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Moving swiftly on

User
Posted 29 Jul 2015 at 13:13

The dreaded letter arrived today giving me an appointment not to be missed.Saturday the 8th August. I had been told it was to be the 19th and made all my plans around that but the sooner this is over the sooner I can move on. Being totally honest I am somewhat scared now, the reality of the diagnosis, the discussions on treatment, reading of others experiences on here and knowing what is to come in a few days time. I really thought I had got my head around it all but the move forwards has taken the wind out of sails but hopefully that's only a slight mental blip and I will overcome that in a couple of days.

 So.... the checklist is nearly complete with things to get, do and boxes to tick.

 

Baggy underwear                 ✔      Loose jogging bottoms        ✔

Loose Shirt                          ✔      Peppermint water                ✔

Stand for catheter bag         ✔       Various wipes and Dettol      ✔

Pads and pants                   ✔        Mattress cover                    ✔

Prune juice                         ✔        Cranberry Juice                  ✔

Books                                ✔        Tissues                              ✔

PFE  ongoing                      ✔

 

Any omissions and advice from those who have been there before me gratefully received!

 

Wobbly Dick

User
Posted 13 Aug 2015 at 15:47

Time for an update. The last four days have been a revelation to me in all sorts of ways. I took a great deal of comfort from all the posts on here from those who had gone before... and was somewhat scared by some of the comments from others who had posted of their personal experiences so I thought I would add my own experiences to the melting pot.

I was surprised that the only pain relief prescribed by the Docs was to be 2 Ibuprofen and two paracetamol four times a day so purchased half of Boots annual delivery of Co prodomaol and more Ibuprofen to deal with the anticipated agony. Hmmm. Waste of money as they are all still in their boxes unused and I am now down to half the allowed dose from the docs as the actual pain has been very manageable ...so far. I must have been one of the lucky ones with regard to trapped gas in the shoulders etc as that didnt happen. There was and still is a huge amount of gurgling and rumbling from my tummy which is and has been quite painful but that is getting better. The advice on Dulcoease and Lactulose was heaven sent. I have been taken them since day one and was gratified that the movement prompted by them worked and whilst still not back to "normal" it has not been the excruciating experience I was expecting. Definitely one for those that follow to put top of the list.

The new look plumbing system I left hospital with whilst functional was a huge disappointment in its functionality. Having been advised to try to drink Britain dry to ensure the bladder etc was flushed through and working at its best capacity the capacity of the normal leg bag proved woefully inefficient to perform its function. The drive from my Hospital to the bosom of my home takes about 45 mins normally but my wonderful Angel of Mercy took pity on me and the usual Grand Prix drive along the A30 was reduced to a more sedate, less bumpy afternoon amble with the accompanying tailback probably reaching Cornwall by the time we turned off on to more rural roads. At this point, taking a moment to relax I observed a rather large bulge within my copious new trousers. The smutty minded of you can go and stand in the corner. Hopefully that will follow in time but this bulge was at the side of my leg which on examination revealed the 500ml supplied bag was clearly not suitable for the current output of the new plumbing system. Throwing all the newly gained knowledge of how to empty the said receptacle is a aseptic way with regard to hygiene contamination and sterility, a turn off the main road into a farmers field entrance and a painful exit from the car to a vertical position to allow my medical team, Sarah, to put her skills to the test and release my efforts directly to the ground. I suspect the lesser of two evils as the bag was full to capacity and clearly would have resulted in excess internal pressure for the remainder of our journey home. I apologise to the unknown farmer whose grass may have been killed for evermore but my need exceeded an area of grass in the scale of things.My level headed nursing team (bless her cotton socks) calculated that on my current fluid intake my expulsions would also exceed the capacity of the larger super de luxe night time receptacle which would also reach capacity during my newly extended sleep cycle. With true devotion to her patient, setting her alarm for the middle of the night did reveal the night bag was full and needed changing which was accomplished almost without waking me. Another lesson learnt.

I have been exercising as recommended with slow gentle walks of a few yards, a few times a day and have built that up to three wanders of about a 100yds a day. The initial efforts could be described as the stagger of a drunken docker on a Saturday night have now been replaced by the slow but purposeful wander of an aged gentleman on a mission. I am now able to walk standing rather than slumped over and lift my feet rather than shuffle. All good things. However, my capability for sleep and laying flat on a bed semi comatose for hours has come as a bit of a shock. Perhaps my expectations of my resilience and fortitude were misplaced. I seem to be able to "go for it" in short bursts of a couple of hours followed by a similar period of rest. Finding the happy medium between the two whilst still elusive will follow in time.

One minor hiccough ( those, ordinary coughs, laughs and sneezes have a new meaning in pain now) was my choice of clothing for the return from Hospital and my new layabout chavy look for lounging about at home. I took the advice and went from a large size in both underpants and tracksuit type trousers to an extra large. Hmmm. Slight mistake. I seem to have the girth of a Hippopotamus now and would suggest a XX large would have been more suitable but I may be at the forefront of a new look in fashion if not in comfort.

Like all of us, its not an experience any of us wanted and the chosen treatment recommended is a difficult decision to accept and take forward. Despite any appearance of bravery or acceptance I was whilst calm and accepting, a nervous scared gibbering wreck inside for what the procedure and its implications were for me. Its certainly not a bed of Roses but....from my current experience it hasnt fulfilled my terror filled thoughts so far.

I am hugely grateful for the tips and support from the members of this forum and hope that my musings of a few days with more to follow are a crumb of comfort to others who join us on a difficult journey. Together we are able and willing to help each other!

Recovering Dick

User
Posted 29 Jul 2015 at 13:13

The dreaded letter arrived today giving me an appointment not to be missed.Saturday the 8th August. I had been told it was to be the 19th and made all my plans around that but the sooner this is over the sooner I can move on. Being totally honest I am somewhat scared now, the reality of the diagnosis, the discussions on treatment, reading of others experiences on here and knowing what is to come in a few days time. I really thought I had got my head around it all but the move forwards has taken the wind out of sails but hopefully that's only a slight mental blip and I will overcome that in a couple of days.

 So.... the checklist is nearly complete with things to get, do and boxes to tick.

 

Baggy underwear                 ✔      Loose jogging bottoms        ✔

Loose Shirt                          ✔      Peppermint water                ✔

Stand for catheter bag         ✔       Various wipes and Dettol      ✔

Pads and pants                   ✔        Mattress cover                    ✔

Prune juice                         ✔        Cranberry Juice                  ✔

Books                                ✔        Tissues                              ✔

PFE  ongoing                      ✔

 

Any omissions and advice from those who have been there before me gratefully received!

 

Wobbly Dick

User
Posted 29 Jul 2015 at 13:31

Hi Dick
Thunderbirds are go ! All looking good. I can't really think of much else but get some dissolvable Co-Codamol and Ibuprofen tabs of your own. They don't always send you home with many. And some Milk of Magnesia. Softer stools are easier to pass. The pain isn't too much mate honestly , but get it covered and don't stop too quick as it catches back up with you. You can have co-codomol ( Paracetamol and Codeine ) and Ibuprofen all together which is about the best pain relief you can get off prescription. Make sure you eat well and milk of magnesia as painkillers can constipate you.
Don't worry , your mind is made and you will be fine. I reached an acceptance after the initial denial and fear. I still have that acceptance 6 weeks post-op and my wife and I are just moving forwards with our new life. All the very best Dick
Chris

User
Posted 29 Jul 2015 at 13:47

Good luck Wobbly Dick!!
I'm sure that you will cope magnificently, once the wobblyness has passed.

Since the decision is made then best to get it over with asap. Hopefully the weather will be conducive to relaxing in the sunshine as you recover.

You'll may want more than one mattress cover (one on, one in the wash)
Maybe a radio as well as books. Easier to lay back and listen to than hold up a book, especially if you follow cricket?

I'll be away for the 8th so will give my best wishes now.

Listen to your body. If you are tired then rest.

All the best
Sandra

We can't control the winds - but we can adjust our sails
User
Posted 29 Jul 2015 at 15:06
Hi fella,

4 months since I was in the very same head space. The reality suddenly hits home and a little fear and doubt and ' why me ' sets in. On the day of the op once the asssessments came and went my good lady said I just became very calm and I told her to go home and I would see her after. A kind of calm acceptance came over me and I put my faith in the professionals. Once the anaesthetic kicked in I remember nothing until I woke up.

Post surgery all the previous advice I concur with especially the constipation issue.

I wish you well on the 8th I will be thinking of you as I watch Bury at Doncaster Rovers.Keep us all posted.

Paul

THE CHILD HAS GROWN, THE DREAM HAS GONE
User
Posted 29 Jul 2015 at 16:09

Hi Dick,

Looking at your list I'd say you pretty much have everything covered......

It may vary with each hospital, but I was discharged with more than adequate pain killers, and also plenty of laxatives ( Senna and Dulcoease )  to take daily after my procedure before I had chance to become constipated.

As others have stated, don't overdo things post op, follow any instructions you have been given by the medics and keep doing your PFE's
( most recommend you wait until your catheter is removed )

Always a bit of a worry going for any surgical procedure, but on 'the day' you will more than likely just 'go with the flow' and not have too much time to think about things.
Put your trust in the medical team that will be looking after you, and it will all be over before you know it.

Wishing you a successful procedure and a good outcome on the 8th

Luther


 

 

 

User
Posted 29 Jul 2015 at 16:19

Dick B...fear not the op, its the recovery that lasts the longest, discomfort more than pain...good luck

User
Posted 29 Jul 2015 at 17:02

and.......a bucket to put under the catheter bag, just in case you forget when going to bed which way the clasps go to empty / close it!

Flexi

ps. you should also ask for a spare pair of bag straps to make life easier when in the shower.

 

 

User
Posted 29 Jul 2015 at 18:48
Best wishes Dick,

Seems you are more than organised although I agree with Chris ask your GP to prescribe Co Codimol as I had to get those for Stuart 3 days after the op. You can also take those along with Ibuprofen, he also enjoyed the peppermint Tea which helped with the gas afterwards. You also need y fronts after the catheter is removed to hold the pads.

Will be thinking of you on the 8th and in the meantime if you have any questions we are all here for you.

Trish x

Edited by member 29 Jul 2015 at 18:49  | Reason: Not specified

User
Posted 30 Jul 2015 at 12:02
Best of luck. The waiting is the worst. Best to think of it as moving on day x
User
Posted 01 Aug 2015 at 20:41
Good luck Dick.

It ain't so bad. The op was a breeze & I quite enjoyed the good sleep.

As others have said, keep mobile, keep the catheter clean & take it easy. The hardest bit for me was having a poo. I ended up with a catheter for 6 weeks following a few post op complications (my urethra healed up & I ended up in A&E).

Relaxing the bowls, induced a bladder spasm every time. I got a bag of puppy pads in the end & placed them around the loo as blood & urine leaked every time.

I made a point of getting up at 7.30, showering, shaving, dressing & avoiding daytime TV. I dreaded the thought of being sat in a chair, stinking of wee with an unshaven face in my PJ's.

The only real pain I had was in my abs for a few days after the op. Avoid sit ups lol. I'm an expert kayaker & fortunate enough to know how to Eskimo roll. This procedure was perfect for getting out of bed rather than sitting up. Ouch.

All the best

Carlos

Life's a Marathon. Run in peace.

User
Posted 07 Aug 2015 at 15:38

Originally Posted by: Online Community Member

Tomorrows the big day. Nerves all gone for now but that may change in the morning. Updates to follow!


Dick

 




Good luck for tomorrow Dick.........You won't have time to think about things too much and it'll all be over before you know it.

You have my best wishes  for a successful procedure and a good outcome.

Luther

User
Posted 07 Aug 2015 at 16:07

Will be thinking of you tomorrow Dick, it all happens pretty quickly once you arrive at hospital and you won't have time to be nervous.

 

Hope it goes well and will be waiting for updates to see how you are.

 

Trish

User
Posted 07 Aug 2015 at 16:28

Hi Dick
You really have done the hardest bit already I promise you. It all happens like clockwork tomorrow. And u wake up with an angel holding your hand. All the very best and you'll get through it
Chris

User
Posted 07 Aug 2015 at 17:12
Good luck Dick, all best wishes

Maureen

"You're braver than you believe, stronger than you seem and smarter than you think." A A Milne
User
Posted 07 Aug 2015 at 17:56
Best wishes for tomorrow and a speedy recovery

Arthur

User
Posted 07 Aug 2015 at 18:54
I wish you all the best for tomorrow. There are many of us that have been where you are now and we are still here to tell our story.

Keep strong! You can do it!

Kindest regards.

User
Posted 07 Aug 2015 at 19:03
All the very best fortomorrow

xx

Mo

User
Posted 13 Aug 2015 at 16:18

I love your post Dick . You're doing so well and very encouraging for others on the conveyor belt ! You're obviously a tough-guy re pain , but I wouldn't want to go on a drinking session with you . You'd be in the loo every time it was your round . I know your type . " Cart-horse " comes to mind .
You reminded me of waking up in hospital one afternoon after a REALLY needed sleep , having had all the tea coffee water etc . I felt a huge pain in my bladder , and when I looked at my 500ml leg bag it was fit to explode. Literally . Teetered to the toilet .
All the best on a continuing great recovery
Chris

User
Posted 13 Aug 2015 at 17:14

Far from being a tough guy, just a common or garden Woos ( if thats how its spelt) Just trying desperately to get through this in the best least painful way and return to my normal world. My nomination for  Britains Worst Patient is pending according to my nursing staff but she is bias.

 

Optimistic Dick

User
Posted 07 Sep 2015 at 14:04

My driving on a bumpy road Dick was very careful , it was you pushing your luck once again !!!!!

You have made an amazing recovery and i am so proud of you

Just remember if i catch you trying to jump over gates and lifting rubbish bins , you will be sent to the naughty boy corner again

xx

Show Most Thanked Posts
User
Posted 29 Jul 2015 at 13:31

Hi Dick
Thunderbirds are go ! All looking good. I can't really think of much else but get some dissolvable Co-Codamol and Ibuprofen tabs of your own. They don't always send you home with many. And some Milk of Magnesia. Softer stools are easier to pass. The pain isn't too much mate honestly , but get it covered and don't stop too quick as it catches back up with you. You can have co-codomol ( Paracetamol and Codeine ) and Ibuprofen all together which is about the best pain relief you can get off prescription. Make sure you eat well and milk of magnesia as painkillers can constipate you.
Don't worry , your mind is made and you will be fine. I reached an acceptance after the initial denial and fear. I still have that acceptance 6 weeks post-op and my wife and I are just moving forwards with our new life. All the very best Dick
Chris

User
Posted 29 Jul 2015 at 13:47

Good luck Wobbly Dick!!
I'm sure that you will cope magnificently, once the wobblyness has passed.

Since the decision is made then best to get it over with asap. Hopefully the weather will be conducive to relaxing in the sunshine as you recover.

You'll may want more than one mattress cover (one on, one in the wash)
Maybe a radio as well as books. Easier to lay back and listen to than hold up a book, especially if you follow cricket?

I'll be away for the 8th so will give my best wishes now.

Listen to your body. If you are tired then rest.

All the best
Sandra

We can't control the winds - but we can adjust our sails
User
Posted 29 Jul 2015 at 15:06
Hi fella,

4 months since I was in the very same head space. The reality suddenly hits home and a little fear and doubt and ' why me ' sets in. On the day of the op once the asssessments came and went my good lady said I just became very calm and I told her to go home and I would see her after. A kind of calm acceptance came over me and I put my faith in the professionals. Once the anaesthetic kicked in I remember nothing until I woke up.

Post surgery all the previous advice I concur with especially the constipation issue.

I wish you well on the 8th I will be thinking of you as I watch Bury at Doncaster Rovers.Keep us all posted.

Paul

THE CHILD HAS GROWN, THE DREAM HAS GONE
User
Posted 29 Jul 2015 at 16:09

Hi Dick,

Looking at your list I'd say you pretty much have everything covered......

It may vary with each hospital, but I was discharged with more than adequate pain killers, and also plenty of laxatives ( Senna and Dulcoease )  to take daily after my procedure before I had chance to become constipated.

As others have stated, don't overdo things post op, follow any instructions you have been given by the medics and keep doing your PFE's
( most recommend you wait until your catheter is removed )

Always a bit of a worry going for any surgical procedure, but on 'the day' you will more than likely just 'go with the flow' and not have too much time to think about things.
Put your trust in the medical team that will be looking after you, and it will all be over before you know it.

Wishing you a successful procedure and a good outcome on the 8th

Luther


 

 

 

User
Posted 29 Jul 2015 at 16:19

Dick B...fear not the op, its the recovery that lasts the longest, discomfort more than pain...good luck

User
Posted 29 Jul 2015 at 16:31

D B

14 months on a lot is just a distant memory , so good luck for the 8th.

Some painkillers can cause constipation, I was told not take them "just in case".

Ask about the PFEs, like L I was told not with the catheter in, CJ was told something different.

Making an assumption here, some latex types gloves for when the OH connects and disconnects the night bag/ extension bag.

Keep mobile after the op but do not over do it, I was a bit slow getting motivated which made the constipation worse, NO straining.

Some ear plugs for the night(s) in hospital, my hospital did provide them.

Some really nice biscuits for in the night.  

Thanks Chris

 

 

User
Posted 29 Jul 2015 at 17:02

and.......a bucket to put under the catheter bag, just in case you forget when going to bed which way the clasps go to empty / close it!

Flexi

ps. you should also ask for a spare pair of bag straps to make life easier when in the shower.

 

 

User
Posted 29 Jul 2015 at 18:48
Best wishes Dick,

Seems you are more than organised although I agree with Chris ask your GP to prescribe Co Codimol as I had to get those for Stuart 3 days after the op. You can also take those along with Ibuprofen, he also enjoyed the peppermint Tea which helped with the gas afterwards. You also need y fronts after the catheter is removed to hold the pads.

Will be thinking of you on the 8th and in the meantime if you have any questions we are all here for you.

Trish x

Edited by member 29 Jul 2015 at 18:49  | Reason: Not specified

User
Posted 29 Jul 2015 at 19:24

You can get generic Co-Codamol at the pharmacy dissolvable without prescription and it costs a lot less . Unless he prescribes 3 months worth ! Its not expensive

User
Posted 30 Jul 2015 at 12:02
Best of luck. The waiting is the worst. Best to think of it as moving on day x
User
Posted 01 Aug 2015 at 20:41
Good luck Dick.

It ain't so bad. The op was a breeze & I quite enjoyed the good sleep.

As others have said, keep mobile, keep the catheter clean & take it easy. The hardest bit for me was having a poo. I ended up with a catheter for 6 weeks following a few post op complications (my urethra healed up & I ended up in A&E).

Relaxing the bowls, induced a bladder spasm every time. I got a bag of puppy pads in the end & placed them around the loo as blood & urine leaked every time.

I made a point of getting up at 7.30, showering, shaving, dressing & avoiding daytime TV. I dreaded the thought of being sat in a chair, stinking of wee with an unshaven face in my PJ's.

The only real pain I had was in my abs for a few days after the op. Avoid sit ups lol. I'm an expert kayaker & fortunate enough to know how to Eskimo roll. This procedure was perfect for getting out of bed rather than sitting up. Ouch.

All the best

Carlos

Life's a Marathon. Run in peace.

User
Posted 07 Aug 2015 at 15:28

Tomorrows the big day. Nerves all gone for now but that may change in the morning. Updates to follow!


Dick

User
Posted 07 Aug 2015 at 15:38

Originally Posted by: Online Community Member

Tomorrows the big day. Nerves all gone for now but that may change in the morning. Updates to follow!


Dick

 




Good luck for tomorrow Dick.........You won't have time to think about things too much and it'll all be over before you know it.

You have my best wishes  for a successful procedure and a good outcome.

Luther

User
Posted 07 Aug 2015 at 16:07

Will be thinking of you tomorrow Dick, it all happens pretty quickly once you arrive at hospital and you won't have time to be nervous.

 

Hope it goes well and will be waiting for updates to see how you are.

 

Trish

User
Posted 07 Aug 2015 at 16:28

Hi Dick
You really have done the hardest bit already I promise you. It all happens like clockwork tomorrow. And u wake up with an angel holding your hand. All the very best and you'll get through it
Chris

User
Posted 07 Aug 2015 at 17:12
Good luck Dick, all best wishes

Maureen

"You're braver than you believe, stronger than you seem and smarter than you think." A A Milne
User
Posted 07 Aug 2015 at 17:56
Best wishes for tomorrow and a speedy recovery

Arthur

User
Posted 07 Aug 2015 at 18:54
I wish you all the best for tomorrow. There are many of us that have been where you are now and we are still here to tell our story.

Keep strong! You can do it!

Kindest regards.

User
Posted 07 Aug 2015 at 19:03
All the very best fortomorrow

xx

Mo

User
Posted 10 Aug 2015 at 11:30

Op went well on Saturday. Granted parole yesterday and gratefully was taken home slowly and carefully. Sore but bearable,painkillers not needed at night only when I move cough or laugh. Internal gas is still bubbling around causing cramping etc but have taken various potions to prompt a swift exit for the gas etc. today I seem to have less energy and more pain than yesterday but one of the Docs warned me the second day was the worse. Onwards and upwards from here on hopefully. Thanks for the kind words and support from you all.

Dick

User
Posted 10 Aug 2015 at 11:42

Pleased to read that all went well Dick.

Take laxatives if they were prescribed, and try to ensure you don't get constipated and strain too much.

You may well feel tired for quite a while... I know I did.... 

Listen to your body and rest when you feel the need.

Best wishes
Luther

User
Posted 10 Aug 2015 at 14:15

Well done Dick
Did an angel hold your hand ?
Best wishes , I know how you're feeling
Chris

User
Posted 10 Aug 2015 at 19:03
Well done Dick!

Wishing you all the best.

Brings back memories.

User
Posted 10 Aug 2015 at 19:10
Very pleased to hear that all went well, as you say onwards and upwards

best wishes

xx

Mo

User
Posted 10 Aug 2015 at 20:55

Wishing you a brilliant recovery! (I'm only 3 months ahead of you still very fresh in my mind)

 

 

User
Posted 13 Aug 2015 at 15:47

Time for an update. The last four days have been a revelation to me in all sorts of ways. I took a great deal of comfort from all the posts on here from those who had gone before... and was somewhat scared by some of the comments from others who had posted of their personal experiences so I thought I would add my own experiences to the melting pot.

I was surprised that the only pain relief prescribed by the Docs was to be 2 Ibuprofen and two paracetamol four times a day so purchased half of Boots annual delivery of Co prodomaol and more Ibuprofen to deal with the anticipated agony. Hmmm. Waste of money as they are all still in their boxes unused and I am now down to half the allowed dose from the docs as the actual pain has been very manageable ...so far. I must have been one of the lucky ones with regard to trapped gas in the shoulders etc as that didnt happen. There was and still is a huge amount of gurgling and rumbling from my tummy which is and has been quite painful but that is getting better. The advice on Dulcoease and Lactulose was heaven sent. I have been taken them since day one and was gratified that the movement prompted by them worked and whilst still not back to "normal" it has not been the excruciating experience I was expecting. Definitely one for those that follow to put top of the list.

The new look plumbing system I left hospital with whilst functional was a huge disappointment in its functionality. Having been advised to try to drink Britain dry to ensure the bladder etc was flushed through and working at its best capacity the capacity of the normal leg bag proved woefully inefficient to perform its function. The drive from my Hospital to the bosom of my home takes about 45 mins normally but my wonderful Angel of Mercy took pity on me and the usual Grand Prix drive along the A30 was reduced to a more sedate, less bumpy afternoon amble with the accompanying tailback probably reaching Cornwall by the time we turned off on to more rural roads. At this point, taking a moment to relax I observed a rather large bulge within my copious new trousers. The smutty minded of you can go and stand in the corner. Hopefully that will follow in time but this bulge was at the side of my leg which on examination revealed the 500ml supplied bag was clearly not suitable for the current output of the new plumbing system. Throwing all the newly gained knowledge of how to empty the said receptacle is a aseptic way with regard to hygiene contamination and sterility, a turn off the main road into a farmers field entrance and a painful exit from the car to a vertical position to allow my medical team, Sarah, to put her skills to the test and release my efforts directly to the ground. I suspect the lesser of two evils as the bag was full to capacity and clearly would have resulted in excess internal pressure for the remainder of our journey home. I apologise to the unknown farmer whose grass may have been killed for evermore but my need exceeded an area of grass in the scale of things.My level headed nursing team (bless her cotton socks) calculated that on my current fluid intake my expulsions would also exceed the capacity of the larger super de luxe night time receptacle which would also reach capacity during my newly extended sleep cycle. With true devotion to her patient, setting her alarm for the middle of the night did reveal the night bag was full and needed changing which was accomplished almost without waking me. Another lesson learnt.

I have been exercising as recommended with slow gentle walks of a few yards, a few times a day and have built that up to three wanders of about a 100yds a day. The initial efforts could be described as the stagger of a drunken docker on a Saturday night have now been replaced by the slow but purposeful wander of an aged gentleman on a mission. I am now able to walk standing rather than slumped over and lift my feet rather than shuffle. All good things. However, my capability for sleep and laying flat on a bed semi comatose for hours has come as a bit of a shock. Perhaps my expectations of my resilience and fortitude were misplaced. I seem to be able to "go for it" in short bursts of a couple of hours followed by a similar period of rest. Finding the happy medium between the two whilst still elusive will follow in time.

One minor hiccough ( those, ordinary coughs, laughs and sneezes have a new meaning in pain now) was my choice of clothing for the return from Hospital and my new layabout chavy look for lounging about at home. I took the advice and went from a large size in both underpants and tracksuit type trousers to an extra large. Hmmm. Slight mistake. I seem to have the girth of a Hippopotamus now and would suggest a XX large would have been more suitable but I may be at the forefront of a new look in fashion if not in comfort.

Like all of us, its not an experience any of us wanted and the chosen treatment recommended is a difficult decision to accept and take forward. Despite any appearance of bravery or acceptance I was whilst calm and accepting, a nervous scared gibbering wreck inside for what the procedure and its implications were for me. Its certainly not a bed of Roses but....from my current experience it hasnt fulfilled my terror filled thoughts so far.

I am hugely grateful for the tips and support from the members of this forum and hope that my musings of a few days with more to follow are a crumb of comfort to others who join us on a difficult journey. Together we are able and willing to help each other!

Recovering Dick

User
Posted 13 Aug 2015 at 16:18

I love your post Dick . You're doing so well and very encouraging for others on the conveyor belt ! You're obviously a tough-guy re pain , but I wouldn't want to go on a drinking session with you . You'd be in the loo every time it was your round . I know your type . " Cart-horse " comes to mind .
You reminded me of waking up in hospital one afternoon after a REALLY needed sleep , having had all the tea coffee water etc . I felt a huge pain in my bladder , and when I looked at my 500ml leg bag it was fit to explode. Literally . Teetered to the toilet .
All the best on a continuing great recovery
Chris

User
Posted 13 Aug 2015 at 16:20

Good afternoon recovering Dick.
It's great to read your positive (and sorry - but very amusing post)
I am so pleased that nurse Sarah has her wits about her and is able to minister as an angel should.
Long may it continue (the ministering that is - not the discomfort naturally)

Nice to hear from recovering Dick rather than wobbly Dick.

Best wishes to both of you

Edited by member 13 Aug 2015 at 18:44  | Reason: Not specified

We can't control the winds - but we can adjust our sails
User
Posted 13 Aug 2015 at 16:23

Good to read Dick... I'm pleased things are going ok for you.

I had a 1 1/2 to 2 hour journey by taxi home when I was discharged from hospital....

 I had to ask the taxi driver to stop on the hard shoulder of the M5  motorway so that I could empty my leg bag.

We then got held up in traffic .....and to cap it all he missed the junction exit! .. Nightmare journey!...far worse than the op itself.

Best wishes
Luther

User
Posted 13 Aug 2015 at 17:14

Far from being a tough guy, just a common or garden Woos ( if thats how its spelt) Just trying desperately to get through this in the best least painful way and return to my normal world. My nomination for  Britains Worst Patient is pending according to my nursing staff but she is bias.

 

Optimistic Dick

User
Posted 13 Aug 2015 at 17:17
Thanks for the update Dick.

Wearing the catheter is quite a challenge but it will be out soon.

I must confess I had to stand in a corner for a brief moment whilst reading your post lol! Shame on me and my cheeky sense of humour!

Wishing you all the best with your recovery.

User
Posted 13 Aug 2015 at 17:24
Dick

Brilliant post and a welcome bit of light relief.

Thanks chris

User
Posted 13 Aug 2015 at 18:41
Great post Dick so glad you are doing so well!!
User
Posted 13 Aug 2015 at 20:04
Dick

what a wonderful post, like Sandra it did make me chuckle at times.

Happy all is going well for you so far, maybe you should just leave your overnight bag in a bucket with the vent open. That way your lovely wife does not need to set an alarm. Surely a gallon bucket would do the trick?

best wishes

xx

Mo

User
Posted 13 Aug 2015 at 22:31

Wish you a full and uneventful recovery, Dick!

Love your yellow lab. What's his/her name?

Jacey

User
Posted 13 Aug 2015 at 23:13

Love the sense of humour .... keep it up!

dl

User
Posted 13 Aug 2015 at 23:27
So pleased things are going well. Take it slowly and listen to your body.

Paul

THE CHILD HAS GROWN, THE DREAM HAS GONE
User
Posted 14 Aug 2015 at 17:09

A good read Dick! Wishing you all the very best!

User
Posted 17 Aug 2015 at 18:20

Now Children, are you sitting comfortably? Then I will begin….. (for those of us of a certain age)

I want to begin with an apology and a quotation. I am sorry but..

“People who have time on their hands will inevitably waste the time of people who have work to do”: Thomas Sowell ,American Social Theorist.

 

So…. Sunday Morning.

“Woe is  me for my hurt! My wound is grievous : But I said , Truly this is a grief, and I must bear  it”

Jeremiah Chapter 10 Vs 19

Hmmm . My awakening last Sunday morning was accompanied by the lights going on, two super efficient wonderful Angels of Mercy breezing onto the ward to view their contestants for the day for handover. Whilst they were full of the joys of spring, I lay there in abject terror and confusion at my predicament. A degree of pain and discomfort accompanied by the realization that the Hippopotabelly in front of me was mine, the newly acquired plumbing system was here to stay and my quite comfortable life had been considerably changed for the worse by a selfish inconsiderate bunch of cells who had taken it upon themselves to invade my body and set up their own little private Carcinoma with absolutely no thought for the impact it may have on the rest of me. Whilst for a mere smidgeon of a moment, I recalled the events of the previous  day which were fortunately both obscured by some strange medications administered by the man who made me sleep so soundly, the passage of a few hours and the knowledge that my Knight in shining Armour had put paid to the intentions of those cells behaving badly. Right. Whats to be done now. My determination to put any thought of feeling sorry for myself or allowing the gibbering wreck to surface was foremost and the weeks to come would be dealt with using the Batniec method. Best available technique not involving excessive  cost. The cost in this case would be pain, discomfort, embarrassment and frustration. My technique which has definitely worked has been to do as I am told, rest, exercise gently and don’t upset the medical staff by doing too much.  Pfft. No way was that going to happen so the week began and had to be dealt with.

 

I have already spoken of my initial adventures and an update is clearly due. After checking my diary to find a spare moment to squeeze it into I find I have absolutely nothing else to do apart from recover hence I find myself today recalling the highs and lows of the last seven days. We will skip the first few as they are clearly inconsequential to my state of today. Painfree, energetic,happy and up for whatever comes next. During the week I realized I had acquired two new members of my household unintentionally. The first appears to be leaving though and I will be honest in not being that sorry. A Hippopotabelly  moved in last Saturday and whilst unwelcome has gradually reduced his presence and appears to be departing at a rapid rate now. His first appearance did make me wonder if my Knight in Shining Armour had indeed removed something and not put something else inside me instead. He managed to increase my waspish 36 inch waist by 10inches which is quite impressive given the manner of his arrival and no he is not full of gas. He came with a built in camouflage of some pink bits, some blue, some yellow and green and an amazing pattern of what appeared to be six holes which when poked does produce a reaction from the rest of me. That accompanied by his ability to make me flinch if I moved too much or rapidly did rather sully his occupation of my tummy but over the passage of the last few days we have reached an understanding. If I stay fairly quiet, take gentle exercise and do as I am told by the medical staff, he will reduce his efforts to hurt me, reduce in size and start to lose his colour scheme. Sorted! Having taken good care of him for the last week he has now allowed me to become reacquainted with some old friends of mine at the bottom of my legs. I can now see them over the hippo, I can now actually physically cover them with socks and even shoes. A note of caution here. When tying shoe laces a risk assessment and precautionary measures should be taken. Pull too tight and he reminds me that such activities tend to wake him up and grumble. A lesson learned. Whilst discussing Risk Assessments one other minor infraction occurred yesterday. In an effort to preserve peace and tranquility, having placed milk in cats bowl, one cat slurping, I inadvertently scooped his twin up to deposit him on their feeding area out of the reach of the marauding dogs who would steal any form of food from the cats in the blink of an eye. Sadly the blink of my eyes was equally swift when I realized that the weight of a fat feline exceeded the prescribed limit of “nothing heavier than a kettle” which resulted in a somewhat surprised fat cat being unceremoniously dropped from a not insignificant height whilst still airborn. No problem…except medical staff saw said infraction. Hard to believe a man of my age can be made to feel like a naughty child again with a withering look and a scalding  tongue.Bother!  

The other addition to the household is similar to a new puppy. Those of us with a liking for dogs will know a new puppy needs to be watched very carefully and allowed to wee frequently from an early age. My new puppy appears to be attached to my leg and also needs to be allowed to wee frequently. When I seem unable to move my leg easily during the day it appears to be linked to his size and request for my attention. Exactly the same as a puppy, he has a short waking time and once allowed to vent he returns to his sleeping peacefully position staying very closely to heel. The only respite I seem to get is when the medical staff introduces him to his big brother at night and then take care of the pair of them through the night whilst I attempt to sleep through whatever necessitates a 2.00 am intrusion into my bedroom. There does seem to be strange friendship between the medical staff and the puppy though which I am slowly getting my head around. I drink what I am given, the puppy gets fat, the medical staff examine the puppy and smile. I drink less, the puppy stays slim, the medical staff scowl and  I get into trouble. It seems the medical staff like the puppy fat and certain colours. Very strange. I am however assured that the puppy will be gone and these nocturnal intrusions should cease after my impending visit to the plumbing department tomorrow.

The rest of me seems to be working increasingly better day by day. I found a new toy yesterday for my smart phone ( considerably smarter than me actually). It’s a pedometer thingy which informed me yesterday that all my pottering about and small real dog walks accumulated to .9 of a mile. It was a very busy day and due to work commitments prevented my morning schnoozle and a delayed afternoon one resulting in the hippopotabelly waking up a little in the evening and an early bedtime. Oops.

I have to add my thanks to my Knight in Shining Armour who I believe had some small part to play in the removal of my small problem. Once I had decided he had to go, like Lady Macbeth with “Out damned spot! Out I say! My Knight obliged together with his knife and fork, R2D2, C3PO and his mate Da Vinci who collectively vanquished the foe splendidly and rather whimsically brought to mind Lewis Carroll.

 

 

“One,Two!One, Two! And through and through

The Vorpal blade went snicker –snack!

He left it dead, and with its head

He went galumping back.

 

"And hast thou slain the Jabberwock?

Come to my arms you shining Knight

O Frabjous Day! Callooh !Callay!

Dick Chortled in his joy!

 

(Apologies for Poetic license)

 

My Knight’s work has been backed up by the Nurses at the Hospital and my own medical staff (except for her getting at me all the time) who has been the personification of perfection .All in all not a bad week at all and far better than I could possibly have imagined.  I think I had better go and lie down in a darkened room!

 

N.B.

I was to have posted this on Sunday however….perhaps a bit too energetic on Saturday. Crashed and burned early evening. Bed, pain killers and an enormous ticking off from the medical staff who took Saturday off to visit some friends. In naughty boys corner for the foreseeable future.

 

A Rather Sorry Dick

 

 

User
Posted 17 Aug 2015 at 20:24

Brilliant....you do have a way with words...

User
Posted 17 Aug 2015 at 22:33

Oh Dick, quick witted Dick, how thou doth amuse the throng with thy whimsy !!

Beware the angel with her black looks which bode thee no good. Beware I say, and do what e'r she tells, I foresee she has but your best interests at heart and 'twould do no good to thwart her lest she keep you in the naughty corner for ever.

By the way, how many lives does the cat have left?
And the puppy, is it on the way to being house trained?

Keep it up Q.W. Dick. It's good to see that you still have a sense of humour, especially as wot you 'as writ wos done on Sunday.

I like Q.W. Dick better than Wobbly Dick !!! but he's gone forever hasn't he.

 

http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

Edited by member 17 Aug 2015 at 22:35  | Reason: Not specified

We can't control the winds - but we can adjust our sails
User
Posted 19 Aug 2015 at 17:54

 

Another fabulous post Dick. I only hope that my sense of humour stays with me as much as yours obviously has. As you know, my appointment with DaVinci follows yours in a few weeks. Reading your posts have been a great inspiration and I'll continue to follow your recovery and wish you all the very best with it.Keep up the good work and keep us all smiling.

Cobbles 

User
Posted 20 Aug 2015 at 19:27

Hope your recovery continues smoothly

User
Posted 07 Sep 2015 at 11:24

One month on post surgery. How time flies. Well I am fully recovered, no pain, no incontinence and achieve perfect activity from my nether regions. And fairies and Father Christmas are real. The reality is I think I am getting on pretty well. I don't have any pain other than a slight discomfort from my right hand side where I believe the inflation thingy was used and that usually only happens as a reminder that I should still be taking things very easy still. The incontinence issue is decreasing on a daily basis and is nothing like I imagined it would be.

It is a sort of Taboo subject to discuss but for the benefit of those following on I will break that taboo and tell it like it is. After the removal of the catheter I was expecting to be "dribbling" but fortunately that wasn't the case and other than a brief stop in the previous farmers field on the way home all seemed ok. With frequent trips to the loo at the slightest urge, I was able to confine leakage to a tiny amount, a smug feeling that this was a piece of cake and I was going to breeze through it. Nighttime was definitely easier than the day I suspect due to inactivity which was a clue I failed to pick up on straight away. Due to my enforced driving ban for a fortnight, my medical staff undertook the driving and I gratefully occupied the passenger seat for a change. Whilst leaving to take the dogs out for a walk to the woods, I remarked that luckily there are usually no people about which would enable me to nip behind a tree to should the urge take with relative ease. Oh Woe was me! I should have recognised that tiny urge and dealt with it before leaving home. The last 100yds to the woods are along a rather bumpy, unmade road which was my downfall. My body was getting reasonably accustomed to my gentle shuffling about at home but gave up the ghost at being shaken like a ball bearing on a spin dryer and my first real "Oops" moment overtook me with unexpected results. There were two very important lessons to be learnt from this.Number one, never pass up the opportunity to use the available facilities before leaving home, passing one in the street,shop or wherever they happen to be even if you dont think you "need" to go. The second I will pass over very quickly due to my own ineptitude. I have an emergency kit to take with me containing all that is required to deal with an "oops". Its absolutely no good sitting at home in the kitchen when its really needed. Dont leave home without it!

There is also various techniques which have become second nature now after learning what provokes an Oops. One that took a while to get my head around was getting in and out of the car. The normal method of opening the door and depositing my rear onto the seat with legs akimbo doesnt work no matter how careful and slowly it is accomplished. I have now resorted to a very ladylike lowering my self onto the seat, legs firmly together and then pivoting onto the seat whilst still keeping the legs together. Whilst no doubt very elegant for the fairer sex, it is rather incongruous for a man but does seem to avoid that embarrassing feeling. I seem to be having less and less of these as time goes by which is a good sign of better times to come and there has not been any occasion where I have soaked the protective pad, something I was actually expecting.

Coughs and sneezes spread diseases is not quite what I experienced. Any violent shaking or movement do provoke the feeling of an impending Oops and an amount of pain to remind you that all is still not mended below but the use of the Pelvic Floor exercise as the event happens have brought a big level of control over this. A big thank you to whoever told me how to cough and sneeze. In normal circumstances a sneeze is an Atishoo! I was told to avoid this as it results in a vast degree of pain especially in the early stages of recovery, stuff convention and just go for the Atish. Cough and sneeze mouth fully open, preferably in the standing position with no attempt to contain the sudden expulsion of air. Works a treat with relatively no discomfort. Maybe not recommended for wandering around the shops but needs must.

A embarrassing confession on the use of and my expertise with PFE. I had done as suggested and practised these at home prior to the op and was fairly confident I had it all in hand and my recovery would be easier......until I had the catheter removed and the nurse asked me to demonstrate my prowess. Hmmm. All my puffing and grunting exercises whilst making a fabulous spectacle of my myself were to no avail. I had not been doing them correctly and once shown by an expert, not only were they far easier but amazingly worked a treat. If the opportunity arises to be "checked" by an expert take it. Better still ask to be shown or taken through them by those that really know how its done. Reading the words and doing it seem to be two different things.

A practical offer of help to any that may need them. I have about 50 night bags and some day bags, leg straps and various other paraphernalia for anybody just post op who may want them. They were donated to me and as I only had the catheter for about a week so are now available to pass on for the cost of the postage being donated to PCA. Any takers?

So the next step for me is at the beginning of October when I return to see the Surgeon and get my results. Currently I am delighted to be recovering well, taking it easy and enjoying the simple things in life. The satisfaction of being able to vigorously wash my hair in the shower, walk up and down stairs without holding on, bend over without it being an exercise in pain limitation all contribute to moving on. The medical staff has resigned from her post and has returned to being a normal woman to share the normal things in life without having to look after my welfare on an hourly basis. I cant express my gratitude to her enough for all she did for me in my hour of need. I am even starting to think about her as an object of desire again...... I must talk to the Doctor about ED soon!


Delighted to be getting better Dick

User
Posted 07 Sep 2015 at 11:44

Dick
That's fantastic friend . Im so very pleased for you . I love reading your posts . It sounds like your incontinence will recover amazingly quite quickly. Best wishes on further recovery
Chris

User
Posted 07 Sep 2015 at 11:58
Nice post Dick, it has cheered me up and brought a bit of a smile to my face.

XX

Mo

User
Posted 07 Sep 2015 at 12:33

Another great post Dick and so pleased that things have gone so well.

My DaVinci op is a week tomorrow, so reading your story instils me with a bit more confidence in the hope mine goes as well, but of course I realise that we're all different and I musn't expect too much . However fingers and everything else are crossed !

I hope your recovery continues well and I look forward to your next post.

All the very best

Cobbles

User
Posted 07 Sep 2015 at 13:00

You've given me another chuckle Dick.

I was thinking to myself as I worked my way down your post, that you'd got a good 'un there in that medical staff person and you should hang on to her.!
However, she's done such a cracking job she's feels confident enough to resign. That means you must have been a good patient so well done you.

Keep up the good work. At least you know that should you need her, your medical staff is on hand.

Good luck for the future. Keep the smiles coming

We can't control the winds - but we can adjust our sails
User
Posted 07 Sep 2015 at 13:35

Hi Dick,

 

So pleased that the recovery is going well and like a few others have said your posts do make me smile!

 

P.S. Thanks for the donation!

 

Trish

 
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