"The road ahead"!

Keep the Faith

J.

First of all it seems the cause of my current pain issues is down to my bone marrow being under stress (from previous treatment regimes). Therefore whilst my blood levels are ok at the moment if ithe problem continues I may have to have a blood transfusion sometime in the future.

Also I was started a course of Enzalutamide yesterday, and whilst I’m “sure it must be in my head”, the bone pain I’ve been having for the past 3 weeks has reduced considerably?? Anyway I’m now on enzo for at least the next month, or if it works maybe for much longer?

The next step after that will be to re-challenge the PCa with Docetaxel to try to knock it back and bring my PSA down Possibly followed by some trials or even some private treatment.

So once again a mixed bag of results but “onwards and upwards” and let’s see what the next few months bring.

Keep the Faith

J.

Thanks for that info and if it works anything like that for me I ll be over the moon!😂

promising news, I must admit that Enzo seems to have had an impact on John's hip pain too though he remains on patches as we dare not try without. So far so good!

Love Devonmaid

Edited by moderator 20 Feb 2019 at 18:18  | Reason: Fix spacing issue

Just collected my 2nd months supply of Enzo with my next Onco appointment booked for the 8th April. And if my PSA is still reducing at that time, then this will be the way ahead for the foreseeable future.

Last weeks CT scan has shown that the nodules on my lungs ( which have been there since my 1st scan in Feb/17), are still an area of concern, but as of now no other treatment required.

Also bone scan planned for later this week now postponed till later in the year just to give Enzo it’s head.

Overall the difference in my well being over the past month is remarkable. In that I haven’t had to use any pain killers, whilst I was living on them for the previous 3 weeks, and whilst I’m still a bit stiff after playing golf, I put some of this down to arthritis which is clearly visible in my hands, so must be present elsewhere too.

Anyway let’s hope Enzo continues to do its work, thus delaying any further chemo and/or trials for a later date.

Keep the Faith

J.

Thanks for the comments hope John feels a bit better soon. Not sure if it’s the same with your health authority but I usually have my bloods taken on a Thursday before my Onco appointment on the Monday, and they are always printed out for me ( by one of the oncology nurses) prior to our meeting. Haven’t had a cancellation in over two years but if I do I ll still know my blood results and what to expect.

Also on one occasion she wanted something else checked so wrote “urgent PCa request” on the form, I took over to the bloods Dept. Went for a coffee and within an hour the extra results were back in her office! So it can be done. God bless the NHS!😂

Take care

Keep the Faith

J.

As you say, a real mixed bag. What does come through very strongly from your well-chosen words though is your wonderful strength of character. Long may it continue ...

A very mixed bag Valleyboy. Hope blood transfusion gives you a boost.

Ian