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Just been diagnosed, scared as hell

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User
Posted 10 Aug 2016 at 17:34

Hi Paul
Good to hear your bone scans are clear 👍🏽 hope all goes well for your surgery

Viv x

The only time you should look back is to see how far you have come
User
Posted 10 Aug 2016 at 18:14
P

I have heard of surgeons who use that method, sounds the way to go. Enjoy your normal activities in the next few weeks and I hope all goes well.

Thanks Chris

Edited by member 10 Aug 2016 at 18:15  | Reason: Not specified

User
Posted 30 Aug 2016 at 08:00

Hi farfar888
I too have been diagnosed with prostrate cancer, but i live in Spain and have to use an interpreter to be able to communicate with my doctors. The bottom line is I have had all the procedures from the DRE, ultrasound, biopsy and then MRI scan and my doctor has told me that the good news is that the cancer can be clearly seen in the MRI scan and is fully contained within the prostrate, he spoke of the treatment option but said that at my relative young age (65) and fitness level he recommended surgery as it offered the best recovery option.
Yes it is scary and for me difficult to be able to chat to anybody else about my condition, so websites like this are so helpful.
I had my appointment with the anesthetist yesterday, and it seem that my operation could be anytime in the next few weeks, so I am getting more apprehensive each day but realise that I have made the right decision (despite any potential after op problems) for me to be able to enjoy the rest of my life. However it is the thought of having the catheter fitted for some time and then the possibility of incontinence and erectile dysfunction that seem to be scaring me the most and not the cancer as i have complete faith in my surgeons ability.
All my treatment has happened since April this year so over here it all happens very quickly so I have not really had much chance to chat to others about how i am feeling
It sound like you have a good surgeon so I wish you well and hope all goes well with you and you can continue your life.
HappyH

User
Posted 30 Aug 2016 at 19:26

Hi Happy H,

Sorry you have joined the club nobody wants to be in, I am now awaiting surgery on Sept 29th seems a long way off I just want to get it over with, I think you have started a post on the end of another it might be best to start your own conversation you will get more replies, this is a great site it helped me a lot when I was first diagnosed there are a lot of people with experience of the treatments available and I am sure you will hear from them soon,

best wishes

Paul

User
Posted 31 Aug 2016 at 10:15

Hi all,

Just had a letter from the hospital confirming what was discussed with the surgeon last Wednesday, the reason there were only 2 options surgery or Rt was due to a large prostate, 70cc, there is another option, Holmium laser enucleation of prostate followed by RT, has anybody heard of this? the surgeon did not mention this at the meeting, still means RT which for me is 50 miles away, I think I am going to stick with the surgery option, all being well on Sept 29th

best wishes

Paul


User
Posted 31 Aug 2016 at 13:14

Hi.

Same with me - Gleason 3+3 at diagnosis, localised & contained but prostate was over 70cc and so options somewhat reduced.

My Oncologist recommended three treatments: (in order):

1 Active Surveillance

2 Radical Prostatectomy.

3 Stereotactic radiotherapy with cyberknife after three months of hormones to reduce prostate to 60cc

I had the operation.

Other treatments he considered and discussed with me:

Image guided intensity modulated radiotherapy - 4 week course (20 fractions) (alternative to cyberknife).

Brachytherapy - the chances of urinary retention following brachytherapy is high with a large prostate - so not recommended.

HIFU and cryotherapy - remained experimental options.

 

Good luck with whatever you do... which sounds like the operation at the moment.

KRO...

User
Posted 31 Aug 2016 at 19:24

Hi Kro,

How was the surgery? what was it open or robotic, I am in the mindset of wanting the desease out of my body,

Paul

User
Posted 31 Aug 2016 at 20:37

I have answered your HoLEP question on your other thread

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 01 Sep 2016 at 08:34

Originally Posted by: Online Community Member

Hi Kro,

How was the surgery? what was it open or robotic, I am in the mindset of wanting the desease out of my body,

Paul

 

Hi again... I have answered on your other thread too... Yeah - I wanted it out too. I had open surgery and it really was fine... as with any surgery you wake up groggy and obviously in some pain - but that is all dealt with and I had a self administered morphine line.

They will take good care of you - it's what they do!

Good luck..

KRO..

User
Posted 13 Sep 2016 at 08:00

Hi all, OP getting near now, pre-op on Monday OP on the 29th, getting nervous now,

Paul

User
Posted 13 Sep 2016 at 11:19

Your decision is made Paul and you know we will all be here on the sidelines wishing you well for the big day and afterwards

****

We can't control the winds - but we can adjust our sails
User
Posted 13 Sep 2016 at 12:02

I had an up to date MRI on 24th August, I phoned the surgeons sec today as I had not heard anything, she said the surgeon will look at it and contact me if they cannot go ahead, I presume he must have seen it by now,

best wishes to you all

Paul

User
Posted 10 Oct 2016 at 19:59
My husband was recently confirmed, PA 8, scores 4+3 and 3+4. Score 7 on scale. Much worse on ...think was left....but bone scan clear and mri shows no spread. The scariest thing of all is making best choice for treatment. We have so much information and I am a retired registered nurse which instead of making it easier to make a decision, is making it worse.

My husband wants the cancer gone obviously ( we have a son of 17) but he is concerned about possible urinary incontinence primarily....and then the other side effects.

It is awfully hard to make the right decision so I can understand how you are feeling. We too are new to this site but hope it helps. Good luck with your treatment journey

User
Posted 17 Oct 2016 at 19:03

Paul
hope your operation went well, mine was successful I go back to the specialist on the 9 November for the full results of the prostate biopsy, have had all my staples out (around 20 yes a large cut around five inches in the end) and the catheter was removed today, however this was my biggest nightmare and getting the thing out was a relief even though I am suffering incontinence at present I hope this will pass.
Having the prostate removal was still the most sensible option for me and am sure it is for you.
Please keep us informed how you are progressing
all the best
HappyH

User
Posted 17 Oct 2016 at 22:20

My Op was also succesfull with negative margins, catheter comes out on the 24th cant wait it is a right pain, then will see consultant 3 weeks after that, had blood in my bag last night which was a shock but all clear now, will let you know all results as soon as I have them,

Paul

 
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