I had my post-operative consultation with the esteemed Professor at the Royal Surrey County Hospital yesterday. He basically didn’t tell me anything I didn’t know, as I already had a copy of the histology report.
I mainly wanted to thank him for the brilliant surgery he carried out, and to tell him not to blame himself for the seven year gap in PSA tests leading to metastatic spread to my pelvic lymph nodes. That would be down to my GP.
Matron will admonish me for not being more proactive about my PSA testing, but naïve little me, when I dutifully trotted off to phlebotomy with my annual blood test form bearing the legend ‘FBC’ = Full Blood Count, every year for six years, I presumed that included a PSA test! How stupid can one get? It’s the National Health Service, not the Self-Help Health Service!
I must reiterate that since my raised PSA last November, and through the catalogue of tests, scans and ops, the NHS have been wonderful.
Good news anyway, both my post-operative PSA’s have been undetectable, <0.1, so nothing doing for the time being. I am as well as I was last year before diagnosis - I had no symptoms - apart from the little matter of very little matter left down below now......☹️
Of note: the Prof. said he's not a great fan of super-sensitive PSA assays, as they can be affected by ‘noise’ which can be a distraction.
I have been referred back to oncology, where in my newly acquired spirit of ‘self-help’, I will ask nicely for a Gallium PET-CT scan.
I asked the Prof. where in the world he would go if he ever required prostate surgery, Professor Bocciardi in Milan maybe, Professor Rha in Seoul?
He answered: Professor Haese at the Martini Klinik in Hamburg, who interestingly, don’t seem to mention Retzius-sparing surgery on their website.
Edited by member 08 Aug 2018 at 12:23
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