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That was not in the plan.

User
Posted 11 Jun 2022 at 20:01
Hi Chris

Just had a quick look at the dentist section on Denplans website and it seems like root canal treatment may be optional and at the discretion of the original dentist that signed you up. If that was the case then they should have told you that root treatment is excluded and priced accordingly. Do you have any of the original documents from when you signed up. You should have a strong case.

Root treatment can be technically challenging and time consuming. The dentist may not feel confident doing it and/or feel that it is not economically worth while, so denplan gives them this options to opt out. But it should be clearly stated.

(cut and paste from denplan dentist section)

What does Denplan Care include?

Dental check-ups (as clinically necessary)

Dental hygiene visits (as clinically necessary)

Dental x-rays

Necessary fillings

Necessary extractions

Periodontal treatment

Preventive dental advice and therapy

Crowns, dentures and bridgework (excluding lab fees)

Root canal treatment (optional)

What’s not included with Denplan Care?

Lab fees / prescriptions

Any treatments you've excluded from your patients' plan contract

good luck and hope that helps

User
Posted 11 Jun 2022 at 20:56

Peanuts, thanks for the info, that is what I have already been told by Denplan and I have told them root canal work was included in the original plan, I then get the reply your contract is between you and your dentist. I then point out that the contract also states they will intervene in the case of a dispute, they reply yes but only after you go through the dentists complaints procedure, grrrr.

The dentist who sold the business used to use the dentist who has bought the business to do the root canal work. I still have the original contract that says it may include root canal work, the "excluded treatment" box on the contract is blank, attached to the contract is a list of charges and against root canal treatment it says "included" ,lab fees etc is show as "chargeable". 

My wife had a root canal filling prior to this dentist taking over and was not charged for the root work. 

I was given a list of treatment requirements by the original dentist that makes no mention of charges, why would it they were included. That work would now be charged at £2250.

They are now trying to say I did not have the work done in a timely manner so I have to pay for the work. What actually happened was the dentist who did the examination and was to do the work kept fiddling with his mask and at one point took the mask of to refit it, these were the flimsy blue masks and it was in the height of COVID. I asked if I could be treated by my original dentist provided it did not have an adverse effect on my dental health, this was agreed but the original dentist was ill, never returned to the practice and then sold the business. Fortunately I also have an email trail of that correspondence which I will present to them on Monday, they don't have access to the original managers email.

We were told on transfer of ownership that the practice would carry on as normal and we did not need to do anything. I am now trying to establish how the change of ownership affects the term of the contract.

Thanks Chris.

 

 

 

User
Posted 12 Jun 2022 at 04:53

Originally Posted by: Online Community Member

Originally Posted by: Online Community Member
Hospitals can make their judgements at the point of testing and could be influenced by how individuals present. There is going to be a better chance of finding tumours as PSA increases. My RT treating hospital in Heidelberg, who in conjunction with the dkfz initiated the 68 Gallium PSMA scan, suggested 0.70 to me but we know there have been cases where tumours have been detected below this, so it seems an abitrary figure. It is quite an expensive scan and not widely available, so if paid for privately you could likely have it when PSA was lower, whereas if provided on the NHS some hospitals/consultants may well set the bar higher.

Barry how do you arrange a private scan in   Heidelberg a d have you any idea of a ball park figure cost.

Bri

Edited by member 12 Jun 2022 at 05:15  | Reason: Not specified

Barry
User
Posted 12 Jun 2022 at 05:06

Originally Posted by: Online Community Member

Originally Posted by: Online Community Member
Hospitals can make their judgements at the point of testing and could be influenced by how individuals present. There is going to be a better chance of finding tumours as PSA increases. My RT treating hospital in Heidelberg, who in conjunction with the dkfz initiated the 68 Gallium PSMA scan, suggested 0.70 to me but we know there have been cases where tumours have been detected below this, so it seems an abitrary figure. It is quite an expensive scan and not widely available, so if paid for privately you could likely have it when PSA was lower, whereas if provided on the NHS some hospitals/consultants may well set the bar higher.

Barry how do you arrange a private scan in   Heidelberg a d have you any idea of a ball park figure cost. 
cheers

Bri

Old Barry Posted: 12 Jun 2022 at 04:53 Originally Posted by: Brianissac Originally Posted by: Old Barry Hospitals can make their judgements at the point of testing and could be influenced by how individuals present. There is going to be a better chance of finding tumours as PSA increases. My RT treating hospital in Heidelberg, who in conjunction with the dkfz initiated the 68 Gallium PSMA scan, suggested 0.70 to me but we know there have been cases where tumours have been detected below this, so it seems an abitrary figure. It is quite an expensive scan and not widely available, so if paid for privately you could likely have it when PSA was lower, whereas if provided on the NHS some hospitals/consultants may well set the bar higher. Barry how do you arrange a private scan in Heidelberg a d have you any idea of a ball park figure cost. cheers Bri 

Hi Bri, Sorry, I have only just seen your question having read back part of this thread. To answer your question specifically, I don't know how somebody would get the 68 Gallium scan in Heidelberg. without asking referral requirements. Furthermore, I don't think this is of any great advantage now as the scan can be done in the UK. It was only when I asked their opinion (as a previous patient in Heidelberg), on a Choline scan done in the UK with divided opinion, that they suggested I either have the PSMA scan done there privately or in the UK, where it was just being introduced, when my PSA reached 0.70. I had to get a Consultant rather than my GP to refer me for the scan and the Royal Marsden kindly obliged. I opted for the scan to be done at the Paul Strickland Scanner Centre where the going rate was about £2,600 at the time and they got a consultant from Mount Vernon Hospital to give an opinion on it. Since then, some UK Hospitals have referred men to the few UK hospitals/facilities that do the scan and on the NHS. I am not aware whether you still have to be referred by a Consultant but this should be easy to ascertain. I will just add that in my case, the PSMA scan led to me being given a second HIFU rather than just be treated with HT which is what UCLH were proposing on the basis of their interpretation of the Choline scan they had given me. So for me it was a treatment changer. Barry

It's gone green - don't know how that happened!

Edited by member 12 Jun 2022 at 05:39  | Reason: Not specified

Barry
User
Posted 16 Jun 2022 at 08:53

Hi , just checking my appointment for my PSMA F18 scan for tomorrow and noticed it say "half body scan" . Is that normal? Most images I see show a full body.

Thanks Chris 

 

User
Posted 16 Jun 2022 at 09:17
When I had mine they did an intense scan in the middle bit and a quicker scan everywhere else..
User
Posted 16 Jun 2022 at 10:07
I’m sure it will be fine ! Normally head or neck to the groin and hips ! Good luck
User
Posted 16 Jun 2022 at 10:20

Thanks guys , panic over , the scan department has just called back, it is top of the skull to mid thigh. More like a top 2/3, rather than half. Lovely member of staff, friendly and helpful.

Thanks Chris 

User
Posted 16 Jun 2022 at 10:26

 

Good luck, Chris. I'm sure it'll be fine, you'll see. Moreover, in case st came out, so many new an varied treatments are available these days. In We are bound to keep sharing our fears, sorrows and joy here for good.👍

User
Posted 17 Jun 2022 at 12:45

Scan cancelled, injection problems, not a total surprise. Rebooked for two weeks today.

Thanks Chris 

 

User
Posted 12 Jul 2022 at 17:44

Hi guys, f18 scan happened a few days ago, PSA last week,up to 1.6, Onco appointment today.

They found one lymph node in the right of the groin ( I think) that lit up. Nothing else seen. I did ask if it had 1.6 worth of PSA in it. 

Results go before another team but proposed plan is SABR treatment to the lymph node. Possibly done in the next few weeks. 

Any stories of experiences ,good or bad.

Thanks Chris 

 

 

User
Posted 12 Jul 2022 at 17:59
Always nice to hear from you Chris. I guess it’s good that only one item showed up and they are looking at it as curative. You’re our ultimate soldier so good luck 🤞 from me
User
Posted 12 Jul 2022 at 18:17
Hi Chris

Hopefully they found the only culprit that's producing the PSA and that they can knock it out with focal treatment.

Good luck

Cheers

Bill

User
Posted 13 Jul 2022 at 06:02
That sounds like good news to me! Will be an interesting PSA result when you get the results...
User
Posted 19 Jul 2022 at 15:18

Originally Posted by: Online Community Member

“Hi guys, f18 scan happened a few days ago, PSA last week,up to 1.6, Onco appointment today.

They found one lymph node in the right of the groin ( I think) that lit up. Nothing else seen. I did ask if it had 1.6 worth of PSA in it. 

Results go before another team but proposed plan is SABR treatment to the lymph node. Possibly done in the next few weeks. 

Any stories of experiences ,good or bad.

Thanks Chris”

 

that sounds positive Chris. Just had my consultation and i mentioned your situation  She said the F18 scan is a bone scan. Is that what you had? 

She said my PSA is rising very slowly so was unlikely to yield any results. My PSA has risen from 0.12 to 0.57 from 2019  

So further discussion in 4 months or if i get any significant symptoms

Take care

Bri

 

 

Edited by member 19 Jul 2022 at 15:19  | Reason: Not specified

User
Posted 19 Jul 2022 at 16:46

Hi Chris, have you had an enhanced MRI and a PET scan? When I had my recurrence the enhanced MRI showed up cancer in the prostate bed. The choline F18 scan showed up higher activity in a seminal vesicle remnant but missed the stuff in the prostate bed. Hope SABR does the job. 

Ido4

User
Posted 19 Jul 2022 at 17:37

Wishing you all the best. 

User
Posted 19 Jul 2022 at 17:39
Oh, my!!!

Shall we need a combination of all different tracers and PET TAC modalities in order to catch any probable new cancer spot sensitive to a particular substance?

I know OH"s situation is not extremely serious and I shouldn't complain here, but some psychological break would be appreciated .

Best to all

Lola.

User
Posted 19 Jul 2022 at 18:49

Lola, I think like me you are confused with all the tracers, what is a PSMA and non PSMA tracer, should it be a choline tracer a glucose tracer or a fatty protein tracer. This tracer is better for this area that tracer is better for that area. I share your sense of frustration, take care and relax.

Bri I had a "NM F18 half body PSMA PET/CT scan", I can't find the exact tracer I had but my understanding was it "could" pick up the cells if in sufficient quantity no matter where they were.  Scholars ?

Bri, hope you are doing okay, the medics seem more relaxed with our results than we do. 

Ido4, I had the scan as described above but not sure whether that counts as the pet scan.  I haven't had an MRI scan since my post biopsy one over eight years ago. I have had several bone and CT scans up until the termination of the trial a few weeks ago, they didn't pick anything up. I will have a planning scan before treatment starts. Thanks for your good wishes.

I could do with a Dummies guide to PSMA scans.

DW, CJ,  francij1 & Bill thank you for you continued support.

 

Thanks Chris

 

User
Posted 19 Jul 2022 at 20:29

You've hit the nail , Chris. That's the way many of us are feeling. To be honest, I had the impression that over the last three or four years a gigantic step forward had taken place in terms of image and tracers. We were welcoming what we thought to be the solution for tiny spotted  mets and, thus , go for an early treatment, as well as keep watchful to possible unseen malignant cells at the very moment they became visible. Kind of disappointing?

BTH, would you happen to come across some manual for dummies trying to understand tracers, TAC, PSMA , gallium, f16, bone scan, and life in general, please, make me aware.

Best wishes from my Spanish corner over the ocean, facing America.

XX

Lola

 

 
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