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User
Posted 23 Jan 2024 at 12:25

Great news

Dave

User
Posted 23 Jan 2024 at 12:39
Nice news Leila. We all understand the test anxiety. It’s awful. I too am now an 8 year survivor with T4 diagnosis. I get my jab in a fortnight which is exactly 3 yrs on HT , and my blood test also which is showing signs of turning 😒. I think a low blood count is not too serious and can be helped with diet and medications hopefully. Sending love to both x
User
Posted 23 Jan 2024 at 13:54

Leila, great news on the PSA . Take care.

Thanks Chris 

User
Posted 23 Jan 2024 at 17:49

Thank you so much for the lovely messages and comments. This group has become an important part of our PCa world. David is planning to celebrate watching the footies on his computer and having a bottle of beer. I am looking  at planning a long awaited holiday now he’s in the right frame of mind. 

Love and heartfelt thanks to you lovely lads.

Leila xx

User
Posted 23 Jan 2024 at 18:46

You’re right Leila - happy days indeed

 

Edited by member 23 Jan 2024 at 18:48  | Reason: Not specified

User
Posted 23 Jan 2024 at 19:17

πŸ‘Always good to see that less than sign, can't get better than that.
Get that holiday sorted and enjoy it.

Cheers
Bill

Edited by member 24 Jan 2024 at 18:46  | Reason: Not specified

User
Posted 24 Jan 2024 at 01:14
Yay! πŸŽ‰πŸ·β˜•

(Obvs the glass of wine is for you & the cup of tea is for me) xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 24 Jan 2024 at 08:32

Great news about the PSA, so pleased for you both. I just hope one day soon I will be able t9 join the ’undetectable’ club🀞

All the best for the future,

Derek

User
Posted 02 Mar 2024 at 14:52

Have any of you lovely lads had really sore skin outbreaks, David’s groin area is red raw, he’s really suffering ( so am I πŸ™) with the side effects. He’s had steroid cream, it helps but not much. He’s wondering if it might be a side effects of the Prostap ? Any ideas suggestions. It’s so bad he can’t even do his workout in our home gym.
Otherwise he’s doing well, energy levels low, but weather doesn’t help, roll on spring, we have lots of gardening plans. 

Thanks

Leila 

User
Posted 02 Mar 2024 at 15:19

This thread is relevant.

https://community.prostatecanceruk.org/posts/t28059-Hormone-Treatment-Skin-Rash

I don't know if they found a solution.

Dave

User
Posted 02 Mar 2024 at 16:39

I get heat spots in my groin when I sweat a lot, usually after walking or cycling. This only started after my RT so put it down to that. I use a zero base cream which I was given during RT for my bum and that seems to help.

User
Posted 04 Mar 2024 at 11:58

Originally Posted by: Online Community Member

Have any of you lovely lads had really sore skin outbreaks, David’s groin area is red raw, he’s really suffering ( so am I πŸ™) with the side effects. He’s had steroid cream, it helps but not much. He’s wondering if it might be a side effects of the Prostap ? Any ideas suggestions. It’s so bad he can’t even do his workout in our home gym.
Otherwise he’s doing well, energy levels low, but weather doesn’t help, roll on spring, we have lots of gardening plans. 

Thanks

Leila 

 

Hi Leila, I’ve not had any specific area of skin problems but my skin is definitely much thinner and drier than before HT. I’ve only got to knock myself and it cuts then the missus moans as i get blood on the bed covers…. Ive been busy DiYing and I’m now covered in plasters so i dont get blood on anything….

Might have to try something in the bath to hydrate the skin a little.

Cheers

Phil

User
Posted 17 Apr 2024 at 12:44

Just received David’s PSA results, < 0.1 so we are delighted. We have just been discussing the strain of waiting for the results, it really doesn’t get any easier. 
We are now  planning an evening out with friends ,to celebrate, and then a season of celebrations for our anniversary and  my birthday.

Looking forward to a lovely summer, less rain and more sunshine. 

This bl#%dy disease takes its toll, but we ain’t giving in, we are both staying strong and positive, well most of the time.

Leila. 

 

 

User
Posted 17 Apr 2024 at 13:38
Really happy for you Leila xxx
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 17 Apr 2024 at 14:26

πŸ‘

Dave

User
Posted 17 Apr 2024 at 16:35

That’s great Leila. It’s not fun waiting for results … I’m still on 4 weekly checks/consultations and it drives me mad. Soo looking forward to getting a bigger break… 

Hope you have a great time celebrating this result, your anniversary and birthday as well. Enjoy every day πŸ‘

Summers coming β˜€οΈ, won’t be long and we’ll be enjoying those long evenings in the garden with a little tipple 😁… 

Phil

User
Posted 17 Apr 2024 at 17:45

Thanks Phil, By the time our surgery had mucked us about, and we had to call them three times, we were both on edge, then we got the results,phew, stress release.
I hope you get a break from all the checks and consultations, that sounds quite stressful, just what you don’t need, but I suppose you are being cared for and monitored, and that's good. 
We count every day as a good one, and enjoy, yes, a good summer, gardening followed by the odd glass of vino in the garden. 

Take care.

Leila

 

User
Posted 17 Apr 2024 at 19:03

Lelia, great result,long may it continue. 

Thanks Chris 

User
Posted 17 Apr 2024 at 19:20

Hi Leila,

That's great news!  Hope you have a great Summer.

Best wishes,

JedSee.

User
Posted 17 Apr 2024 at 23:18

Great news Leila I’ve just joined the <0.1 club and it’s a great feeling.

Long May it continue for us all🀞🀞🀞

all the best,

Derek

 
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