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User
Posted 07 Oct 2021 at 08:47
That's a shame Chris, is there any change in the velocity? Your past figures are a bit all over the place!

Have you thought about PSMA scans? If you have a recurrence in the prostate bed you could perhaps have local ablative treatment?

Did they treat your pelvic lymph nodes with the SRT? Maybe scope for further RT there too?
User
Posted 07 Oct 2021 at 19:03

Franci 


Thanks for the reply.


Apart from a pre surgery rise, I think my velocity is at its highest yet. I do get ct  and bone scans next month as part of the trial but they like to use the same time of scan as previously used. 


Pmsa or Pet scans are an option, certainty when the PSA rises a little bit more.


I don't think lymph nodes were done but I will check, in view of my history I certainly want avoid any more RT. Will ask about the ablative treatment when I see the onco next month.


Thanks Chris


 

User
Posted 08 Oct 2021 at 12:58

Sorry to read this Chris. I guess you’ll know more after the next scans.

Ido4

User
Posted 01 Dec 2021 at 15:37

As I am under oncology and also on a trial I normally get PSA under the direction of oncology.


Out of the blue my GP sent me a PSA bloods form. I duly had the blood test and got a text message this morning saying " The result of you recent test is normal and no further action is required at this stage.".


The psa was 0.99. I have no prostate and had salvage RT four years ago. Fortunately I know what is happening and my situation. 


Another error by a GP perhaps ?


Thanks Chris


 

User
Posted 01 Dec 2021 at 16:06
I had the same issue, total incompetence!
User
Posted 01 Dec 2021 at 16:44

Just had the following reply from my GP surgery following a request to explain normal 


"Hi Chris, 


 


This is in regard to your recent PSA - Prostate Specific Antigen level. 


 


Your result was 0.99 and any readings under 5 are considered a normal reading. 


 


I hope this helps. 


 


Many thanks, "


 


Thanks Chris

User
Posted 01 Dec 2021 at 18:45
Dear God - what hope is there?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 01 Dec 2021 at 21:38

I had the same experience when PSA rose in 2016. They just seem to look at your age and PSA figure without allowing for your medical,history. I think it’s shocking on a few fronts. 

Edited by member 01 Dec 2021 at 21:39  | Reason: Not specified

Ido4

User
Posted 01 Dec 2021 at 22:44

I've seen two cases of this just recently.


One guy was several years after RP, and proudly saying his PSA was 0.7 (and 0.4 the year before) and his GP says it's fine as it's <3.0


Another where a guy has had a RP and his PSA is going 0.14, 0.16, 0.18, and his GP says nothing to worry about, again because it's a long way below 3.


I was in a meeting with a urology consultant and several patients last week, and one of my comments was most prostate cancer patients who are more than a month into their diagnosis will know more about prostate cancer than their GP. The consultant laughed and said how true.

User
Posted 05 Dec 2021 at 09:36
I had a similar situation with the nurse at my Practice!

He kept telling me it was a pass i.e below 3.0!
Initially wouldn't give me the actual number over the phone. When I pressed him, he eventually did give me the number, except he had no idea what the "LESS THAN" symbol was!! Absolutely pathetic, it's really worrying, what do they teach at school and nursing training!!

I did take it up with my Doctor.
User
Posted 06 Dec 2021 at 22:48
I’ve shared my experience before. A couple of years ago I was at the GP reception asking for a blood form. The nurse in the background said I did t need a PSA test as I didn’t have a prostate
Beware….they walk amongst us
User
Posted 18 Dec 2021 at 13:13

Eight years ago today I got an unwanted early Christmas present, " you have prostate cancer".


Had surgery , had SRT, lost lots of things, gained a few things.


Still here, still have cancer but I can still smile.


Merry Christmas to you all.


Thanks Chris

User
Posted 18 Dec 2021 at 16:05

Merry Christmas Chris, hope you are well and have a nice time over the festive period.

Ido4

User
Posted 19 Dec 2021 at 01:22
Merry Xmas Chris.. whats the story behind the collie pup avatar?
User
Posted 19 Dec 2021 at 01:41

It was 12 years on Thursday since John was diagnosed.


Merry Christmas to you CC - let's hope that 2022 is kind to us all x

Edited by member 19 Dec 2021 at 01:45  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 19 Dec 2021 at 07:50

Francij1 


That is Billy our Border Collie. We told our daughter we were going for a Xmas tree, when we got to the farm there were around six puppies and she picked him. He is predominantly white rather than the normal predominantly black. Now 12 years old, he helps keeps me mobile. 


Thanks Chris


 


 

User
Posted 19 Dec 2021 at 09:45
Where does the time go!
User
Posted 28 Apr 2022 at 08:04

 Today is the 8th anniversary of my prostate removal and five years from my salvage RT. Still here still have cancer.


 

Thanks Chris 
User
Posted 28 Apr 2022 at 14:52
I’m still glad you’re here mate , but sad we both still have cancer. I’m 7 yrs in June !! Stay well
User
Posted 28 Apr 2022 at 15:12

Best wishes to you both keep moving forward you are both an inspiration to all off us with this terrible desease  👍

 
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