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Retzius-Sparing Laparoscopic Radical Prostatectomy

User
Posted 09 Nov 2018 at 02:26

Originally Posted by: Online Community Member
Cool BUT <0.04 isn't really supersensitive more "just a bit more sensitive"!!

Thanks. That figure was from the Royal Marsden Hospital, the no. 1 cancer centre in Britain, so it’s sensitive enough for me and the specialist prostate cancer consultant oncologist there.

Cheers, John.

User
Posted 20 Nov 2018 at 17:32

Just a note to say that I have been quite continent (and content) with my post-operative waterworks.

However, I did wake up on the settee with wet pants last week five months on, probably due to a great session down the pub. I still have a slight dribble occasionally, but that does not require the use of any of the three or four Tena Lite pads I still have left in the box of fourteen I originally purchased. Marks & Sparks cotton knickers are quite absorbent!

I had one of Britain’s top surgeons but he still owes me 2”, God bless him, the b******.

And as a bonus I have undetectable PSA and have been told I am cured.

As for ED, that will be a pneumatically and chemically-enhanced event, should it ever happen, sometime around 2020!

Am I bovvered? No. Keep breathing.

Cheers, John

Edited by member 20 Nov 2018 at 17:39  | Reason: Not specified

User
Posted 20 Nov 2018 at 18:27

Originally Posted by: Online Community Member

Just a note to say that I have been quite continent (and content) with my post-operative waterworks.

However, I did wake up on the settee with wet pants last week five months on, probably due to a great session down the pub. I still have a slight dribble occasionally, but that does not require the use of any of the three or four Tena Lite pads I still have left in the box of fourteen I originally purchased. Marks & Sparks cotton knickers are quite absorbent!

I had one of Britain’s top surgeons but he still owes me 2”, God bless him, the b******.

 



I have to use a Dribble Stop ( external penile clamp )  when I'm out on the 'ssip'  alcohol will open the tap for me  ....my continence is not so good...but I've learnt to manage it without too much hassle... and have so far declined an offer of further surgery for an AUS implant... (which is basically an internal penile clamp) 
I'm pleased to report that I haven't lost 2" though  although there has been some reduction in girth ( bugger it! ) .... and Mr Caverject or Mr Invicorp works well for me 
Keep on tugging ...you may recover the lost 2" lol! 

All the best 
Luther 


User
Posted 20 Nov 2018 at 19:06
Hi Luther,

I did go and see a urology nurse last week, who mentioned Caverject and Muse (thanks, but no thanks), but I’m now going for a fitting for the aptly-named SOMAerect Stf penis pump.

Although the SOMAerect Response II (medium to large penile diameter), (also available with an 11” XLL cylinder), is available on request off the shelf, my size will probably have to be Savile Row bespoke, made to measure, using a micrometer, rather than a tape measure😉

At least my tailors will never have to ask me “Which side do you dress Sir?” ever again!

Keep smiling, keep breathing. Couldn’t be more pleased with my operation and outcomes, except if I didn’t have cancer!

All the best.

Cheers, John

User
Posted 20 Nov 2018 at 19:19

Originally Posted by: Online Community Member
Hi Luther,

I did go and see a urology nurse last week, who mentioned Caverject and Muse (thanks, but no thanks), but I’m now going for a fitting for the aptly-named SOMAerect Stf penis pump.

Although the SOMAerect Response II (medium to large penile diameter), (also available with an 11” XLL cylinder), is available on request off the shelf, my size will probably have to be Savile Row bespoke, made to measure, using a micrometer, rather than a tape measure😉

At least my tailors will never have to ask me “Which side do you dress Sir?” ever again!

Keep smiling, keep breathing. Couldn’t be more pleased with my operation and outcomes, except if I didn’t have cancer!

All the best.

Cheers, John


I used a pump in the early days John to promote blood flow etc.... I had to buy my own though ( ErecAid Esteem) it's an 'approved' pump and it wasn't cheap!  ....no help from the NHS in my area regarding funding... or for pads either ... Pisses me off a bit as I've paid the same NI stamp as everyone else... Post code lottery in what is supposed to be a 'National'  health service... 

I wouldn't reject the idea of Muse ...Cialis ..Caverject or Invicorp just yet if I were you.... 
Hopefully you won't need any assistance that way..... it's very early days for you... 
Keep on tugging 
Cheers 
Luther 

User
Posted 20 Nov 2018 at 21:39

John

 

Perhaps an advantage of non retzius surgery is *having" a uretheral catheter for about two weeks post op.  Putting a much thinner 50 mm long tube down the eye of the penis too deliver the muse is a walk in the park compared to the catheter. The idea of the injections still makes me cross my legs.

 

Thanks Chris
User
Posted 21 Nov 2018 at 07:00
Hi Chris,

Can’t see any possible advantage of having a urethral catheter or Muse pellet unless as part of some kind of masochistic experience. I was left in a waiting room in urology and I noticed a helpful leaflet entitled ‘Self Catheterisation’

I nearly fainted just looking at the front page!🤣

Cheers, John.

User
Posted 21 Nov 2018 at 07:32
Hi Chris,

Can’t see any possible advantage of having a urethral catheter or Muse pellet unless as part of some kind of masochistic experience. I was left in a waiting room in urology and I noticed a helpful leaflet entitled ‘Self Catheterisation’

I nearly fainted just looking at the front page!🤣

Cheers, John.

User
Posted 21 Nov 2018 at 07:32
Hi Chris,

Can’t see any possible advantage of having a urethral catheter or Muse pellet unless as part of some kind of masochistic experience. I was left in a waiting room in urology and I noticed a helpful leaflet entitled ‘Self Catheterisation’

I nearly fainted just looking at the front page!🤣

Cheers, John.

User
Posted 21 Nov 2018 at 10:14

Originally Posted by: Online Community Member
Hi Chris,

 I was left in a waiting room in urology and I noticed a helpful leaflet entitled ‘Self Catheterisation’

I nearly fainted just looking at the front page!🤣

Cheers, John.

 

John 

I do that as well, although I have cut down from twice a day to once every couple of weeks. Technically I do self dilation. Take care.

Thanks Chris

User
Posted 21 Nov 2018 at 10:56
Sorry for the triplicate post. This very strange bulletin board platform will not allow me to delete them. It’s just one of the many faults with this board. Why they didn’t use a standard one like Ultimate Bulletin Board I don’t know.

The Macmillan one is even worse!

Cheers, John.

User
Posted 26 Nov 2018 at 04:52

One year recap.

It is now a year since my annual blood test for cholesterol showed a raised PSA level. I got the results the next day on my iPad Patient Access app, so my first reaction was what was my PSA level, last year in 2016? No result, so what was it the year before? Result not tested! I go all the way back to 2010 when I was 55 and it was 2.2 but it’s now at 16.7. That was the first and only test for seven years. Where is the NHS screening process?

Looks like I might have the Big C. Go to doctors, referred to urology under the two week rule. Very quickly seen in local urology department where the doctor performed a digital rectal examination which my own GP (now buggered off out of reach of the General Medical Council’s complaints mechanism) had declined to do two years before saying: “We don’t do that these days”.

mpMRI and bone scans followed in short order. Offered the TRUS biopsy there and then but was forewarned to avoid one if possible because of its inaccuracy.

They said I might be on a long waiting list for an alternative template biopsy, but it was only a few weeks. It found cancer rated Gleason 4+3 = 7. Discussed treatment with local surgeon and oncologist, but opted for surgery out of area with a world-renowned surgeon on the NHS. Operation uneventful and successful. PSA is undetectable and I’m currently cancer-free and dry as a bone (including orgasms☹️) And apart from complete erectile dysfunction and a lost 2” (must order that penis pump) I have never felt so well and I couldn’t be more pleased.

It all seems so long ago, even the surgery only six months ago. I will certainly remember 2018 - an interesting year.......we had to cancel two cruises. Surprised I’ve got any blood left - they’ve sampled nearly an armful!

And a big, big, thank you to all the staff at the NHS (except for one) and those of you here who have offered words of advice over the past year.

To others here, PCa usually isn’t the end of the road (or the world).

Best of luck.

Cheers, John.

Edited by member 26 Nov 2018 at 07:58  | Reason: Not specified

User
Posted 05 Feb 2019 at 12:30
Nine month post-operative PSA result: <0.1, still undetectable😁.

Looks like I am winging it for now. Thank you Professor Whocannotbenamedhere.

Got a few cruises and holidays planned for 2019, to make up for all the ones cancelled last year.

Cheers, John.

User
Posted 05 Feb 2019 at 13:20

Great news John,  Enjoy the cruises.

Ian

Ido4

User
Posted 12 Aug 2019 at 11:54
Hi Bollinge, you must be due a review about now, are you? Hope all is well.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 12 Aug 2019 at 18:05
Great. That all important good news < sign that many of us hope for. My next appointment is Thursday so hope for the same after 30 months post op. Damn PSA anxiety is somewhat heightened this time for some reason though.

Good luck

Cheers

Bill

User
Posted 12 Aug 2019 at 18:32
Hi Matron,

Pleased to say I’m still breathing! Thanks for asking.

The six PSA tests I have had since my surgery last June have been ‘undetectable’ at <0.1 or less, so I have arbitrarily extended my testing regimen to four months. My next test is next month. Not worried about it as the Big C is likely to recur at some point, and I guess the outcome will be the same whether sooner or later.

Continence is fine, ED in what’s left of it is not. Not too bothered about that either, and have given up on sex. Can’t be bothered with pumps and injections.

Cruising on Friday, and round the Caribbean again in September.

All the best.

Cheers, John.

User
Posted 12 Aug 2019 at 18:58
Have a great time
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 09 Sep 2019 at 11:50
Latest PSA test, #7 after surgery in June 2018, <0.1, “undetectable”, so in the words of the song, I am “Getting Away With It”.

So far...

Cheers, John

User
Posted 09 Sep 2019 at 12:50
👍
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 09 Sep 2019 at 19:09

That’s great John.

Ido4

User
Posted 09 Sep 2019 at 20:51

Great news John! Keep it up 😁

User
Posted 09 Sep 2019 at 23:14

Good result John.    Gypsy Petulengro will be pleased, I took a photo of her place last time you mentioned asking the gypsy fortune teller.

Here's a link to Gypsy Petulengro's place if you're ever round North Pier Blackpool.

 

Edited by member 09 Sep 2019 at 23:38  | Reason: Not specified

User
Posted 10 Sep 2019 at 01:06
😂🤣😂🤣
User
Posted 05 Dec 2019 at 11:05
Eighteen month post-operative PSA test result is <0.1, undetectable, as is my erectile function. Hey ho.

Looks like Da Vinci did a good job together with his sidekick Professor Whocannotbenamedhere. I’m sending DaVinci a Christmas card, together with a Christmas drink - a Poundland can of WD40...

Cheers, John.

User
Posted 05 Dec 2019 at 18:17

John 

Good news on the cancer, not so good on the ED, is continence still good, if so two out of three is pretty good. The ED can always be sorted other ways, and there is still time for improvement.

Thanks Chris.

User
Posted 06 Dec 2019 at 00:35
Hi Chris,

We have given up on all that sex malarkey, although I can still have a ‘sort of’ orgasm with what Da Vinci left behind.

Continence is not really a problem, and I only bought one pack of fourteen Tena Lites eighteen months ago and I still have seven left. Sometimes when I get up off the settee a droplet might appear, but if I get very drunk and fall asleep on the settee I sometimes have a big leakage. This only started a few months ago. Maybe I am drinking more?

Anyway, no worries. Keep breathing!

Cheers, John.

User
Posted 06 Dec 2019 at 01:20
I went through a phase about 2 years after my OP where drink was a big problem, pissed myself on a night out dancing with my new girlfriend, she later became my wife so no harm done!

Just got back in from a comedy night, first time in years I have supped 5 pints and laughed my head off - no leaks at all.

User
Posted 06 Dec 2019 at 01:35

Originally Posted by: Online Community Member
Eighteen month post-operative PSA test result is <0.1

 

Brilliant news 👍

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 06 Dec 2019 at 01:36

 

Not such brilliant news 😟

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 06 Dec 2019 at 16:00

John

Fantastic news :-). I’ll drink to that when my bladder augmented reality kit is out so I don’t have to plug into the matrix every night.

Had the odd mishap over the years after a heavy night myself. The catalyst for me appears to be shots/shorts specifically whisky or brandy appear to send me into a coma. Beer or wine is fine so will stick to that when I have a tipple nearer Xmas.

have a great weekend

Simon (TG)

 

User
Posted 06 Dec 2019 at 16:44

Originally Posted by: Online Community Member

Maybe I am drinking more?

Not such brilliant news 😟

Just following doctor’s orders: ‘Drink plenty of fluids’.

Surprisingly, my liver function is normal...😋

Cheers, John.

Edited by member 07 Dec 2019 at 01:27  | Reason: Not specified

 
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