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"The road ahead"!

User
Posted 24 Jan 2019 at 09:34
Devonmaid
Thanks for that. Much better today so unless it returns I ll check it out with my onco when I see her on 11th Feb. Again just for info. Temperature And BP well within normal range.
Keep the Faith
J.
User
Posted 07 Feb 2019 at 15:46
A you know I had my 6th and last Radium 223 treatment on the 27th Dec. Just had blood results prior to meeting with my oncologist on the 11th and my PSA is up 587 points to 945. Whilst my ALP which has been my main marker whilst on Radium 223 is up 37 points to 114?? Again other than general aches and pains I feel ok. So I wonder what Monday will bring? I ll update you all accordingly.
Keep the Faith
J.
User
Posted 07 Feb 2019 at 17:49
Good luck on Monday. This awful illness does its utmost to beat us, but your OK feelings hopefully give you optimism to kick it into touch as well.
User
Posted 12 Feb 2019 at 19:07
Well had my meeting with my oncologist yesterday, but had to get my head around a few things so I haven’t updated till today.
First of all it seems the cause of my current pain issues is down to my bone marrow being under stress (from previous treatment regimes). Therefore whilst my blood levels are ok at the moment if ithe problem continues I may have to have a blood transfusion sometime in the future.
Also I was started a course of Enzalutamide yesterday, and whilst I’m “sure it must be in my head”, the bone pain I’ve been having for the past 3 weeks has reduced considerably?? Anyway I’m now on enzo for at least the next month, or if it works maybe for much longer?
The next step after that will be to re-challenge the PCa with Docetaxel to try to knock it back and bring my PSA down Possibly followed by some trials or even some private treatment.
So once again a mixed bag of results but “onwards and upwards” and let’s see what the next few months bring.
Keep the Faith
J.
User
Posted 12 Feb 2019 at 20:15

Hi,


No, I do not think you are imagining significant pain reduction with Enzalutimide. I had a lot of hip pain wihich disappeared almost immediately after starting this drug. Also initially, it reduced my PSA down to single figures (happy days!). Although it was about 8 months before the treatment was stopped after becoming ineffective, some people on here have had many years on it. 


Here's hoping you can be another one!


Best regards

User
Posted 12 Feb 2019 at 21:13
Hi Orm123
Thanks for that info and if it works anything like that for me I ll be over the moon!😂
 
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