Ok. Bit of a messy update but here goes, and whilst I’m feeling fine within myself...........
Both Hb bloods and platelet counts today are very low so Lutetium/3 which was due tmos. Has been postponed for a few weeks for bloods to recover.
Also as the numbness in my chin and lower lip is now into day 32, and steroids hasn’t touched it. My specialist in Bristol, has indicated that he wants me to have some Exernal beam radiation treatment, to the base of my skull, ( possibly 5 x session over a week) , as my last PSMA/PET/CT scan seems to show some significant tumour activity In this area, which could well be causing this mouth numbness. Anyway he’s going to liaise with my local oncologist to see wether I can get this treatment over the next 2-6 weeks on the NHS. If not I ll stay on the privately funded bus!!🙈
On the up side my recent scan confirms that my previous 2 Lutetium injections have decreased 80-85% of my tumours by 30%. Whist the remainder have no reduction in size but remain stable.
So like I said a mixed bag, but as my high PSA and ALP levels are also moving slowly in the right direction, I’m happy with that.
So once again Happy New Year to all.
Keep the Faith