Chris J's Journey

User

Posted 03 Mar 2016 at 07:12

Thanks for the replies everyone. It is appreciated. I know you will all have different views and I understand that. I did ask him if I was being stupid and he said not in the slightest.
So on with my journey.......
Chris

User

Posted 03 Mar 2016 at 08:17

And today's Daily Telegraph front page couldn't have come at a better time ....

http://www.telegraph.co.uk/news/science/science-news/12181321/Radiotherapy-for-prostate-cancer-raises-risk-of-new-tumours.html

Edited by member 03 Mar 2016 at 09:58 | Reason: Not specified

User

Posted 03 Mar 2016 at 09:38

Hi Chris,

Haven't seen the Telegraph today. I'll look out for it.

I used to work for them up until the recession. Unfortunately, they made most of the people I worked with redundant and the work disappeared. Was fun though up until that time.

Steve

User

Posted 03 Mar 2016 at 13:22

Chris,

Thanks for the tip re the Telegraph. I read it at the newsstand in my local supermarket this morning !

I was fully briefed re the possible side effects mentioned . In fact I have a further blood test tomorrow for this very reason .

This follows on from Kev's ( I run ) post re poo in blood .

Can't say I'm thrilled about it at all. But it may be something or hopefully nothing. The Onco didn't rule out my problem being resultant from RT .

Keep going . I'm glad you've avoided RT for yourself.

Best wishes ,

John

User

Posted 03 Mar 2016 at 17:02

Hey Buddy

I just wanted to add my support to you my good friend, I know we are communicating offline everyday but I wanted you to know I was here to read the update.

Keep your head strong buddy, remember dinner is on me this time :)

All the best to you and all the best to everyone else on this fantastic forum...

Raiden

User

Posted 03 Mar 2016 at 20:33

Hi Chris ,

Lovely to see Raiden popping in for you this is what the forum is all about , good advice, information and sometimes just a shoulder and a friendly face.

So yes yes yes so totally agree with all of the above posts. Keep RT in the bag . The more in the bag for when and IF needed the better.

BFN

Julie

NEVER LAUGH AT A LIVE DRAGON

User

Posted 05 Mar 2016 at 17:26

Hi Chris

I've just been reading through your journey. It might seem trivial to say, with all that's been going on in your life more recently, but a big thanks for the 'heads up' on the risks of overloading the bladder ( 11 July 2015). A timely reminder for me- been pushing the boundaries a bit there myself in a similar way. Your post was a reality check.

User

Posted 07 Mar 2016 at 19:48

Hi all
Re my post on " Turmeric - does it work " , since I've stopped taking it there has been a VAST improvement as regards awful belly ache and rolling nausea. So much so that Onco has cancelled the CT scan and we are just going to watch my PSA for a while. Which is fine by me !
Turns out the Natures Best supplement is Three times the recommended daily allowance. Some people can take it , others not , depending on what else your liver is trying to process at the same time. Gosh it was making me ill. I contacted them today and they were superb and interested and even offered a refund. I shall get a pill cutter and half the dose starting next week maybe.
Chris

User

Posted 07 Mar 2016 at 20:49

Great news Chris. What a relief, in more ways than one!

Quarter the tabs and work your way UP to a half maybe. That way it would be more gentle on your stomach and you'd know when it was safe to increase it.

I'm very pleased for you though. It just goes to show though doesn't it, that a health supplement isn't always healthy for everyone.

At least you found out in time to stop the CT scan.

We can't control the winds - but we can adjust our sails

User

Posted 08 Mar 2016 at 19:35

Really great news Chris jx

User

Posted 08 Mar 2016 at 23:07

How interesting - just goes to show that Trevor really is superhuman, even his liver!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 14 Apr 2016 at 10:36

Hi guys
Just an update to my journey. No need to reply !
Oncology appt yesterday. I've been on Bical 150mg HT for 6 months now in total. Still daily tummy ache and nausea , and adhesion pain no signs of shifting. It's annoying as he said adhesions are very rare. And he discounted the HT causing tummy probs , yet Patient.UK which our GP's use clearly has it as a ' very common ' side effect. My psa is 0.14 so a minute rise.
We have decided to stop HT end of August ( we have an amazing family holiday planned and don't want to change things before then ) and then do monthly psa tests until, I reach approx 5. I then have a clear offer of another C11 CholinePET scan at Oxford ( hurrah another night of food and drink at a Premier Inn ). At least this way we are doing something , and being an engineer I will feel happier knowing what's happening inside me . My mindset needs to change radically , as at the present I'm fatigued , over-emotional , depressed , bl***dy impotent which is eating away at me , and highly anxious / irritable. Not a good way to be ! Elaine will be moving me out to our new shed soon :-((.
Best wishes as ever to everyone x
Chris

User

Posted 14 Apr 2016 at 10:47

Sounds like an excellent plan to me CJ - I like your onco's approach a lot.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 14 Apr 2016 at 22:40

Hoorah for holidays that's what I say,

I hope the shed is going to be a man cave😄 It is sounding good to me CJ . So it's. Smile from me.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 24 Aug 2016 at 11:45

Hi All
So it's taken me 20 mins literally to find my own post. I've asked about this before. It's not in " my conversations " nor in " conversations I have posted in ". And if you type Chris J's Journey in the search bar , absolutely nothing at all. I've asked admin three times now but not resolved. Anyway got there by typing Chris J Journey in. Random heh !! Rant over.
ANYWAY , I've had my lovely holiday and stopped Bicalutamide 150mg HT on Sunday, and Tamoxifen today. Yesterday I had PSA test and the result was a very happily received 0.13 so the cancer has remained controlled for 11 months on HT , and I am nearly 15 months post op. So we are going to let things grow to a PSA of 3 to 5 and then do the PET scan. My Onco still thinks this is the way forward for me and I trust him. RT is still available if I ever want it , but I remain glad I've not had it just on a whim.
At 15months post op I'm beginning to feel I now have permanent ED having had zero natural function nor even one morning erection in this time. However I have now persuaded my doctor to prescribe daily Cialis instead of injections as it is proving the most effective with least side-effects. I still use the pump daily.
So I guess in 6 weeks we will have an idea how aggressive the cancer is , and will be able to plan a scan and future treatment plan. I'm glad I may be able to remain on ADT rather than injection HT to give a better standard of life.
Take care all x

User

Posted 24 Aug 2016 at 14:33

Lovely update Chris,

The sun continues to shine and its all good news here on the forum. Happy Days.🤗

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 24 Aug 2016 at 14:58

Hi Chris

A good update.It reads you and onco are taking a well planned approach to keeping PCa under control. Fingers crossed that PSA stays low for many a month.

Ray

User

Posted 24 Aug 2016 at 15:01

Great news Chris.

Good that you are able to hold off on the RT for the time being.

******

We can't control the winds - but we can adjust our sails

User

Posted 24 Aug 2016 at 15:02

Again good post Chris. Seems your onco has a good plan in place.

All the best.

Sandy

User

Posted 24 Aug 2016 at 16:53

Pleased for you Chris. All sounds positive. Take care.

Paul

THE CHILD HAS GROWN, THE DREAM HAS GONE

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