I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

Helping dad

Email this conversation Print this conversation
User
Posted 26 Jul 2016 at 22:45
Hi, Dads been undergoing a clinical trail (aberitone) for T4 PC, the radiation really took it out of him, and the drugs are messing up his thought process. Now he wants to end the trail 6 months early, he told me today he's also started urinating blood. Him and mum have been going to appointments alone, but he has been called back to see the consultant on wednesday 3rd aug, I really feel like I should be there with them as they both leave the hosptial confused and scared. Me and my brother are getting very sketchy info. I understand dad not wanting me to listen to it all, but I need to know he's understood whats happening! I have no idea who to ask, so Im hoping anyone can help on what on earth Im meant to do for the best. Katie
User
Posted 27 Jul 2016 at 08:51

Hello Katie and Welcome

Sorry that you have to be here but if your parents don't want you in the room to hear what's being said I'm not sure there is anything you can do apart from be supportive.

Have you asked whether you or your brother can be in the room on the basis that an extra pair of ears can take in more information. Could you ask your mum to make notes of what is said?

It's very difficult for you. Perhaps other members will have suggestions for you

Best Wishes

Sandra

We can't control the winds - but we can adjust our sails
User
Posted 27 Jul 2016 at 09:05

Find out who dad's trial nurse and / or nurse specialist is and then perhaps give him or her a ring. S/he may be able to persuade dad to give consent for all letters and results to be copied to you (but they can only do this with your dad's permission).

I am not sure whether you are saying that dad has lost some mental capacity? If so, it is rather easier for you to insist on being at the appointment. If you just meant that he is stressed and sad and not doing what you think is best, is he actually refusing to let you go with him or is it just that they have got into a habit of going without you?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

 
Forum Jump  
Email this conversation Print this conversation

Similar Topics

Helping dad (and mum ) by Clairejen5657
in Supporting someone with prostate cancer

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.




MenuTop ▲
©2024 Prostate Cancer UK