That was not in the plan.

User

Posted 30 May 2022 at 08:44

Any news on the PSMA scan yet?

User

Posted 30 May 2022 at 15:48

Francij, I will be chasing that this morning when I speak to the trials nurse,we have health insurance so will be talking to them today as well.

Added.

PSMA will be around the end of June , if I go down the private route it would be at the same facility but slightly later. There is a backlog due to production problems with the injection material.

Thanks Chris

User

Posted 30 May 2022 at 16:45

This video on Oligometastasis has been shown on this forum several times previously but may be of interst to newer members. The 68 gallium PSMA scan is now generally regarded as superior to the Choline one referred to here but otherwise this is very interesting when past the preliminaries. https://www.youtube.com/watch?v=60P98QLWf70

Edited by member 30 May 2022 at 21:27 | Reason: to highlight link

Barry

User

Posted 30 May 2022 at 21:22

Barry, thanks for that, well worth the watch, the follow on video is quite good and explains the different tracers?

Thanks Chris

User

Posted 31 May 2022 at 10:52

Originally Posted by: Online Community Member

The consultant radiologist told me recently that the threshold for a PSMA scan had been dropped from 0.5 to 0.3 due to better results being obtained, i assume that applied to our hospital.

Thanks Chris

Hi Chris

that is news as I've been told they wouldnt consider a PMSA before the PSA hit at least 1. What Trust are you under as i will mention this to my oncologist next month

Hope you are well

Bri

User

Posted 31 May 2022 at 11:22

Hospitals can make their judgements at the point of testing and could be influenced by how individuals present. There is going to be a better chance of finding tumours as PSA increases. My RT treating hospital in Heidelberg, who in conjunction with the dkfz initiated the 68 Gallium PSMA scan, suggested 0.70 to me but we know there have been cases where tumours have been detected below this, so it seems an abitrary figure. It is quite an expensive scan and not widely available, so if paid for privately you could likely have it when PSA was lower, whereas if provided on the NHS some hospitals/consultants may well set the bar higher.

Barry

User

Posted 31 May 2022 at 11:43

That's the case of OH. Not even the insurance did pay for the PSMA, but we did it out of pocket. At 0.3 PSA two spots were clearly shown; therefore he is now on IMRT.

Apparently it's the contrast injection that makes it so expensive. In addition, the product isn't always available for delivery. OH waited a few days until he was called.

User

Posted 31 May 2022 at 13:20

Bri, under Nottinghamshire, they do have their own scanner at our Hospital. My my Onco was talking 2, 4 or even 8 before a scan.I had already decided to ask for a change of oncologist. As it happened his registrar saw me and they had agreed to do the scan at 1.4.

Hope you are keeping well.

Thanks Chris

User

Posted 31 May 2022 at 22:11

Originally Posted by: Online Community Member

Barry how do you arrange a private scan in Heidelberg a d have you any idea of a ball park figure cost.
cheers

Bri

User

Posted 08 Jun 2022 at 18:21

Hi guys, having a nightmare with a private dentist which as come about because of a change of ownership and contract dispute. I have spoke to Denplan and following their advice. I am facing a possible £4-5k to get my teeth back into shape. As you probably know getting an NHS dentist is not easy. 111 will refer in an emergency but not for routine, as far as I am aware.

Has anyone managed to get NHS treatment and referral because of having cancer and who did you contact. In between treatments so not sure how it works.

Thanks Chris

User

Posted 08 Jun 2022 at 22:33

Why so much??

User

Posted 08 Jun 2022 at 22:47

Originally Posted by: Online Community Member

Why so much??

6 root canal fillings at £650 each ,plus £80 for an assessment , an extraction and a few normal fillings.

My dentist says he normally charges £750 for a root canal.

Thanks Chris

User

Posted 09 Jun 2022 at 04:22

I'm with Denplan and it's always been pain free financially, why won't they pay??

No idea re NHS my old NHS dentist just disappeared one day, went private for £20 a month which includes the hygienist. I have had a crown, an extraction and a couple of fillings in the 5 years I have been there.

User

Posted 09 Jun 2022 at 06:41

Originally Posted by: Online Community Member

I'm with Denplan and it's always been pain free financially, why won't they pay??

No idea re NHS my old NHS dentist just disappeared one day, went private for £20 a month which includes the hygienist. I have had a crown, an extraction and a couple of fillings in the 5 years I have been there.

Wait till you have a dispute, you will soon be told your contract is between you and the dentist.

Do you have a contract that lists what is and isn't included.

Thanks Chris

User

Posted 09 Jun 2022 at 21:47

My wife’s dentist drives a Maserati. Not being flippant mate I’m sorry. I packed in Denplan when I thought I was going to be dead in a year. But my dentist kept me on and has done work very reasonably.

Even when I was with Denplan and needed a root canal it still involved significant cost for lab fees etc

User

Posted 10 Jun 2022 at 22:41

If you are having root treatment of back molar teeth you will normally need a crown as well to protect it from breaking. Thats probably where the lab bill comes from when you had root treatment. otherwise root treatment doesn't have a lab bill.

If you have been paying in to denplan then routine treatment like fillings/extractions/ root treat treatment should be covered. For crowns/dentures you only pay the laboratory cost.

Chris unless you have complex treatment or complex medical history which cannot be managed in general practice, then you are unlikely to be referred to a nhs dental hosptial.

User

Posted 11 Jun 2022 at 11:12

Peanuts, thanks for the reply, my dentist and the company I pay my fees to, are saying root canal fillings are not covered by the plan. In four separate documents it says root canal work is included. If you Google the fee company it keeps says ,if you need root canal treatment rest assured, it is covered. I can see this finishing up in a legal battle, the last thing you need with a third recurrence.

The charge is purely root canal work, there is a bridge attached to the root canal tooth which is now at risk of becoming detached. Despite three requests for an urgent appointment they have been ignored. The company I pay the fees to say I must go through the dentists complaints before they get involved. Following a letter handed in on Thursday, I did get a phone call yesterday, it all gets a bit complicated but I have an appointment for reassessment by another dentist within the practice on Thursday.

I did get in touch with Maggies and they basically said there are no shortcuts to an NHS dentist for non urgent care.

Just to add to the fun my neighbour had a root canal filling done without charge and he is on the same care plan as me,not the same dentist.

Just to note, those of us on dentist maintenance packages, we have probably not had our normal treatment and cleans etc during covid and I suspect many of us have teeth that will be in a worse state than they were pre COVID. Dentists will be reassessing the condition of a patient's teeth and downgrading the oral health score and charging a higher fee.

Glad my dentist isn't a urologist.

Thanks Chris

Edited by member 11 Jun 2022 at 11:14 | Reason: Spelling

User

Posted 11 Jun 2022 at 11:30

Hi Chris, I am with Denplan and had a root canal a couple of years ago - wasn't charged any extra for it. Our dentist has continued to see us both (in a full hazmat suit) for routine checks ever since they were allowed to reopen in summer 2020

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 11 Jun 2022 at 13:03

I’m with denplan and am not charged any extra ,but they do offer different plans that only offer checkups but not major dental

work so maybe you are on one of those plans . I pay £31 a month .

Hope this helps

Debby

User

Posted 11 Jun 2022 at 14:20

Debby, definitely care + supplementary insurance, around a similar price to yourself.

Thanks Chris

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