Ok. Lutetium 177 sessions 2 and 3 still on hold due to low Hb and platelet levels. As my consultant has stated that whilst sessions 1 and 2 have worked in that it’s reduced most of my tumours by 30%. It’s also hammered my bone marrow which means no further Lutetium till blood levels improve dramatically.
I’ve also had 2 weeks in hospital following a temperature reading of 39% where for the 1st few days I was a bit “doolally” and totally confused. Initial diagnosis was sepsis so I was immediately put on regular antibiotic drips. Which finally broke the fever. Daily blood tests undertaken in an effort to identify the cause of the fever but even with blood culture analysis nothing specific could be identified. So after 2 weeks of intensive monitoring I have been sent home with temp back to normal and feeling much better.
During the week or so that I’ve been back home the hospital Occi health unit have arranged for raiser bars to be fitted in house toilets. With a seat to be fitted in the shower in due course. The hospital physio team have also given me a series of leg exercises to strengthen my legs and are calling out next weds with a further set of exercises.
I’ve also bought a riser recliner chair which is an absolute godsend, as it allows me to sleep in a comfortable position as it’s very difficult to get upstairs at the mo. Also if my leg continues to give me hip for about a month I may consider hiring a stair lift thus allowing me to get back upstairs??
Just finished a course of 6 radiotherapy sessions. 5 which were directed at the base of my skull, in an effort to alleviate my chin/lip numbness, which is a bit better but certainly not cleared up. Following the last session on my neck I was also given a blast of radiotherapy to my right hip which again whilst not clearing it up it has helped with the pain in this area.
So now waiting for a letter from my radiotherapy consultant as to way ahead. As I’ve been told by the nurses that each radiotherapy
treatment affects each person in a different way so they are unable to state wether I ll need further treatment in a month, 6 months etc.
Local hospital consultant has also requested that I continue with fortnightly blood tests in a effort to manage if/when further blood transfusions are needed. God bless the NHS.
Any way that it’s for now!! and I ll update you all as when if anything else untoward crops up.
Keep the Faith
J.