Originally Posted by: Online Community Member
Oh, I suppose it is understandable, given that there are essentially three different issues, each with its own specialist, but it would be nice to think that some actual treatment would begin soon. I know I'll feel a lot happier when it does!
How long was it for you, Alan, between your initial PSA test and starting treatment?
I started my journey on 26th January and started treatment 8th April, so I think that’s 41 days, just about 6 weeks?
i had 5 scans in total, Bone, MRI and CT were routine to eliminate possible mets, then 2 more detailed area MRI scans where the radiographer was unsure about results, 1 was a spot on my spine that thankfully turned out to be nothing and 1 on my pelvis, that has turned out to be Paget’s disease, a bone growth abnormality, something that is nearly always discovered by scans looking for something else. Once I am through the cancer treatment I will look into what can be done about the Pagets disease
My detailed timeline;
PSA blood test 26th January
result of 38 PSA 30th January
DRE with consultant 8th February
MRI Scan 9th February (got last minute cancellation as I live 2 miles from hospital)
Trans perineal biopsy day case 1st March
Oncologist review of biopsies 15th March
Gleason 4:5 = 9 in 11 cores on left, greatest core was 100% total cores 60%
Gleason 4:4 = 8 in 5 of 12 cores on the right, greatest core was 80% total cores 20%
So as I had 32 biopsies, 9 were clear.
Bone scan 23rd March mets
CT scan 26th March mets
Consultant review 29th March
Detailed spinal MRI scan 3rd April mets
start Bicalutamide 8th April
Decapeptyl hormone injection 23rd April
End Bicalutamide 6th May
MRI scan 11th May mets
Blood test PSA Testosterone check 15th June
Full Oncologist review and RT planning 21st June
The last two are Imminent
I have put this whole list as it might be of use to other members of the website to give them an idea of what occurs
Edited by member 14 Jun 2018 at 14:16
| Reason: Add information