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likely to have PC

User
Posted 12 Feb 2017 at 20:38

 

Hi all,

I've just registered so I am new here. I need your help and if possible, I'm ready to help others aswell.

Sorry for my English, I'm Spanish and although I speak English I'm afraid technical words are going to be difficult for me to translate, so I beg your pardon for my mistakes. 

My husband, 68, is very likely to have PC according to the results of a Multiparametrical Magnetic Resonance. I'll try to transcribe it for you:

 

"Multiparametrical Magnetic Resonance is done by 3Teslas with high pottential  resolution in T2, diffussion with high B values. The prostate is enlarged with and has diameters  “anteroposterior and transverse 4’2 and 5´8. “cráneocaudal diameter  6’1.

At the posterior peripheric zone of  the base and medium thirth a hipointense lesion is detected in T2 with remarkable restriction of the diffusion  and remarkable increase of relief. Size 2’2 cm, transverse diameter x 0’9 diameter  “anteroposterior cráneocaudal”

PI-RADS 5

High possibility cancer clinically significative.

The lesion touches highly the capsule.It is Puffed(I didn’t know how to translate it). And it’s probably that there is tumoral affectation  extraprostatic minimum.

Seminal vesicles  and neurovascular  “paquete” (package?) have normal characteristics . Pelvic ademopatias significative are not identified.

Sorry for this stuff. I’m sweating! I’m not sure you will catch everything as this is technical English.

 

He had had two previous negative biopsies. His PSA right now is 4.2. It has been fluctuating during the ten last years. It has been much higher than now.

He has no problems or symthoms.

 

Can someone tell me something, please? I’m afraid it has gone out of his prostate.

 

By Tuesday he’s seeing his urologist in Madrid. We are taking the test results to him. I’m really scared.

Thanks in advance and good evening from Spain.

 

User
Posted 27 Feb 2017 at 08:07

You are going to drive yourself crazy going round and round like this. What is done is done and cannot be changed no matter how hard you think of it.

Paco's doctors have done nothing wrong. He has a slightly raised PSA so they did a biopsy. He has had two clear biopsies. His PSA goes down as well as up, which is usually a sign of infection not cancer. Medics can't do endless tests on everyone - they have to make decisions based on risk and indicators and there was nothing about Paco's stats that would have suggested he needed further investigation.

Edited by member 27 Feb 2017 at 08:08  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 21 Jun 2017 at 09:58

Just updating OH latest news.

We saw the uro yesterday.
He said everything is OK as PSA level is 0,04.

Full continent.

Next control by November.

He recommended Cialis 5mg. One pil a day.

When going to have sex, 20mg.

Wish all the best to all of you. May you enjoy summer. We all deserve it.

I'm grateful to this site and people on here that have made our journey easier.
Lola

User
Posted 10 Dec 2017 at 00:15
Feliz Navidad, Lola. One of the very few Spanish phrases I know.

Ulsterman

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User
Posted 12 Feb 2017 at 21:37

Hard to say based on the translation as it loses some of the inference and context but it seems from what you have given us that his pelvic lymph nodes, seminal vesicles and nerve bundles (the paquete) look clear. It could be that they have seen minimal extra prostatic extension (it is just starting to escape the gland) or they could be saying that as a minimum, it has escaped the gland.

Certainly the scan is highly indicative of cancer but remember that the only way for it to be diagnosed for certain is by biopsy - hopefully they will arrange that on Tuesday. No point being scared - at age 68 his PSA is only a little higher than would be considered normal so if it is cancer, there is good reason to hope that it will be treatable.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 12 Feb 2017 at 21:45

I really appreciate your answer. It helps. Thanks a lot.

You know, I can't hel pbeing in panic.

Thanks again.

User
Posted 12 Feb 2017 at 22:42

Actually even in the Spanish text I can't either tell whether they have seen minimal extraprostatic extension or that as a minimum, it has escaped the gland. It's not clear to me.
I have read about your husband and father in law. I'm happy that everything is going right now.
Thanks agan.

User
Posted 12 Feb 2017 at 22:47

I really appreciate your answer. It helps. Thanks a lot.

You know, I can't hel pbeing in panic.

Thanks again.

User
Posted 12 Feb 2017 at 22:54

My father in law died - my father and husband are doing fine :-/

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 13 Feb 2017 at 08:15

Sorry for the loss of your father in law, but happy to read your dad and husband are doing well.

User
Posted 13 Feb 2017 at 08:24

Lola,

Your English is excellent, no need for any apology. I wish my Spanish was as good. However, I do know the most important Spanish word of all - Cerveza.

Don't panic. Even if you get the worst news when you go to Madrid there is still much that can be done to extend and improve your husband's quality of life. Click on my name and have a look at my profile, I was diagnosed with advanced prostate cancer over 3.5 years ago and I'm still here and enjoying life and Cerveza.

Post more when you've been to Madrid and we will all try to help you.

David

Edited by member 13 Feb 2017 at 08:44  | Reason: Not specified

User
Posted 13 Feb 2017 at 08:35
Thanks a lot for your answer. I hope my husband will be as well as you and continues to be as happy as you seem to be.

It's helpful when somebody is aware of your sorrows and say something like you said above.

Trying to take it easy ;) Cerveza will be the best and necessary word of you come to Spain.

Thanks again. Doing the arrangements for the trip right now. Long ride to Madrid.

Big hug.

User
Posted 13 Feb 2017 at 23:18

I am already in Madrid. Tomorrow at 5 o'clock the urologist is seeing my husband . I hope it doesn't take long time for the biopsy. I am really scared about the results.

Today it's sad and funny to remember that happy moment when we first went to him and he said " I don't think it is necessary to do the resonance since his PSA has not raised and two previous biopsies have been negative, but it's OK, I'll sign the prescription for you.;"

(I must say we have a " private security/insurance/ or whatever it may be called in English, I don't know, sorry).

At this very moment I'm wondering why his previous urologist in our city made my hub undergo two biopsies but no resonance before or after those biopsies . And I also wonder why none of the samples showed there is a tumor, according to the resonance this new doctor prescribed.

Hope I can sleep.

Good night and sorry for my English.

User
Posted 14 Feb 2017 at 07:54

My husband is still sleeping. He is able to sleep although he's seeing the uro at 5 o'clock. We'll see what he says about his resonance showing an area likely to be Pca. For sure my husband will have his third biopsy, this time being aware that there " something" in his prostate according to the image..

Sorry if I am being boring to you or repetitive but I need to talk about it.

Our life used to be nice, surrounded by our children and grandchildren. I am afraid it is going to change into a worried and sad life.

Thirty some years ago, at the age of 35, he had one kidney removed as he had cancer. It was not extended and we have happily forgotten about it
Now, after so many years, panic is again a part of our life.

I am afraid to not be able to pretend I am not in panic in the presence of him. I am psychologically weak.

Best wishes to all of you who are suffering because of this stuff

User
Posted 14 Feb 2017 at 08:27

Morning Lola.
You are no more "psychologically weak" than the rest of us. Cancer is a HUGE and frightening word and causes a lot of us to panic initially.,

It's the not knowing that is hard to take. Once a confirmation of cancer is made and treatment offers decided on you will probably find that you settle into a new "normal".

It's true that life is never the same after the diagnosis, even for those who have non aggressive cancers and are able to go on the Active Surveillance treatment because that becomes their new normal.

We are all different but believe me when I say that we do all understand. You are not being boring or repetitive, you are being a
very worried wife whose husband prefers not to talk openly about his possible cancer.

Perhaps he thinks he is protecting you by not opening up old wounds. Our men can sometimes be very obtuse and I often wonder if they really know us, even after many years of being together.

You don't have to pretend with us at any rate. Panic away on here!!

Best Wishes and good luck to you both

Sandra

****

Edited by member 14 Feb 2017 at 17:41  | Reason: Not specified

We can't control the winds - but we can adjust our sails
User
Posted 14 Feb 2017 at 08:46

Thank a lot for your support, Sandra.

I've promised to myself to be strong in case the biopsy he's supposed to be having after the uro will see the resonance of his prostate brings bad news.

Crossing my fingers.

Seven hours left to see the doctor.!!

Best regards and thankfulness for your nice post.

User
Posted 14 Feb 2017 at 18:20

Back from the uro.

Honestly, deep inside me there was a little hope to listen it wasn't that bad. But he didn't say much more than the mp MRI report: the lesion is highly likely to be a PC.

I asked him about "minimum extraprostatic affectation" as referred on mp MRI . He says yes, maybe,. But we need to get further information from biopsy.

I am devastated. We still don't have an appointment for his biopsy . This period is going to be unbearable for us, despite hubby pretends that nothing serious is happening. He is somehow a kind of hero. His behavior when he had his left kidney removed at age of 35 was amazing. He had a kidney C

He was supporting me instead of me supporting him. I am ashamed of myself and proud of him.

In short, life has suddenly changed.

His PSA is 4.2 and has no symptoms of prostate disease, but cancer seems to be stuck on him.

Two previous negative biopsies.

In case there is an extraprostatic lesion, do you thing it is treatable?

No affectation on vesicles or nerves and no significative adenopathy .

I am as sad, anxious and terrified that I can't hardly write.

Best to all of you.

Lola

User
Posted 14 Feb 2017 at 20:32

Lola,

You are going to have to try really hard to calm down. You risk making yourself ill with worry and that is bound to affect your husband as well. You both need to have as positive an outlook as possible in order to help you cope with Prostate cancer and the potential treatments.

There is every possibility that if your husband does have Prostate cancer that it may be curable and even if it isn't curable it can be treated so as to give your husband as long a life as possible. You won't know whether he has Prostate cancer until the biopsy is done. Remember, I was diagnosed 3.5 years ago with advanced prostate cancer. That means it isn't curable, it will kill me. However, I'm still here, I've enjoyed the last 3.5 years and I'm going to enjoy whatever further time I have left.

Now take a deep breath and another and another and try to relax. Say "I refuse to live in fear of Prostate cancer, I refuse to allow Prostate cancer to blight my life". You can do it. Take heart, go forward with hope, banish fear.

I wish you well.

David

User
Posted 14 Feb 2017 at 21:14

The funny thing is that he has survived cancer before and probably feels quite calm because this is not a new situation to him. Kidney cancer is usually much more aggressive than prostate cancer so hold on to that thought - he beat it before and will beat it again.

Even if he does have some extra prostatic extension, he may still be suitable for surgery or radiotherapy, both of which are curative treatments. If the doctor and your report both say the lymph nodes look clear then these are good signs as well.

Edited by member 14 Feb 2017 at 21:21  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 14 Feb 2017 at 22:52

David, Lyn, you are amazing. You can't imagine how it helps knowing that you are spending part of your time to give some relief and comfort to a foreign woman who you know nothing about. I appreciate it to the button of my soul..

Don't fear for me. This time I am thirty years older and, moreover, I have been under psychiatric treatment for years as I tended to be obsessive and extremely paranoid about my family sicknesses. At the minimum trouble I lost control. Now, thanks to my psychiatrist and experience in dealing with my emotions, I am capable to hide anxiety or suffering so as not to harm my family.

I promise I will be strong enough to behave like a normal person, I mean, supporting N husband

User
Posted 14 Feb 2017 at 23:03

Sorry, my post was sent before being finished by accident.

I just wanted to thank you for your support. it would be still harder for me going through all this without somebody to listen to me, to give advice and to say that my husband's problem is likely to be solved.

Good night!

User
Posted 15 Feb 2017 at 07:59

Lola,

You are welcome. We will stand with you and support you. We get something out of doing so as well. There's an old English language saying:

"It is better to give than to receive".

David

User
Posted 15 Feb 2017 at 08:05

Originally Posted by: Online Community Member

to give some relief and comfort to a foreign woman who you know nothing about

Ah Lola, you are Spanish, after GB, my favourite country in the whole world is Spain. You come from La Coruña. Galicia, one of my most favourite parts of Spain, the best seafood in the whole world and the Albarino grape, heaven on earth.

User
Posted 15 Feb 2017 at 08:13

I wish we could enjoy having Albarino and seafood happily and in good Heath together.

User
Posted 26 Feb 2017 at 10:42

Hi there from Spain.

We are new in this journey, still don't know what it's going to be like. Appointed for his third biopsy on March 7th, this time having been detected a lesion by MRI.

I've a question. When is HT or RT or prostate removing indicated?

I read about all these resources being used and I'm confused.

I wish the best to all of you.

Enjoy the sunday.

Lola.

User
Posted 26 Feb 2017 at 12:42
Hi Lola

All the very best and welcome.

Although I have not replied before I have been following your postings.

To answer your question. .

Prepare for your meeting on 7th with a few basic questions.

Only when you have a full and complete analysis of your husbands diagnosis can you go to the next stage.

You don't need to make any quick decision yourselves. We are all here to guide and support.

There are links of this site to more information and this is

Our nhs .. National Health Service info.

http://www.nhs.uk/Conditions/Cancer-of-the-prostate/Pages/Treatment.aspx

At 68 and assuming he is otherwise fit and healthy. .numerous options will be discussed. Your English is fine. However there should be Spanish general information sheets on many worldwide sites.

Enjoy and relax in the meantime. . I know it can be difficult. . However it's taken me many years to realise .. worry only saps energy today that you may need for tommorrow.

Best wishes

Gordon

User
Posted 27 Feb 2017 at 07:20

Thaks for your reply.

I know that we all, members on this site, have sometime felt anxious or continue to be. In Spain we say "Fear is free". We mean, we can't help feeling scared.

Paco is healthy, yes, despite having suffered of arrhythmia five years ago, he's strong and works hard in our garden. Never tired or in pain. And he doesnt's seem to be extremely worried about his biopsy, Maybe deep inside he is, but he doesn't show his worries. I am feeling poorly. I'm coming on this site all day long and becoming happy when I see some of you are getting on well.

On the one hand, I can't wait for the biopsy to be done, but on the other hand, I come into panic when I think of it coming. You know this kind of feeling I guess.

It's saddly funny that somebody feels really well nd healthy but medical tests say that something is happening inside your body.

There is something I do not understand. He has had two negative biopsies before but his urologist here NEVER ORDERED A RMI of his prostate. Just sonography, but not rectal ones, that, maybe, they show more accurate image, don't they?

If it were not for the advice of his cousin (he has a lymphoma and lately PCa too) he'd still have a PI RADS 5 and nobody would be aware of it. That's why the new biopsy. His PSA is 4.2 nd has no symtoms.

Sorry for my long post, but I needed to talk.

The best to you all.

Lola.

User
Posted 27 Feb 2017 at 08:07

You are going to drive yourself crazy going round and round like this. What is done is done and cannot be changed no matter how hard you think of it.

Paco's doctors have done nothing wrong. He has a slightly raised PSA so they did a biopsy. He has had two clear biopsies. His PSA goes down as well as up, which is usually a sign of infection not cancer. Medics can't do endless tests on everyone - they have to make decisions based on risk and indicators and there was nothing about Paco's stats that would have suggested he needed further investigation.

Edited by member 27 Feb 2017 at 08:08  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 27 Feb 2017 at 08:18

Thanks, Lyn, for being always there to help.

 

Yes, I must calm down. I'll try.

Hug,

 

Lola

User
Posted 06 Mar 2017 at 11:06

Thanks, Lyn, for being always there to help.

Yes, I must calm down. I'll try.
Hug,

Lola

User
Posted 06 Mar 2017 at 11:21

So sorry, did something wrong with "copy-paste".
Actually my post was trying to ask someone to write the link to toolkit for me to copy and translate later for my husband. I'm in the car and it's not easy to write on the mobile.
Thanks in advance and sorry.

User
Posted 07 Mar 2017 at 06:23

Good morning.
The day has come. My hub is having a biopsy today at 15'30.
His PI RADS is 5 and I am in panic.
Trying to keep calm and not to harm him. I need to be strong enough to help him.

Lola.

User
Posted 07 Mar 2017 at 07:10

Hi Lola
Please remember that you won't find out anything today, so don't build up any expectations. Just support your husband - the biopsy is uncomfortable but not painful - I have had 3 biopsies over last 13 years.
Good luck.
Chris

User
Posted 07 Mar 2017 at 07:26
Good Luck to both of you.

Hope all goes well.

Steve x

User
Posted 07 Mar 2017 at 11:50

buena suerte Lola

Bri x

User
Posted 08 Mar 2017 at 15:36

Hello there.

Yesterday my husband had his third biopsy. This time not a f**** blind one, but an ultrasound targeted one consequently to a previous MP MRI. As he has become used to going through them, he didn't complain. No pain, no blood, etc.

The doctor said he was certain to have "caught" the cancer in the needle in case it results to be malignant. Unfortunately there is a high likelihood it is, but at least he gave us some relief, as he said " your hub won't die of prostate cancer". He was a nice Argentinian guy,( hhmmmm, nice optimistic people the Argentinians), but he is a relevant doctor in Madrid. That's the upside part. Good enough to bring us some peace whilst waiting for the test results in one week.
Best wishes to all and thanks for your support.


User
Posted 08 Mar 2017 at 16:46

Well, I hope the positive answer has helped you. He's the expert and he says your husband will not die of it, so please try and believe him.
Good luck to Pablo for the next stage

We can't control the winds - but we can adjust our sails
User
Posted 13 Mar 2017 at 11:54

Hi all, I have a question, maybe some experienced member on here can answer to me: my question is, can every PC be removed by Da vinci robot or only small tumors?

We are expecting biopsy results tomorrow and I'm uneasily searching in order to be aware of all possible remedies.
Thanks in advance,
Lola

User
Posted 13 Mar 2017 at 13:36

Hi
I had mine removed on Jan 4 17 by Robot in Leicester. Mine was small and it initially I was deemed contained but after it was deemed T3 . My op went really well . I've not seen anywhere where it can't be used if it's too big.
Al the best

User
Posted 13 Mar 2017 at 14:46

Thanks for your reply, Tony. I'm content that you're doing well.
By the way, did you have a. MRI done before operation? In case you did, was your tumor image showed on it?
My hub's tumor was seen, not sure whether this image is reliable or the stuff may be later be deemed bigger than on MRI.
You know someone's' mind can't help going round and round the same issue whilst expecting diagnosis.

The best to you,
Lola

User
Posted 13 Mar 2017 at 15:32

Hi Lola
I did have a scan after I was diagnosed after my biopsy.
The guy how did the bio said it was confined and not spread
The Oncologist couldn't see anything but that may of been the Blood in it after biopsy and he showed me on his screen
The surgeon said it hadn't grown and he showed me it as well .
Don't forget to look at nerve sparing which I had which meant I'm continent and my Gentleman's sausage is coming back but there are risks.
If you're lucky to have a great surgeon like me in Leicester you'll be in good hands .
YouTube is very good if a bit American if you get what I mean .

User
Posted 13 Mar 2017 at 15:46

Not sure 'Gentleman's sausage' will translate into Spanish too well, Tony :-)

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 13 Mar 2017 at 15:48

Imagination helps 🤣

User
Posted 13 Mar 2017 at 15:55
Actuallly we also use that eatable word to describe that item😉. And pretty many more. The Spaniards are fond of "funny synonyms". We have an endless list of them from "sausage" to "sirloin", upperin delicatessen stage.
User
Posted 13 Mar 2017 at 16:07

Hi
I'm not Spanish I'm from Italian stock lol

User
Posted 14 Mar 2017 at 17:21

Hi.

Hub finally has PC..

I'M not sure about the reading of the biopsy and on the other hand it's hard for me to translate the report from pathology.

I can say he has 4+3=7 Gleason.

Eight samples taken, 0 positive right side of the prostate. Left, 2 samples positive.

PSA 4'2

Could you give me some information about the meaning?

Tomorrow seeing urologist.

We are really worried.

Lola


User
Posted 14 Mar 2017 at 17:34

What are you really worried about Lola? It seems the results are far better than you dared hope - his cancer is only on one side of the prostate and there were only 2 affected cores which means all the other cores were clear.

The Gleason score is intermediate ... Of the small amount of cancer found, the majority of cells were distorted to a 4 and the next most common pattern of distortion was a 3. Anything less than a 3 is not cancer so his second score is the lowest possible. Imagine a football is a 1 and a crazy starfish is a 5; healthy prostate cells are football shaped and aggressive cancer cells are mis-sharpen with bits coming off at all angles like a crazy starfish. The vast majority of your husband's prostate cells are footballs but he has some that are like rugby balls and some like starfish but not like crazy starfish.

All in all, I would be relieved. Hope all becomes clear tomorrow.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 14 Mar 2017 at 17:59

Others will be along Lola but it looks good to me.

We can't control the winds - but we can adjust our sails
User
Posted 14 Mar 2017 at 18:24

The main question for the urologist tomorrow is "are we going for a cure or not?".

If the answer is yes we are, then the options are radical prostatectomy or radiotherapy.

If the answer is no, then possibly active surveillance followed by hormone therapy with early docetaxel chemotherapy.

User
Posted 14 Mar 2017 at 20:26

I really appreciate your replies. They make me feel better.

Thanks a lot to the three of you. You make this site a calm and relieving place in the mid 0f the storm.
I'll translate your posts to Paco, my OH.
THE BEST TO YOU

Lola

User
Posted 15 Mar 2017 at 06:42

Good morning from Spain.
Meeting urologist this morning.
I've V read on the Internet they 4+3=7 Gleason is worse than 3+4=7 .
My husband is 4+3.=7.
My question is , there is a big difference between them?
Lola

User
Posted 15 Mar 2017 at 08:03

Not really - they are both G7 which is intermediate risk.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 15 Mar 2017 at 08:49

It shows the majority of the cells in the sample were level 4 and the next most were level 3. That is worse than the other way round.

If life gives you lemons , then make lemonade

 
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