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User

Posted 15 Nov 2024 at 20:13

Not what you wanted.. good news is it's taken over 10 years to get back to what is was when you started AND apart from a sniff of bicalutimide it's still HT naive.

Dr Kwon might suggest giving it the works (chemo + 2nd line HT) and then aim for intermittent HT. Will be interesting to see what the scan finds and what your onco suggests.

User

Posted 21 Nov 2024 at 20:57

Hi guys, thanks for your replies and support. Saw the oncologist this afternoon, he is arranging another PSMA scan followed by another appointment with him. Should get the results just before Xmas, I got my original diagnosis just before Xmas 11 years ago

It was quite a bizarre meeting we had a bit of a laugh and joke about things. I imagine giving people bad news must put a strain on the doctors and nurses.

Thanks Chris

User

Posted 22 Nov 2024 at 00:01

Sorry to see this Chris, I’m sure they will be able to get a plan in place for you. You’ve done amazing all these years and I’m sure that will continue 👍 hope you can get your scan soon x

User

Posted 18 Dec 2024 at 19:28

Well another cancerversary today, 11 years since I was told "you have prostate cancer". Tomorrow I see the oncologist following last weeks PSMA scan. Either way it will be more treatment on offer, hoping it's more SABR treatment but suspect it may be HT on offer. Will update tomorrow.

Thanks Chris

User

Posted 18 Dec 2024 at 19:33

Good luck chris, hope things are positive tomorrow.

Let's keep on marking these cancerversaries.

Best wishes, mick.

User

Posted 18 Dec 2024 at 19:48

Hope everything goes the best way , Chris.

Continúe to stay strong.

User

Posted 18 Dec 2024 at 21:40

Another milestone Chris.

Stay positive, you're a mine of helpful information on here, and long may it continue.

I hope it all goes well tomorrow.

Cheers,

Kev.

Edited by member 18 Dec 2024 at 21:43 | Reason: Typo

User

Posted 18 Dec 2024 at 22:04

Good luck!

User

Posted 18 Dec 2024 at 22:13

Good luck Chris, hope it's what you prefer

Cheers
Bill

User

Posted 19 Dec 2024 at 18:08

I did think of starting a new thread, with a new title. Looks like I have moved into another phase. The results of the PSMA scan show spread to a number of lymph nodes right up to the neck. SABR is not on offer. An "off piste" choice is lutetium 177, but that would require approval from a specialist and my insurance company.

Aabiraterone and prednisone are the other option. I have said I need time to think, so seeing the oncologist in January.

Thanks Chris

User

Posted 19 Dec 2024 at 20:33

Sorry Chris, not what you wanted to hear.

Lutetium 177 is an interesting option. Historically it's been used later on, but there's always been much speculation that it might work significantly better if done earlier. There might even have been some trials on this.

User

Posted 19 Dec 2024 at 21:38

Andy, thanks, the oncologist did stress "if" approved it was not the usual route to take. I always thought it was a later resort treatment. Perhaps like some treatments, a stitch in time saves nine.

Thanks Chris

User

Posted 20 Dec 2024 at 04:53

Hi Chris.

I'm so sorry that the results weren't what you wanted. You certainly deserve a change of luck. I can only hope that what ever treatment you or they decide is effective.

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