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User

Posted 06 Nov 2020 at 01:59

Hi Chris,

Sorry to hear about the rise but I hope everything goes well for you and the rate of rise remains slow.

I hope you manage to get on the trial and it helps you in some way.

Take care and stay safe during the lockdown.

Steve

User

Posted 06 Nov 2020 at 14:46

Well what a ****ing tish today has turned into, after being told 2 days ago I was on the trial. I have just had a call to say sorry you are not eligible because of doubling time. Particularly annoyed because I asked and was told my doubling time was okay.

Thanks Chris

User

Posted 06 Nov 2020 at 22:08

Sorry to hear that, Chris

Can you challenge or ask for an exception?

User

Posted 06 Nov 2020 at 22:45

Sorry to hear this Chris. Thoughts are with you ok. Still low figures !

User

Posted 06 Nov 2020 at 22:45

Pete

I don't think they read the criteria correctly before inviting me onto the trial. There are only going to be six people in the UK on the trial.

Thanks Chris

User

Posted 20 Nov 2020 at 20:09

I think they are too damn conservative on trials

User

Posted 22 Nov 2020 at 20:42

Pete ,There may be developments.

Thanks Chris

User

Posted 22 Nov 2020 at 20:46

For someone like me ,no prostate and a radiated prostate bed, would you expect a urine infection and or antibiotics to affect PSA readings.

Thanks Chris

User

Posted 03 Dec 2020 at 13:45

Now totally confused. No treatment since SRT 2017, a couple of UTIs and a few antibiotics over the last 12 months.

2/10/2019 PSA 0.19

10/2/2020 PSA 0.34

3/6/ 2020 PSA 0.41

10/7/2020 PSA 0.47

1/10/2020 PSA 0.47

9/10/2020 PSA 0.51

3/12/2020 PSA 0.38

Thanks Chris

Edited by member 03 Dec 2020 at 18:18 | Reason: More info

User

Posted 03 Dec 2020 at 17:15

Hope this is the beginning of a downward slope Chris. Maybe the rises were/are infection.

Good luck

Cheers

Bill

User

Posted 03 Dec 2020 at 21:46

Sounds good Chris - going in the right direction

Arthur

User

Posted 04 Dec 2020 at 02:31

Hi Chris,

Good to hear that it's not racing away.

I do find that my PSA varies quite a lot sometimes. I really don't know why but if it is just a gradual rise then that can be very reassuring.

I hope this current trend continues.

All the best,

Steve

User

Posted 04 Dec 2020 at 10:00

I’m not surprised you are confused Chris. But PSA seems steady so that is a positive.

All the best.

Ido4

User

Posted 11 Dec 2020 at 08:39

7 years ago today I had a trus biopsy, I didn't think I would be facing more treatment seven years later. 10 years ago my GP missed a PSA of 6.9. Twenty years ago I started with terminal dribbling.

Still here and still moaning.

Thanks Chris

User

Posted 11 Dec 2020 at 09:13

Hi Chris,

Life never quite seems to turn out as you expect it to.

In the Spring of 2014, I never expected to be told in June that I had Cancer and in March 2018, that it was now incurable.

You could have never imagined the operation you had to cure the Cancer would cause you so much trouble in the years that followed.

No one deserves the problems you've suffered over the years and I admire the way you've coped with it.

Whatever life has thrown at us, we're still here.

I hope you have a very Happy Christmas and better times ahead.

Steve

User

Posted 11 Dec 2020 at 09:51

Moan away Chris , you really have had it way worse than most with complications! I think the incontinence would have driven me insane. Thanks for all your input over the years. It means a lot to all.

Have as happy an Xmas as you can

Chris

User

Posted 11 Dec 2020 at 10:14

Long may you still be here Chris, moans and all!

Ido4

User

Posted 12 Dec 2020 at 09:30

Hi Chris

Also glad you're still here I hav'nt noticed any moaning, just constructive advice, help and support as far as I'm concerned.

You have had to put up with more than most regarding side effects and complications and have delt with all the sh#t this awful desease had thrown at you admirably and have used your experiences to help and advise so many others on here.

I hope your PSA stays under control and wish you all the very best.

Many thanks.

Cheers

Bill

User

Posted 12 Dec 2020 at 14:35

When you are too ill to moan, that's when you should start to worry.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 02 Mar 2021 at 17:34

11/02/2020 0.33

03/06/2020 0.41

10/07/2020 0.47

09/10/2020 0.51

03/12/2020 0.38

01/03/2021 0.62

Last few PSA results, I am beginning to think that the 0.38 was somehow corrupted, It was checked by my onco nurse and the trials team so I know it was not a simply a typo.

I had finished a course on antibiotics 10 days prior to the test. It was done at the hospital as opposed to my GP but the samples do go to the same hospital lab.

4 years post SRT and apart from the 0.38 there has generally been a stall or rise.

Have telephone conversation with onco nurse tomorrow.

Thanks Chris

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