Cheshire Chris's Treatment Thread

User

Posted 24 Apr 2024 at 10:52

I love to read good news.
Leila

User

Posted 24 Apr 2024 at 13:49

Brilliant 👏

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 24 Apr 2024 at 16:38

That’s brilliant news to hear Chris, really happy for you.

Ange x

User

Posted 28 Apr 2024 at 17:27

Great news Chris. Very pleased for you.

Best wishes.

Ido4

User

Posted 14 Oct 2024 at 15:47

Blood test at 8:40 this morning and the results available on my GP's online system at 3pm, which is pretty good! It's now six and a half years since my diagnosis and my PSA remains stable at 1.0, which is the same as it was in April. My last few years' test results are:

2.0: Oct 19

1.4: Apr 20

1.5: Oct 20

1.5: Mar 21

1.2: Oct 21

1.3: Jan 22

1.2: Apr 22

1.0: Oct 22

1.2: Apr 23

1.2: Oct 23

1.0 Apr 24

1.0 Oct 24

I'm beginning to think that it's remotely possible that I've beaten this thing! How likely is it to return after this many years? I just get so stressed waiting for test results that it would be wonderful to not have to worry. Probably an impossible dream, I know.

User

Posted 14 Oct 2024 at 16:19

Great news Chris 🍻🍾🥂

User

Posted 14 Oct 2024 at 16:38

Good news. Whatever you're doing sounds right.

User

Posted 15 Oct 2024 at 09:14

That’s brilliant news Chris. Long may it continue 👍

phil

User

Posted 15 Oct 2024 at 11:36

Probably worth asking if annual testing is the way to go now...

User

Posted 29 Oct 2024 at 12:33

Phone consultation with a specialist cancer nurse from Clatterbridge yesterday. Everything fine and we mutually agreed that I'd move from six monthly to annual testing, so no more testing until next October.

Feeling quite happy!

Chris

User

Posted 29 Oct 2024 at 12:46

Great news Chris 👍

User

Posted 29 Oct 2024 at 13:51

That’s wonderful news Chris!!

All the best,

Ange x

User

Posted 29 Oct 2024 at 20:01

Brilliant news Chris, really 0leased for you.

Derek

User

Posted 29 Oct 2024 at 22:15

Congratulations. You're timeline is very close to mine. They've just moved me to self-managed PSA tests, although they still seem to be 6-monthly. This is nothing to do with reaching 5 years - it's happening to everyone at my hospital after treatment, because they now have too many patients for them to be able to see oncologists after every PSA test. No more consultations, unless anything nasty happens with my PSA or I get any other side effects. Interestingly, my PSA tests had all had Testosterone added since I came off hormone therapy and that was supposed to stop, but the automatically produced blood test form for the next PSA test still includes Testosterone.

User

Posted 30 Oct 2024 at 05:42

Great news Chris enjoy - just don't forget to go in 12 months time!

User

Posted 30 Oct 2024 at 09:18

Good news is always great to see.

User

Posted 30 Oct 2024 at 09:49

Fabulous news, Chris. At lunch time I shall raise a glass and drink to your continued good health. 🍻

User

Posted 31 Oct 2024 at 09:22

Good news Chris 👍

User

Posted 31 Oct 2024 at 21:43

Loving this Chris.

Next October is long enough away to park the worry.

Jamie.

User

Posted 01 Nov 2024 at 21:11

Thanks, everyone!

Chris

User

Posted 07 Aug 2025 at 15:40

I don't seem to have put it on this thread, but I was rather concerned in April this year, when a PSA test randomly requested by my consultant showed an increase in my PSA from 1.0 to 1.3. Not a big rise in itself, but I've been stressing a bit wondering what the next test was going to show. I had another test last week, again requested by my consultant, this time my PSA has fallen to 0.9, which is my lowest reading ever!

The results for the six years since I finished my radiotherapy are:

2.0: Oct 19

1.4: Apr 20

1.5: Oct 20

1.5: Mar 21

1.2: Oct 21

1.3: Jan 22

1.2: Apr 22

1.0: Oct 22

1.2: Apr 23

1.2: Oct 23

1.0 Apr 24

1.0 Oct 24

1.3 Apr 25

0.9 Jul 25

So I can breathe a sigh of relief again - until next time. You'd think that after six years it might get easier waiting for test results, but it doesn't. Always sleepless nights and "what if..." between the test and the result.

User

Posted 07 Aug 2025 at 15:52

Brilliant news, Chris. I shall have a celebratory pint!

User

Posted 07 Aug 2025 at 22:39

Good news. It takes you to a better place.

User

Posted 08 Aug 2025 at 01:10

Phew indeed! The way they jump around is guaranteed to make each and every test result stressful.

Great result and after six years you deserve to breathe more easily, without having the psa test toying with you.

Jules

User

Posted 19 Oct 2025 at 13:55

October 2025 and my PSA remains at 0.9, which is where it was in August, so it's all good. Now six years since I finished radiotherapy.

Chris

User

Posted 19 Oct 2025 at 15:22

Hi Chris.

Fabulous news. I'm doing sober October, but I'll have a pint of lime and soda to celebrate the result. 👍

User

Posted 19 Oct 2025 at 17:30

Hooray, Chris! I’ll have a cider to toast your splendid result!

User

Posted 19 Oct 2025 at 17:53

The 1.3 must have been disturbing at the time but overall there's been a slight down-trend since '20 - '21.

Onwards to the ten year mark!

Jules

User

Posted 19 Oct 2025 at 19:41

Chris, good to hear.

Thanks Chris

User

Posted 19 Oct 2025 at 22:01

A good news story. Great to hear Chris.

User

Posted 20 Oct 2025 at 11:49

That’s brilliant news Chris, really pleased for you.

Angex

User

Posted 27 Oct 2025 at 08:47

Had a telephone consultation this morning with Clatterbridge, and because my PSA has now been stable for several years they are discharging me to the care of my GP with an annual PSA test. This feels like a significant milestone!

Chris

User

Posted 27 Oct 2025 at 16:32

It's good news to get some slack after having tests every 3 months for several years. As you say your psa has been pretty stable for a few years. It's a bit like a comfort blanket having the frequent tests and hard to let go.

If you don't mind me saying. They should have given you notice of an option to be discharged. It's quite a step. You lose access to the nurse and need to go to the GP which isn't something I like to do on specialist topics. A test in 6 months to psyche up and then see how the prospect of discharge feels then might be better.

I was psyched up for 5yr discharge 4yrs ago but surprisingly my psa became detectable on the last test so I wasn't discharged.

Good luck.

All the best, Peter

Edited by member 27 Oct 2025 at 16:34 | Reason: Not specified

User

Posted 27 Oct 2025 at 23:22

Undoubtedly a milestone Chris!

Reading and following the posts of many people on here I've reluctantly come to realize that we can never say we've beaten pc but on the upside dealing with recurrence has similar rules to first detection of cancer. First rule being to have regular psa tests and act on them quickly. There's several people on this forum who have had recurrence some time after being cleared and they've followed up with focal treatments of some type which have been successful.

I think Peter's got a good point, or at least a question for discussion here. How often should we have psa tests after a few years of stable readings? The jump from 3 monthly to annually is pretty big.

Jules

User

Posted 28 Oct 2025 at 18:13

My treatment finished summer 2018 after diagnosis Oct 2015. My treatment was 32 sessions RT with 3 yrs Zoladex. I was in Stampede arm J trial so 2yrs abiraterone,enzalutimide,prednisolone included in that.

My nadir as far as PSA concerned is 0.5, I still have prostate. I still get PSA done at Clatterbridge annually and since the nadir of 0.5 PSA has always been less than that. I still wait to be passed on go gp etc but wonder if I'm still getting bloods at Clatterbridge is due to the trial, I'm not bothered one way or another, next test is in few weeks.

Peter

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