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User
Posted 02 Mar 2021 at 19:16
I suppose the antibiotics could have suppressed it a bit?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 02 Mar 2021 at 21:13

Hi Chris,


I don't know how doubling rate works at different levels but over the last few years it looks like your psa is doubling in around a year.  So in a  year it could be 1.2 which doesn't sound big.   I also don't know what other treatments they might offer.  A doubling time of a year isn't normally classed as high as far as I know as it will take 5 years to reach 20 which isn't too high relative to some.  So hope it works out.  All the best Peter

User
Posted 03 Mar 2021 at 11:12
Still hanging in there Chris and still quite some time away from further treatment. Gave my blood today. Doesn’t get any easier does it

Bri
User
Posted 03 Mar 2021 at 11:53
PSMA scan an option Chris?
User
Posted 03 Mar 2021 at 21:04

Thanks Guys 


Lyn, looking back at my results a previous reading stayed at exactly the same level as the one before, again after a course of antibiotics. 


Peter , I expect HT would be the next option unless a scan showed a definite source. I have seen guys getting a lymph node treated because a scan picked up a suspected source 


Brian, fortunately I don't seem to get PSA anxiety any more, it is what it is, I would just love to know what is going off inside.


Francij1,  Onco nurse ran through detection figures for scans at lowish PSA levels and I don't think I am there yet.


The plan is to keep at 3 monthly PSA testing. 


Thanks Chris

User
Posted 03 Mar 2021 at 22:18
Hey mate I get where you’re at regarding not bothering about psa anxiety. Mine is at 990 and a year since testing , and with 3 palliative courses of RT to spine and ribs to boot ! As you say it is what it is. People have died with a psa of 10 whereas I’m still kicking mostly ! But don’t panic ok. Make sure that psa is at a level where the scan will be fruitful and not wasted.
For what it’s worth I’ve not posted for a month and due HT jab this Friday ( the second one ). Yes a drop in libido but not gone. No function gone. Just the bl-** dy night sweats. Zero during the day. Only at going to bed and then waking. No bother really. Just like being in a hot country at present. I had no other choice left on the table and had to make the decision , but I guess I made it at last. My councillor said I wasn’t scared enough of the cancer because I felt so well all these years , but in the end I knew my back and breathing weren’t good and went for it. Day by day and week by week mate.
All my best
Chris
User
Posted 04 Mar 2021 at 00:04
Stan died with a PSA of 1.2, CJ 😥
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 28 Apr 2021 at 07:51

Seven years ago today I had my prostate removed, I had hoped that it would eradicate my cancer. 12 visits to theatre to sort a stricture and remove three hem o lock clips  and I finished up with a catheter for life. 4 years ago we had another bite at the cherry and the RT destroyed my bladder. I still have cancer, but still here still moaning. If only I had a pound for every time someone says "but you do look well". 😀


As always, thank you for all your support and advice.


Thanks Chris

User
Posted 28 Apr 2021 at 08:13

That’s all I get all the time Chris — ‘ you look so well , !
I guess we should be grateful for small mercies. Congratulations on 7 yrs. My six yrs is June 15th.
Just goes to show that mostly this gets you in the end one way or another.
I can honestly say I don’t know how you’ve coped. Things have been so awful for you. I think I’d have caved in by now with all your issues. Hats off to you and for your selfless councel for others. Stay strong mate

Edited by moderator 28 Apr 2021 at 19:49  | Reason: Not specified

User
Posted 28 Apr 2021 at 09:56

It’s great to still have you here Chris. 

Ido4

User
Posted 28 Apr 2021 at 15:42
Happy anniversary! Wishing you many more!
User
Posted 29 Apr 2021 at 18:21
Many more years yet Chris 👍
User
Posted 01 May 2021 at 12:41

Originally Posted by: Online Community Member


 Hats off to you and for your selfless councel for others. Stay strong mate



Here here Chris. Thanks for all the advice re strictures and Catheterising


Happy anniversary and here's to many more


Cheers


Bill


 


 


 


 


 


 

User
Posted 06 May 2021 at 19:50

Eventually I got accepted onto the Rhovac vaccine trial. I had my first injection this afternoon but being a double blind trial I don't know if I had the vaccine or just water.


Thanks Chris

User
Posted 07 May 2021 at 22:05

Chris remind me again what the trial is and what the eligibility requirements are


cheers


Bri 

User
Posted 07 May 2021 at 22:36

Bri 


Link to trial details below. In simple terms the aim is to prevent the spread of cancer following BCR.


It is a double blind trial which means you may get the medication/vaccine or water.


https://clinicaltrials.gov/ct2/show/NCT04114825


Although some of the criteria is quite strict, there are some items that are not quite as strict.


Thanks Chris


 


 


 

User
Posted 08 May 2021 at 14:21

I wouldn’t have qualified for this trial as my PSADT was less than 3 months at BCR, wonder why they have excluded that. 

Ido4

User
Posted 08 May 2021 at 22:01

Ido4 


Just my thoughts, it is a double blind trial so some guys will not be getting active treatment. During the trial if the PSA rise gives cause for concern then participants are removed from the trial and revert back to appropriate treatment. 


Only guessing.


Thanks Chris


 

User
Posted 10 May 2021 at 12:32
Cheers Chris. I wouldn’t be eligible either as my BR was 5 years after treatment
User
Posted 06 Oct 2021 at 17:32

Hmm 


Think I must be on the placebo, another rise from 0.73 to 0.86 in 56 days. I do have UTI and antibiotics.


Thanks Chris


 

 
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