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LDR Brachytherapy after HT

User
Posted 12 Nov 2018 at 16:04
So sorry for you loss Tom

barbara x
User
Posted 13 Nov 2018 at 16:14
Condolences on your loss, so sad for family and friends.
Barry
User
Posted 30 Nov 2018 at 20:31

Saw the Urologist today and got the scan results. 


Have drawn a "long" and a "short"straw!


Bone scan is clear (thank goodness), but the MRI scan has revealed a suspicious area in the prostate!


Suggested that only a "guided" biopsy can reveal with some certainty how serious this could be!


Now waiting for an appointment to discuss this with the surgeon!


HD Brachy and/or HT might be needed


What fun it is "Living with Prostate Cancer"


Regards Tom


       

User
Posted 01 Dec 2018 at 11:20

Hi Tom,


Sorry to here you are back for more possible treatment but the bone scan being clear is a good start so they can give you a good checkup on just the prostate part


I expect that being so close to Christmas you may have a wait till the New Year and that does not help you thinking about it,If like me if there's a problem i want to get in there.But stick in there mate you have a few of us rooting for you.I am due for my six monthly blood test mid December for a meeting on January the 8th so the thinking process is setting off again.


I wish you all the luck with your next meeting and hope its all good news.


Regards John.

Edited by member 01 Dec 2018 at 11:22  | Reason: Not specified

User
Posted 01 Dec 2018 at 15:10

Many thanks, John for your best wishes for the future. As you say better to find that the problem is confined to the prostate. Just have to be patient and maybe wait until the new year before further investigation can ascertain whether the suspect area is benign or not!


Good luck with your next check up and best wishes for Christmas


ps. Apologies for the delay but I'd like to thank all fellow members for their messages of condolences following the death of my dear younger brother.


I still cannot believe he's gone!


Regards Tom    

User
Posted 12 Mar 2019 at 13:39

Mar 12th 2019 :- Received the results of a Template Biopsy performed on 18th Feb 2019 and unfortunately it confirms the presence of residual cancer cells in the left half of my prostate, hence the elevated PSA! So salvage treatment will be required; probably HDR Brachy, but yet to decide when I meet the Urologist.


What a roller coaster ride I am on, but the consultant surgeon I saw today was very optimistic and suggested I had many years ahead of me.  


Tom      

User
Posted 12 Mar 2019 at 14:14

Hi Tom,


Fingers crossed for you looks like the consultant has your back,keep fighting mate i am sure you can beat it.


regards John.

User
Posted 12 Mar 2019 at 14:22

Many thanks, John for your good wishes. All I can do is stay positive and not let this nasty disease have the last laugh. Still got too much living to do. I have a wonderful loving wife; four children and eight grandchildren!. The 8th one arrived on Christmas day!!


Tom    

User
Posted 29 May 2019 at 16:32

The next stage of my journey has now been established!


I have decided to accept the recommendation of the hospital medical team that further retreatment with HDR Brachytherapy could lead to urinary tract symptoms and significantly worse lower urinary tract symptoms!


I cannot therefore hope for a "cure" from this bloody disease and have to resign myself to going back on Active Surveillance until such time as Hormone treatment is required!!


At least I have got "old age" on my side!!


Tom     

User
Posted 18 Dec 2020 at 11:18

Hello fellow travellers ... time for an update!!


15th July 2019 : PSA 5.7 (back down from 6.3) Wow, the first reversal!! 


25th Nov 2019 : PSA 6.4 - Steady as she goes!   


5th Mar 2020 : PSA 7.1 


22nd May 2020 - Telephone conversation with Onco - No alarm bells yet? Another PSA and appointment in Nov 2020


14th Sept 2020 - PSA 7.9 - If goes above 10 will have further CT and Bone scans.


18th Dec 2020 - PSA 8.6 - Still increasing!


To summarise my journey ... I'm certain that the treatment I have received will increase my life span but it has left me slightly incontinent (need to wear Tena Pads) and suffer from Dry or Retrograde Ejaculation and ED problems but at my age it's not a big issue?!  

User
Posted 18 Dec 2020 at 11:34

Hi Tom,


Glad to see you are still fighting the good fights think you will need it this time of year with all your Grandchildren at Christmas.Fingers crossed for you in 2021.


Have a good Christmas with your wonderful family.


Regards John & Pat.

User
Posted 18 Dec 2020 at 11:48

Many thanks John... I have a loving wife standing by my side (and somtimes pushing me from behind!) which is a great source of encouragement!!


Covid restrictions are obviously going to have an impact this Christmas regards meeting up with family members so lets look forward to a happier times next year.


Hope yourself and Pat have a great Christmas and New Year


Onwards and Upwards


Regards Tom and Colette    

User
Posted 10 Apr 2021 at 15:27

Fellow travellers .. Time for an update on my roller coaster journey and its bad news I'm afraid!!


23rd Jan 2021 - 1st Covid vaccination


2nd Mar 2021 - PSA 17.0!


24th Mar 2021 - PSA 24.4!!


26th Mar 2021 - Hospital Bone Scan


31st Mar 2021 - Hospital CT Scan


9th Apr 2021 - Hospital appointment confirms cancer cells starting to spread so will be on Hormone treatment for the forseeable future!!


10th Apr 2021 - 2nd Covid vaccination


Very dissappointing outcome but must try and stay positive!!!

User
Posted 11 Apr 2021 at 12:06

Hi Tom,


So sorry to hear your latest setback you have had a rollercoaster of a ride over years but i think it has made you a lot stronger to continue the fight with the professionals guiding you.I think we had our brachytherapy around the same time when not many of the members on here had taken that option so it was difficult to make a decision on what option to take between brachytherapy and Robotic surgery.


Keep us up to date on the next treatments Tom.


Regards to you and your wife love John & Pat xx

User
Posted 11 Apr 2021 at 13:37
Hi John

Many thanks for your kind reply... it's very comforting and helps me to mainrain a positve attitude.

Yes we both had the Brachytherapy procedure at roughly the same time and your successful outcome (PSA down to 1) was an early indication for me that all was not well in my case!

Just started on Bicalutamide tablets and will have another hospital appointment in 2 weeks time.

I will certainly keep adding to my story for the benefit of all other fellow travellers!

Regards to you and your wife love Tom and Colette XXX
User
Posted 23 Jun 2021 at 14:48

 


Back again fellow travellers:


Good news for a change ....my latest PSA is now down to 0.56 and my Testosterone level is down to 0.60 after :


BICALUTAMIDE for 4 weeks from 10th April


ZOLADEX 3 month implant from 6th May.... probably for life or while it still works


ENZALUTAMIDE from 7th May


Good luck to every one else


Regards Tom              

User
Posted 31 Aug 2021 at 12:20

Further good news ...my PSA is now down to 0.10! So it's carry on taking the Enzalutamide tablets and 3 monthly Zolazex implants and cope with the side effects as best I can!


My Oncologist is pleased with the situation although obviously not the failure of the original LDR Brachytherapy but we are where we are and must stay positive!


They are confident that I have many years left yet so fingers crossed!


Regards Tom


 

User
Posted 31 Aug 2021 at 14:05

Hi Tom,


Good to hear you are getting some better results and Psa is coming down not sure what you are on or how it works. Keep in touch with the details as it helps everybody making decisions that at the time are hard make.


Regards John.

User
Posted 06 Dec 2021 at 16:59
3rd Dec 2021....Hi everybody ...time for an update:
Attended regular appointment at the hospital and PSA now <0.1
All other parameters acceptable so it's carry on with ZOLADEX and ENZALUTAMIDE until the next appointment in 3 months time
Regarda Tom
User
Posted 07 Dec 2021 at 11:53

Hi Tom,


Great results long may they last, best Christmas present.


John.

 
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