Hi YS,
I have just read your first post , so sorry that you have found yourself here (on the forum) but glad that you have at least reached out and found us. Those early days are so scary and you feel so alone and terrified. I remember them very vividly.
I see you are on the road know with chemo, ( it's a whole new language to learn) 🤓
The one thing that I would pass on is life doesn't end with a PCa diagnosis it just takes a different path.
BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON |
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Seems you are in good hands nothing their that i have not been given
Regards
Nidge
run long and prosper
'pooh how do you spell love' 'piglet you dont spell love -you just feel it' |
User
Hi Yorkshire Lass,
Just a welcome from me, I also had early chemo three years ago and it worked a treat, sounds to me like you have a good onco.
If you look on my thread there are my bone scan picture before and after Chemo.
As Kev said any question one of us will have an answer.
unlike Kev i did not run home 12 miles http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-embarassed.gif
Si
Don't deny the diagnosis; try to defy the verdict |
User
Hi harmony
Thanks for you're post yes at first you do think the worst when diagnosed but we feel better now that HT working for him and hopefully the chemo be ok also
Good luck to you're husband on his chemo journey
From
Yorkshire lass
User
Hi
Just finished my course of chemo
Found the first couple of sessions ok
But from 3 -6 have been more tired and odd times upset stomach and off my food
Not needed the anti sickness tablets
Regards
Nidge
run long and prosper
'pooh how do you spell love' 'piglet you dont spell love -you just feel it' |
User
re the steroids
found taking them around 2-3pm helped with my night ime sleeping, if I took them later in day 6pm ish found I didnt sleep as well, but this was just a bit of experimenting on my part
also have tamsalousin I take these at the same tme
regards
idge
run long and prosper
'pooh how do you spell love' 'piglet you dont spell love -you just feel it' |
User
Hi Yorkshire Lass
Best wishes to you and your husband. We are on very similar journeys. I was diagnosed with advanced prostate cancer in November and have had bicalutamide, leuprolin injection and started chemo (docetaxel) on Jan 8. I have had very little reactions to the meds but the worst time was day 4/5 so hopefully your hubby is feeling better now.
I have been doing some exercise ( fast walking and light resistance training) I think this is helping me a lot and something to consider.
There are so many positive stories on this site, we can live with this diagnosis I feel and appreciate each and every day.
Martin
"And Rocky said, doc it's only a scratch. And I'll be better, I'll be better doc as soon as I am able" |
User
Hi Yorkshire lass,
My husband is 4 days post 1st chemo treatment and surprised how well he is feeling. I think it's the steroids giving him a buzz, his appetite is better also.
Sorry to hear your hubby is suffering a few days further on. Keep taking the laxatives. Drinking plenty of fluids and keeping active will also help.
I've gone a bit fanatical with my house cleaning, my house has never been so clean. Doing everything I can to minimise bugs/infection,although I know each of us carry a certain amount of bacteria so can't eradicate everything.
Hope hubby feeling benter soon.
Lesley x
User
Thanks for the update Yorkshire Lass. Glad it all seems to be going on the right direction
We can't control the winds - but we can adjust our sails |
User
Glad to hear your respective men are making progress., Harmony and Yorkshire Lass. I know what you mean about the hygiene, I got a bit concerned about that and kept spraying things and sterilising things, etc. The mistake Tony made was right at the end of treatment (you can get a bit careless) he attended a children's concert to see our grandkids perform. It was last March, still the seaon of runny noses, and he picked up some infection. There were no normal symptoms and he didn't feel really unwell, but noticed he was hot. We took his temperature and it was past the danger threshhold, so he had to spend three days in an isolation ward being pumped full of antibiotics, in case it was a bacterial infection, which can kill.
So get youselves a thermometer, and keep away from crowds of small children!
User
Hi Yorkshire lass
Good news, pleased to hear hubby's doing well. Hope it continues with chemo no.2.
Marge, glad to hear I'm not the only obsessive wife. I've even bought bob a 'pair of marigolds'for any extra cleaning he wants to do! Ha ha.
Best wishes
Lesley x
User
hey up yorkie
yep you ae doing the right thing one day at a time, eventually you will be able to look ahead but not to far, as we all worry whats round the next bend
good news on the PSA
regards
nidge
run long and prosper
'pooh how do you spell love' 'piglet you dont spell love -you just feel it' |
User
Hi Yorkshire Lass,
My husband has Pca too, diagnosed in 2014 aged 47. I really symapthise with that rabbit in the headlights feeling. Keep up the hope though, there are some very amazing and encouraging stories on here. I have come to think of PC as the same as having a long term medical condition instead, which has to be monitored and managed, but which can be treated for years.
Hold on to the hope, and all the best to you and your husband
x
'Sorrow looks back, worry looks around, but faith looks up' |
User
I wish him well in hi fight Yorkshire Lass
We can't control the winds - but we can adjust our sails |
User
Hello Yorkshire Lass
I'm not sure how I missed your thread, but I am a fellow wife of a metastatic cancer sufferer. He is a Gleason 10 with spread to lymph and bone. We have not had any chemo or any of the new drugs in the five years we have been dealing with the illness. And yet, all remains reasonably well. I think this cancer is a mystery, men with a Gleason 7 sicken and pass away in shorter times sometimes, I'm no longer sure what the Gleason score really means (I mean I know what it means but it doesn't always reflect the actual aggressiveness of the cancer, our urologist told me this and I think it's true). On diagnosis 5 years ago early chemo was only for people on a trial, the trial results showed very promising results for early chemo and there is the fact that the man is younger (than if you wait till things get worse) and less debilitated by long term HT use, it makes sense.
What I have found, five years in, is that the toll the treatment and stress has taken on both of us has been substantial. I have had to go on sick leave from work as John now needs help with dressing and other things. My own health has taken a hit, I found it impossible to continue giving my usual service at work and the stress of that was horrendous. I do think that these are the things that are somewhat hidden with a diagnosis of cancer (or other long term illness), both for the sufferer and their family. I have a close friend who's hubby had throat cancer, and who is in remission. However, repeated surgery, chemo and RT to the head area has caused a lot of damage and he will never work again, he is not the same person, he has lost his gag reflex and often chokes at night and is blue lighted to hospital regularly. Though he is "cured", his cancer has had a major impact on him and his family and much of that is hidden from people, who think, wow he is cured, that's great.
This is one of the reasons I feel lucky that "our" cancer is not generally found in the head region, thankfully most men can live a reasonable life with it for quite q period of time (not all I'm sad to say). Someone with mets isn't going to beat this cancer but you can live a good life. Our life is good despite what I've said above and I am very grateful for every day we have together.
You sound like a very loving person and I'm glad you found us, someone is usually around to offer advice, support or solace.
With love
Allison xxx
User
Keep going gal, 1.7 is great at this stage. it is tough for him but when the going gets tough, the tough get going. Wish him well from everyone here. He's clearly a fighter. I hope he comes through the next treatments in good heart.
AC in Northants
User
I'm on start of week 3, chemo cycle 3 and this is the good week! Energy is pretty strong and I even had a good sleep last night. Just have to be careful not to overdo it.
I was told that the bone pains are a good sign, it's the chemo working. Not sure if that is correct but I like the idea of it ☺
My PSA is also coming down a lot so fingers crossed.
The early chemo tratment is worse than my earlier symptoms but I guess you have to give it a go based on the trial results.
Martin
"And Rocky said, doc it's only a scratch. And I'll be better, I'll be better doc as soon as I am able" |
User
Yorkshire lass, sometimes it is the things they don't know that keep them so well - what tricks we partners play when we need to!
Great to hear that he is feeling so upbeat - take care of yourself too x
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
|
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Hi Yorkshire lass,
It's great to see your husband is doing well and psa coming down nicely.
His comment "I bet my Gleason score 10 is less now" I think ignorance for him at the moment is bliss. Bob used to make similar sorts of comments and I know he didn't expect me to answer then. It took bob a long time to come to terms with the reality of the progressiveness of the cancer. Maybe now is not that time. He will ask the questions to you/consultant/ or read on Internet when he is good and ready.
Bob just had cycle 4, doing ok. Side effects perhaps not so good but are manageable. Bob psa going up rather than down, a little concerning (updated on my own thread) but consultant says not to worry at this stage.
All the best yorkshire lass, you are doing a fine job supporting your hubby.
Lesley xx
User
hey up
as my nurse said to me your bodies just been bombarded and it needs time to recover, not had as many after effects as your hubby, but am always short of breath somedays more than others, and suffer more now with hot flushs
regards
nidge
run long and prosper
'pooh how do you spell love' 'piglet you dont spell love -you just feel it' |
User
Great news and outcome! Well done to both of you.
User
Really pleased to read your latest update, long may it continue!
Lesley xx
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My surgery was nearly 4 yrs ago. I feel totally normal I guess and everything working. My psa continues to double every 12 weeks and is now over 82. And I have a really busy job , painted the outside of house last few days etc etc ...... but something growing within :-((
But yeh you can feel fine with psa rise
User
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I think it’s essential not to do it online. I’ve used Boots Travel for a few years now and very reasonable. This year however because of changes to my health I was asked to phone them directly. I did this and it was all ok. Most of all the conversation is recorded and the fee agreed , and you haven’t told them any lies. Even so , any form of insurance is nigh on legalised extortion and they will always do anything they can to wriggle out of paying you fair and square. My dad recently missed a holiday due to a change in health. He was insured but they wanted a letter from the airline to say he hadn’t flown , a letter from the doctor and a letter from the consultant to confirm the change etc. The flight was £350. He paid £100 for the letters. The insurance company gave him £100. You do the maths lol. You are best just not to travel abroad and feed the bu**ers £600 , than to go and get ill and be stung. I’m soon to be diagnosed advanced I expect so am having a last cruise and then it will be UK only I guess.
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Hello Yorkshire Lass and welcome to the site, although I'm sorry that you found it necessary to join us.
I cannot answer your questions since my husband's prostate cancer problem is different from yours but there are a number of men on here with metastatic Pc and I am sure they will be able to give your their advice.
PC for any of us, patient, wives and partners, is a scary world to be in, especially when you are first diagnosed. Whatever you are feeling now, well to some extent we have all felt it, so you are not alone in that.
Never feel that you cannot ask a question regarding this cancer. We are all in the same boat and share our experiences, our joys and our bumpy rides. No question is regarded as stupid, no subject relating to PC is taboo (it is not unusual to discuss bowels, erectile disfunction or any of those things you would never have had a conversation about with complete strangers.
Apart from us there are specialist nurses on here who would be happy to help with queries but remember, you are not alone and there is usually somebody to "talk" to online if things get really tough for you.
In the meantime, try and stay calm. It's all still new to you and you probably can't see light at the end of the tunnel at the moment and life is very very scary.
Hang in there until somebody with more knowledge comes along.
Best Wishes
Sandra
We can't control the winds - but we can adjust our sails |
User
I am so sorry that you find yourself here. I had similar symptoms 14 months ago age 49. Gleeson9 T4N1M1a. PSA was 342. My first thoughts are yes your husband and you now find yourself in an unexpected and scary place however there may be still some good years. I had chemo and radiotherapy in the first 6 months of 2015 but still ran 2 marathons whilst on chemo and did a 60 mile race after radiotherapy.
I was put on hormone therapy straight away, first tablets then a 3 monthly implant which almost immediately stopped the bottom pain. After chemo and radiotherapy my PSA was down at 0.38 and a full body mRI showed "no visible signs of cancer".
Chemo and radiotherapy had only minor side affects for me.
Whilst I know that the cancer is there and will come back I have done most things I wanted to including many races, overseas holidays etc.
Everyone is not like me I know but please read this as real hope for a new acceptable normality.
Please post any specific questions you have as you will get the spectrum of possible outcomes from this supportive group. The toolkit on the PCUK site is also very good if you have not found it yet.
There are many wives here who know more than the men who will know more than I what it must be like for you.
Keep posting your thoughts and concerns.
Kev
Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019 |
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Nar then yorkie
I also am on the chemo treatnent i assume its 6 lots given every 3 week
Have 1 more session to go my PSA down to 0.04
i also like to run not nanaged as much as irun but i feel fitness plays a big part
Regards
Nidge
run long and prosper
'pooh how do you spell love' 'piglet you dont spell love -you just feel it' |
User
Hi, i was diagnosed with same gleason score and a psa of 1730 in 2009 at the age of 47. Took part in stampede trial which involved chemo, ht and zometa. Psa gradually came down to 0.6 for a few years but started rising again till it reached 38, started Casodex and latest psa was 13. The trial seems to indicate that getting chemo early has a greater effect than in the latter stages. Hope your husband responds well to treatment, good luck and God bless
User
Thank you all for letting me know of you're diagnosis and kind words we been told it's not curable but with treatment it will maintain it and shrink it when he had the double injection of hormone on diagnosis he was off it for a couple of days then he started to feel fine he lost all the heavy feeling on his rectrum and where he's got it in his arm he felt no niggling pain there like he use to that was on 3rd Dec 15 he got app to see oncologist 2 weeks after they did blood tests on him
On 22nd Dec he had to go to see about his other hormone injection as with him starting chemo this month they would have to Change his hormone to one that combines with that so to stop a cancer flare up he's had to go on Bicalutamide tablets for 28 days then he be having Prostap every 3 mths his chemo is doxetol (not sure on spelling) he has 6 of them they told him it can give a extra 13 months of life expectancy
Also his blood test showed his PSA level had come down from 93 to 22 which was good as having a biopsy makes you're levels really high they usually wait 6 weeks before doing one so that made us feel we going on the right track
Week before chemo oncologist sending him for CT scan to check on his soft tissues to see if it's spread to them
Will keep you informed
From Yorkshire lass
User
Seems you are in good hands nothing their that i have not been given
Regards
Nidge
run long and prosper
'pooh how do you spell love' 'piglet you dont spell love -you just feel it' |
User
I second what Nidge has said, early chemo after diagnosis , 3 monthly prostap or zoladex, biclutamide ( I took them for a year).
Do keep posting any thoughts or issues as between us we frequently know the answer although every one of us is slightly different and can react in different ways.
Stay positive, 14 months on I ran home from work today (14 miles) with a 10lb pack, felt so alive just gotta believe.
Kev
Edited by member 06 Jan 2016 at 20:12
| Reason: Not specified
Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019 |
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Thank you so much for you're replys it really does help I will keep you informed as how he gets on next week with chemo
From
Yorkshire lass
User
Hi Yorkshire Lass,
Just a welcome from me, I also had early chemo three years ago and it worked a treat, sounds to me like you have a good onco.
If you look on my thread there are my bone scan picture before and after Chemo.
As Kev said any question one of us will have an answer.
unlike Kev i did not run home 12 miles http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-embarassed.gif
Si
Don't deny the diagnosis; try to defy the verdict |
User
Well hubby saw oncologist today as regards his CT scan he said there's nothing un towards on scan so that was good news
Had his blood tests given his steroids to take day before chemo had his Postsnap injection last Wednesday had no problems
With that so just hoping the same happens with his chemo fingers crossed
Also was asked if he wanted the cold cap whilst having treatment does this make any difference to hair loss
From
Yorkshire lass
User
Hi Yorkshire lass,
Just wanted to say hi, I am like yourself a wife of husband with advanced prostate cancer, Gleason score 9 with spread into lymph nodes and bones, diagnosed just over 5 years ago. On first diagnosis we thought it was to be the end of everything and I understand it is quite a scary time but here we still are!!! Hope this helps to reassure you.
Bob hasnt run marathons, as the guys above have, but has worked and remained very active for much of this time. He has slowed down a little more recently but I think a lot of this is the psychological impact of living with cancer. Bob didn't have early chemo upon diagnosis but has various hormone treatments which he responded well to. He is however also about to embark on the chemo journey.
With research showing now that early chemo extends survival I hope it is the beginning of some good years for you. I wish your husband well with his chemo treatment. Good to see ct scan clear.
Lesley x
User
Hi harmony
Thanks for you're post yes at first you do think the worst when diagnosed but we feel better now that HT working for him and hopefully the chemo be ok also
Good luck to you're husband on his chemo journey
From
Yorkshire lass
User
Well hubby had his first chemo on 13 Jan had no problems or side effects yet we can't believe it thought he feel something
I know it's only been a few days. He is taking his steroids 2 a day for 21 days and so far been OK with them
Just wondered if anyone else been like this or is it calm before the storm
From
Yorkshire lass
User
Hi
Just finished my course of chemo
Found the first couple of sessions ok
But from 3 -6 have been more tired and odd times upset stomach and off my food
Not needed the anti sickness tablets
Regards
Nidge
run long and prosper
'pooh how do you spell love' 'piglet you dont spell love -you just feel it' |
User
Thanks nidge
It's like going into the unknown it's a good job there's a site like this where you can ask if anybody feeling on had same symptoms just read the side effects you could get with the steroids you have to take they seem worse than side effects from chemo so we see how hubby goes on with the rest of his treatment
Thanks from
Yorkshire lass
User
re the steroids
found taking them around 2-3pm helped with my night ime sleeping, if I took them later in day 6pm ish found I didnt sleep as well, but this was just a bit of experimenting on my part
also have tamsalousin I take these at the same tme
regards
idge
run long and prosper
'pooh how do you spell love' 'piglet you dont spell love -you just feel it' |
User
Well he started to feel unwell early this morning he had a awful headache he said all his bones ached
He started with constipation with that he got the feeling of heavy ness on his rectrum again so he done what they said and take some laxative but if it lasts for 4 days or more to telephone hospital as they will want to see him
We were told round about now he would start to feel things
Yorkshire lass
User
Hi Yorkshire Lass
Best wishes to you and your husband. We are on very similar journeys. I was diagnosed with advanced prostate cancer in November and have had bicalutamide, leuprolin injection and started chemo (docetaxel) on Jan 8. I have had very little reactions to the meds but the worst time was day 4/5 so hopefully your hubby is feeling better now.
I have been doing some exercise ( fast walking and light resistance training) I think this is helping me a lot and something to consider.
There are so many positive stories on this site, we can live with this diagnosis I feel and appreciate each and every day.
Martin
"And Rocky said, doc it's only a scratch. And I'll be better, I'll be better doc as soon as I am able" |
User
Hi Yorkshire lass,
My husband is 4 days post 1st chemo treatment and surprised how well he is feeling. I think it's the steroids giving him a buzz, his appetite is better also.
Sorry to hear your hubby is suffering a few days further on. Keep taking the laxatives. Drinking plenty of fluids and keeping active will also help.
I've gone a bit fanatical with my house cleaning, my house has never been so clean. Doing everything I can to minimise bugs/infection,although I know each of us carry a certain amount of bacteria so can't eradicate everything.
Hope hubby feeling benter soon.
Lesley x
User
Just a update hubby had his onco app Monday for blood tests and weighing when they shouted his name his oncologist was in doorway as we went through he shook our hands and he said he just wanted to see how my hubby was walking after his 1st chemo as the nurse was weighing him the oncologist asked me how he been with his first cycle I said fine apart from headaches & constipation he said that's good nothing too bad then
We had a good chat with him and he was pleased with how things are going hubby had put weight on and he told him his PSA level was now down to 2.6 so things are going in right direction
So today he had his 2nd chemo so hopefully we have some more good news in 3 weeks
Yorkshire lass
User
Thanks for the update Yorkshire Lass. Glad it all seems to be going on the right direction
We can't control the winds - but we can adjust our sails |
User
Glad to hear your respective men are making progress., Harmony and Yorkshire Lass. I know what you mean about the hygiene, I got a bit concerned about that and kept spraying things and sterilising things, etc. The mistake Tony made was right at the end of treatment (you can get a bit careless) he attended a children's concert to see our grandkids perform. It was last March, still the seaon of runny noses, and he picked up some infection. There were no normal symptoms and he didn't feel really unwell, but noticed he was hot. We took his temperature and it was past the danger threshhold, so he had to spend three days in an isolation ward being pumped full of antibiotics, in case it was a bacterial infection, which can kill.
So get youselves a thermometer, and keep away from crowds of small children!
User
Hi Yorkshire lass
Good news, pleased to hear hubby's doing well. Hope it continues with chemo no.2.
Marge, glad to hear I'm not the only obsessive wife. I've even bought bob a 'pair of marigolds'for any extra cleaning he wants to do! Ha ha.
Best wishes
Lesley x
User
Thank you all for you're comments it's good to know we all going through the same so these comments really help
At the moment he really does feel fine we know it can't be cured only maintained so taking each day as it comes
Thanks
Yorkshire lass
User
hey up yorkie
yep you ae doing the right thing one day at a time, eventually you will be able to look ahead but not to far, as we all worry whats round the next bend
good news on the PSA
regards
nidge
run long and prosper
'pooh how do you spell love' 'piglet you dont spell love -you just feel it' |
User
Hi Yorkshire Lass,
My husband has Pca too, diagnosed in 2014 aged 47. I really symapthise with that rabbit in the headlights feeling. Keep up the hope though, there are some very amazing and encouraging stories on here. I have come to think of PC as the same as having a long term medical condition instead, which has to be monitored and managed, but which can be treated for years.
Hold on to the hope, and all the best to you and your husband
x
'Sorrow looks back, worry looks around, but faith looks up' |
User
Well hubby had 3rd chemo and next week he be having his 4th his 3rd session has been the worst up to now he's had a lot of pain in his legs back hands feet in fact all over his body one of the days he had really bad pains in his testicals which wasn't a nice thing for him he felt like he'd had a good kicking it's awful to see you're loved one suffering but he said he carry on fighting
The good news is that his PSA level is now down to 1.7 so that's giving him a good reason to carry on also
He's just started to feel ok this week with just the occasional headaches
So roll on next week for round 4
Yorkshire lass
User
I wish him well in hi fight Yorkshire Lass
We can't control the winds - but we can adjust our sails |
User
Hello Yorkshire Lass
I'm not sure how I missed your thread, but I am a fellow wife of a metastatic cancer sufferer. He is a Gleason 10 with spread to lymph and bone. We have not had any chemo or any of the new drugs in the five years we have been dealing with the illness. And yet, all remains reasonably well. I think this cancer is a mystery, men with a Gleason 7 sicken and pass away in shorter times sometimes, I'm no longer sure what the Gleason score really means (I mean I know what it means but it doesn't always reflect the actual aggressiveness of the cancer, our urologist told me this and I think it's true). On diagnosis 5 years ago early chemo was only for people on a trial, the trial results showed very promising results for early chemo and there is the fact that the man is younger (than if you wait till things get worse) and less debilitated by long term HT use, it makes sense.
What I have found, five years in, is that the toll the treatment and stress has taken on both of us has been substantial. I have had to go on sick leave from work as John now needs help with dressing and other things. My own health has taken a hit, I found it impossible to continue giving my usual service at work and the stress of that was horrendous. I do think that these are the things that are somewhat hidden with a diagnosis of cancer (or other long term illness), both for the sufferer and their family. I have a close friend who's hubby had throat cancer, and who is in remission. However, repeated surgery, chemo and RT to the head area has caused a lot of damage and he will never work again, he is not the same person, he has lost his gag reflex and often chokes at night and is blue lighted to hospital regularly. Though he is "cured", his cancer has had a major impact on him and his family and much of that is hidden from people, who think, wow he is cured, that's great.
This is one of the reasons I feel lucky that "our" cancer is not generally found in the head region, thankfully most men can live a reasonable life with it for quite q period of time (not all I'm sad to say). Someone with mets isn't going to beat this cancer but you can live a good life. Our life is good despite what I've said above and I am very grateful for every day we have together.
You sound like a very loving person and I'm glad you found us, someone is usually around to offer advice, support or solace.
With love
Allison xxx
User
Keep going gal, 1.7 is great at this stage. it is tough for him but when the going gets tough, the tough get going. Wish him well from everyone here. He's clearly a fighter. I hope he comes through the next treatments in good heart.
AC in Northants
User
I'm on start of week 3, chemo cycle 3 and this is the good week! Energy is pretty strong and I even had a good sleep last night. Just have to be careful not to overdo it.
I was told that the bone pains are a good sign, it's the chemo working. Not sure if that is correct but I like the idea of it ☺
My PSA is also coming down a lot so fingers crossed.
The early chemo tratment is worse than my earlier symptoms but I guess you have to give it a go based on the trial results.
Martin
"And Rocky said, doc it's only a scratch. And I'll be better, I'll be better doc as soon as I am able" |
User
A big thank you for you're replys it really helps as we all are on this journey and sharing our fears
Yorkshire lass
User
Hi Yorkshire lass
Sorry bit of a late response to your latest update. It's great to see that your husband has responded well to his chemo with psa coming down.
Bob has not long had his 3rd cycle, not done too badly with side effects. Few bone pains and fed up our house 4 walls. Still has head of hair and although not noticeable it is thinning and coming out. Will update more on own thread.
Great to see others good reports also.
All the best to all
Lesley xx
User
Thanks Lesley
My hubby going for chemo no 4 tomorrow his hair started to come out when he had chemo 2 so he ended up shaving it off
Keep you all informed on how session 4 goes
Yorkshire lass
User
Hi YS,
I have just read your first post , so sorry that you have found yourself here (on the forum) but glad that you have at least reached out and found us. Those early days are so scary and you feel so alone and terrified. I remember them very vividly.
I see you are on the road know with chemo, ( it's a whole new language to learn) 🤓
The one thing that I would pass on is life doesn't end with a PCa diagnosis it just takes a different path.
BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON |
User
This is one of the most insightful pieces of information, It gave us confidence and food for thought. Thank you.
"The one thing that I would pass on is life doesn't end with a PCa diagnosis it just takes a different path"
User
Update on my hubbys 4th chemo session which he had on Wednesday
Ok on wed & thurs started to feel very weak and drained on the Friday he said it was like someone had inserted a needle and drained all his strength from his body then Saturday and today he's been having the worse pains ever it would hit in one place last for 5to 10 mins then hit in another place he's been taking pain killers which the doctor gave him he says it takes the edge off which makes it a bit bare able also he's been getting breathless but he heard that doxetol can do that to you
So usually by late Monday onwards he starts to feel better again it's just usually the few days after his chemo which is bad for him like we keep saying to each other only another 2 to go he will also be glad to come off the steroids as they have started to bloat him which is also getting him down
Yorkshire lass
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Hi everyone
Update on hubby he had his 3 monthly hormone injection today he felt crap when he went in but by the time he came out he was full of the joys of Spring
We had a good talk with the specialist nurse she explained everything to him about all his bloods he's had done the pains he's been experiencing and his latest PSA count
His blood tests shows kidneys and other things they test for is all showing good his PSA is now down to 0.9 so the chemo and hormone treatment are doing there job the pains he having in joints could be due to the steroids as can cause joint pain
So he feels a lot happier after this hospital visit it's put his mind at rest it's made him a bit stronger now for his last 2 chemo sessions the 5th one is next week
He did say I bet I'm not a Gleason 10 now I bet that's come down
I didn't know what to say I know that will not change what he was diagnosed with is what he will always have but his spirits was that high I couldn't answer
Yorkshire lass
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Yorkshire lass, sometimes it is the things they don't know that keep them so well - what tricks we partners play when we need to!
Great to hear that he is feeling so upbeat - take care of yourself too x
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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Hi Yorkshire lass,
It's great to see your husband is doing well and psa coming down nicely.
His comment "I bet my Gleason score 10 is less now" I think ignorance for him at the moment is bliss. Bob used to make similar sorts of comments and I know he didn't expect me to answer then. It took bob a long time to come to terms with the reality of the progressiveness of the cancer. Maybe now is not that time. He will ask the questions to you/consultant/ or read on Internet when he is good and ready.
Bob just had cycle 4, doing ok. Side effects perhaps not so good but are manageable. Bob psa going up rather than down, a little concerning (updated on my own thread) but consultant says not to worry at this stage.
All the best yorkshire lass, you are doing a fine job supporting your hubby.
Lesley xx
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Hi not been on for a while but just wanted to know how some of you were after chemo had finished
The reason I'm asking is my hubbys had his last cycle in April then 3 weeks after he could stop the steroids
But he's not been active or anything he soon gets out of breath we can't even go for a walk he really gets breathless he has to stop to get his breath on some occasions he can't even speak as he's that short of breath just wondered if anyone after chemo had symptoms of this
Also his feet swell up like balloons he's also got pain when he lifts his arms up to do anything
He got a appointment for a PSA test and then a oncology app next week so will mention this to him and he's booked in for a CT scan in July
I'm just hoping that all this is down to him having chemo as I know it takes a bit of time after to feel a bit better
Yorkshire lass
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hey up
as my nurse said to me your bodies just been bombarded and it needs time to recover, not had as many after effects as your hubby, but am always short of breath somedays more than others, and suffer more now with hot flushs
regards
nidge
run long and prosper
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Hi just a update on hubbys crusade
Last chemo was end of April then had a follow up appointment 6 weeks after with oncologist he was very pleased with how chemo had gone his PSA was right down to 0.3 and the CT scan which was booked for July he said they wasn't any need for him to have it as he said they wouldn't find anything different from the last one he had but for piece of mind we still going for it
Oncologist said I don't expect to see you here for 2 to 3 yrs so he has been referred back to urology where he goes for PSA check every 3 months plus his hormone injections
He has now started back at work after been off for 6 months he's tired when he gets home legs & feet swelled but he feels so much better in mind been back at work he's feeling really good at just getting back on track so fingers crossed
Yorkshire lass
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Lovely news Yorkshire Lass, thanks for the update
Long may it continue
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That's fantastic news, it is so good to read when the treatment works like it should, fingers crossed for good results moving forwards
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Wonderful news! Long may it continue.
Rosy x
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How lovely - enjoy the respite Yorkshire Lass
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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Great news about your OHs treatment! My hubby starting chemo in a couple of weeks hope it's a similar outcome.
Take care
Debbie x
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Well thank you all for the lovely responses
It is good news for him especially as he got a worrying outcome when diagnosed so let's hope it continues for a few more years
Thank you all
Yorkshire lass