo - I think England's problems go far beyond Kevin Pieterson. I know if we had Fergie in charge, he would find a way of integrating him. He gave Cantona free reign to bring the best football wise out of him.

Paul

Stay Calm And Carry On.
User
Posted 12 Mar 2015 at 09:24

Hi Grea, really good news. Wishing you well and continued good news.

Trevor

User
Posted 12 Mar 2015 at 18:00

Hi Georgina,

That is such good news, i wish your husband a speedy recovery.

Si

Don't deny the diagnosis; try to defy the verdict
User
Posted 12 Mar 2015 at 19:04

good news and a curative sounding histology

Fingers crossed for the PSA test

Bri

User
Posted 12 Mar 2015 at 19:16

Brilliant news Georgina know it is onwards and upwards. A good news day.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 15 Mar 2015 at 22:53
An update. OH had his catheter taken out today and the remainder of the staples. He was told by the practice nurse that he does not need to see the urologist agiain until afte his first post op PSA test in May..We have also learned that the urologist was not able to save the nerve bundles either side of the postate so his future sexual function is unknown at this stage although some mention was made in a prior appointment about other options to achieve erection such as a pump. I am a bit confused because I have read on this site about early use of medication to encourage blood flow etc and wonder what may be effective for us . I am gathering that we will need to discuss this issue with the GP as we don't see the urologist again until June 2015 or am I too impatient to try and get some sort of treatment in place. Otherwise he is doing very well and the favourable histology gives room for optimism . Cheers Georgina from Oz
User
Posted 16 Mar 2015 at 00:57

Hi Grea,
the treatments you have read about, daily cialis, to help with recovery of erectile function are not relevant if your OH has had all nerves removed. Without nerves he will not be able to get a spontaneous erection so event tablets like Cialis, Viagra and Levitra will not work either.

In England, men that have had the op are entitled to a proper vacuum pump on the NHS (not to be confused with the cheap ones available from sex shops) but I understand that in Australia these are very difficult to come by and can be very expensive. The vacuum pump has two functions - used daily to maintain the size and health of the penile tissue or used with constriction rings to have penetrative sex.

For men with no nerves, or for whom Viagra etc doesn't work for other reasons, there are two other options - an injection called Caverject or pellet called Muse. He could talk to the GP about pumps for the time being and then injections & pellets when he sees the surgeon. In the meantime, as soon as possible it would be good if he learns how to have an orgasm without an erection - this is possible with oral sex (if he isn't too leaky) or by masturbation and made easier if he (or you) use lots of lube.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 16 Mar 2015 at 10:50
Hi Georgina

good news that Erwel has had catheter and staples removed, that will make him more comfortable.

It is good to see a wife or partner posting who is happy to talk as openly and with the obvious intent to support physically that you do. Your husband is very blessed.

Lyn is one of the best and most amazing advisors for anyone seeking to get the best help and support with ED and sexual recovery issues. You will have gathered that from her post. Several others will also talk very openly about things they have tried that worked and how to deal with the frustration if things do not work as well or as quickly as you would like.

I am not sure how similar the Australian health service is to ours and if you have access to an ED clinical/specialist nurse or doctor who can also give advice.

All the best

xx

Mo

 
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