Been a while since I wrote anything as all was going well, or so I thought.
I had RP 2 years ago followed by RT and 2 years HT. Had a bone scan a few weeks ago and have now been told that even after all what has happened I now have cancer in the shoulder bones and the hip area. Totally devastated as I thought things were going ok. Even though my PSA has continually been below 0.2 undetected my last result came back as detectable at 0.2.
I had the pain in my hip a few months ago but my GP put it down to sciatica, she also diagnosed my shoulder pain as a side effect of the HT, I just feel that the GP totally wasted months that could have went to treatment.
Feeling really down at the moment which would be the first time throughout this journey, such a blow as there is now no cure to this and only more treatment, which I hope to get soon. but even treatment may not be enough.
Just looking for anyone else who is going through this same nightmare, its the not knowing how long I have left that is really creating a major worry, I thought that I would have at least another 10 years before the HT stopped working not just 2 years. Keep reading survival rates and it does not read well for me as I have been told my PCa was very aggressive 3TB, Gleason 9 and 4+5.
So desperate to talk to someone if only for some kind of reassurance.