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The story so far

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User
Posted 18 Jan 2016 at 21:38

Hi all, my name is Tony, I'm 65, I was involved in a routine Wellman check up due to being 60. My PSA was initially recorded as 10.5 and during my watchful waiting period has fluctuated  8.4 - 9.5 - 7.5.

I considered my options and in October last I chose Brachytherapy as what I considered my best option. I attended The Christie at Manchester in November and I am due back there later this month. Updates will follow

User
Posted 18 Jan 2016 at 21:38

Hi all, my name is Tony, I'm 65, I was involved in a routine Wellman check up due to being 60. My PSA was initially recorded as 10.5 and during my watchful waiting period has fluctuated  8.4 - 9.5 - 7.5.

I considered my options and in October last I chose Brachytherapy as what I considered my best option. I attended The Christie at Manchester in November and I am due back there later this month. Updates will follow

User
Posted 19 Jan 2016 at 18:31

Good to have another man with experience of brachy - welcome :-)

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 05 Dec 2016 at 22:43

That's great news Moonwatcher - PSA still dropping shows the seeds are still doing their work. Good news that your son's mO was so supportive as well.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 17 Feb 2016 at 18:09

Latest update, went to The Christie @ Manchester last Friday, PSA blood test and scan to check the location of the seeds. Called the team leader today, scan indicates the seeds are in exactly the right location. Got my PSA count 3.1 which is below average for a 65 year old and excellent news. Next visit is Feb 2017 - yippee!

User
Posted 28 Feb 2017 at 15:40

Hi Moonwatcher,

Sounds like you are getting good Psa results,I am also going down the Brachytherpy road had mine in September 2016 and have had my first Psa results from my nurse as they canceled my first appointment with the Specialist that i was not to happy about but as the psa has dropped  from 2.19 to 0.81 I will just have to wait for another appointment.

I have not heard of the seeds on a string so will be on the list for when i get the next appointment.I wish you luck on your journey but please keep us all up to date with your results.

 

John.

User
Posted 14 Mar 2017 at 11:10

John
PSA around 0.8 is an excellent reading. The seeds on a string idea is to stop you passing the odd one or two over a period of time.

I have stopped taking Tamsulosin now with no apparent effects.

I have an appointment with the Urology Department next week for a checkup and then expect periodic blood test from then on!

Updates to follow

User
Posted 08 May 2017 at 20:41

Hi All
The good news is that my local General Hospital (Urology Dept) have now discharged me, I am now subject to 6 monthly blood tests, my consultant said there is no reason to come back unless my PSA level goes above 3.5, he did add that that is extremely unlikely

User
Posted 09 May 2017 at 09:41

Hi Moonwatcher

Great news for you I wish you well for the future,I had another blood test last week and will ring my oncology nurse today to see if she can give me the results as my next appointment with my specialist is the end of June,

Good Luck John.

User
Posted 12 Mar 2020 at 21:34

Sorry for not replying earlier!

No side effects at all

 

Edited by member 12 Mar 2020 at 21:35  | Reason: Not specified

User
Posted 19 Apr 2021 at 16:56
Nothing important to report, had my 2nd Covid jab two weeks ago, tender arm for a day, sorted
User
Posted 19 Apr 2021 at 17:45

Nothing important to report is always good news. I welcome a boring meeting with my consultant, an interesting one is the last thing one wants.

Dave

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User
Posted 19 Jan 2016 at 18:31

Good to have another man with experience of brachy - welcome :-)

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 19 Jan 2016 at 19:28

Hello Moonwatcher and welcome

My husband also had Brachytherapy (seed version) in June 2014 and has benefited greatly so I hope you are also as fortunate.
My husband is now 75.
Brachytherapy seem to be offered more and more now by the look of it.

We can't control the winds - but we can adjust our sails
User
Posted 20 Jan 2016 at 21:06

Originally Posted by: Online Community Member

Hello Moonwatcher and welcome

My husband also had Brachytherapy (seed version) in June 2014 and has benefited greatly so I hope you are also as fortunate.
My husband is now 75.
Brachytherapy seem to be offered more and more now by the look of it.

 

Hi Johsan

Thank you for your kind words, I had 58 seeds on a string inserted last November and I go back to The Christie on 29th Jan for my first checkup, I'll post an update soon.

 

User
Posted 21 Jan 2016 at 09:40

Seeds on a string eh The posh version !!

We can't control the winds - but we can adjust our sails
User
Posted 23 Jan 2016 at 10:36

Originally Posted by: Online Community Member

Seeds on a string eh The posh version !!

 

Yes, apparently it's a bit like a Pandora bracelet but a bit smaller (fortunately) LOL

User
Posted 25 Jan 2016 at 19:12

Just an update, my appointment for the 29th has been put back two weeks, no problem except had a hotel booked (no refund) so what the hell, we are going to Manchester for a night out

User
Posted 17 Feb 2016 at 18:09

Latest update, went to The Christie @ Manchester last Friday, PSA blood test and scan to check the location of the seeds. Called the team leader today, scan indicates the seeds are in exactly the right location. Got my PSA count 3.1 which is below average for a 65 year old and excellent news. Next visit is Feb 2017 - yippee!

User
Posted 17 Feb 2016 at 18:16

Brilliant news - enjoy the rest of the year!!!!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 17 Feb 2016 at 20:56

The cancer cells will continue to be affected by the radioactive seeds so hopefully this will result in further PSA reduction. Do keep us advised on this.

Barry
User
Posted 18 Feb 2016 at 12:52

Yes, I go back to The Christie in 12 months, as an interim action I am supposed to go to my GP in six months for a PSA update.

When I was referred from my local hospital by my specialist nurse he said to keep in touch, so my six month appointment has been transferred back to the nurse in Barrow, so they get some feedback, he said they lose contact and it would be nice see him again

Edited by member 25 Feb 2016 at 19:44  | Reason: Not specified

User
Posted 18 Feb 2016 at 13:08

Excellent MW. As Barry says, the radioavtive seeds are continuing to work so PSA may well come down a bit more.
John got his PSA result yesterday (we cheekily asked for a three month update and as we were trying to book a holiday it helped us make a decision) and his PSA was down again to 0.2 from 0.3 three months ago.

We don't have a nurse just hospital visits which are every six months but I fully expect that to change to once a year after our next appointment, with interim PSA checks.

So glad your "posh pandora string" is working as it should

We can't control the winds - but we can adjust our sails
User
Posted 20 Jun 2016 at 14:51

Hi All, latest update, had a blood test last Wednesday, just had the results from my GP. PSA level is 1.43
Mrs O' is at work at the moment, can't wait to give her the good news

User
Posted 20 Jun 2016 at 15:04

Whoopee MW. Well done. Great feeling isn't it !!

We can't control the winds - but we can adjust our sails
User
Posted 05 Dec 2016 at 21:25

Hi All, latest update, had a blood test 3 weeks ago, just had the results from my GP. PSA level is 0.99, will probably attending The Christie in February

User
Posted 05 Dec 2016 at 21:47

Forgot to mention, we had a family gathering, my wife, two sons and daughter, we discussed my situation and I impressed on the boys the importance of early monitoring, 

Even though they are 37, 35 I told them it's never to early for a blood test. The younger is a medic in the army and he returned to barracks, told his MO and straight away PSA test and he's fine and will undergo future tests. I will have to get on the case of my elder son via his wife.

Also need to lean on my daughter's husband

User
Posted 05 Dec 2016 at 22:43

That's great news Moonwatcher - PSA still dropping shows the seeds are still doing their work. Good news that your son's mO was so supportive as well.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 27 Feb 2017 at 12:47

I went to The Christie last week, the consultant is highly delighted with my PSA (now 0.87) and after a two hour drive and a five minute consultation was told I am discharged and no longer required to attend.
I will be handed back to my local team for periodic blood tests and was told that I can progresivley reduce my Tamsulosin down to zero.

User
Posted 27 Feb 2017 at 12:55

Originally Posted by: Online Community Member

That's great news Moonwatcher - PSA still dropping shows the seeds are still doing their work. Good news that your son's mO was so supportive as well.

Lyn I have sent you a PM but your inbox is full, can you empty it?

User
Posted 27 Feb 2017 at 18:03

Many congratulations, Moon watcher.

I'm also following the Brachy route : had 55 seeds implanted at The Christie on 31st Jan this year after receiving the 4th, and final, 4 week slow release Zoladex injection on 18th Dec 2016. This was necessary to reduce the size of my prostate from 70cc to 40cc.

Your news has encouraged me to believe that I too will be able to post similar positive news in about a years time.

Regards, Tom 

 
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