Franci , I was getting a bit frustrated with the private care setup and lack of a support network. The oncologist was fine, apart his attitude to me wanting PSA tests at what I consider relevant events. I wanted a test before I started the injections but it wasn't forthcoming coming so I got around it a different way. As it turned out my PSA had gone from 6.7 to 13.4. Not sure all my messages were getting through.
Combined with my GP throwing a wobbly at the consultants sarcastic letter and my GP saying any cancer issues were not their problem while I was under private care,I asked for a referral back on the NHS, even then there was an issue with the private /NHS secretary.
So I saw the new but very wise and experienced oncologist yesterday. As I half expected Abiraterone is not available to me on the NHS, I don't quite meet the criteria. I asked what was better Abiraterone privately or apalutamide on the NHS, he said there was little to choose between them in my situation.
There is a big difference between private and NHS as regards appointments and setting, but the NHS does offer a better support network. The downside of the NHS is no free tea and biscuits no free parking and a longer wait in the waiting room. The only downside of yesterday we got a £25 parking notice, long story and we are appealing.
Thanks Chris