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Cheshire Chris's Treatment Thread

User
Posted 15 Mar 2022 at 17:12
Got a phone call yesterday morning asking me to go to Arrowe Park hospital (where the people leaving Wuhan in China were first quarantined for possible exposure to Covid - gosh, that does seem a long time ago and a different world, doesn't it?) for my "missed" chest CT scan. In and out in 5 minutes because it was done without contrast. Got a call this morning from the urology nurse saying that the scan was clear - how's that for fast scan reporting! - so next scan will be in a year's time.

Next on the agenda is my 6-monthly PSA check and telephone consultation with the specialist nurses at the Clatterbridge Cancer Centre where I was treated. That'll be early May.

So good news all round!

Cheers,

Chris

User
Posted 15 Mar 2022 at 17:38
Great news from one Cheshire Chris to another 😆
User
Posted 16 Mar 2022 at 07:09
Great news Chris x

regards barbara

User
Posted 25 Apr 2022 at 15:30

My 6-monthly phone appointment with my excellent cancer nurse is next week, so I had a preparatory PSA test on Thursday. The results have come back as 1.2, which is good. I had my RT in Feb/Mar 2019, and my PSA history since then has been:

2.0: Oct 19

1.4: Apr 20

1.5: Oct 20

1.5: Mar 21

1.2: Oct 21

1.3: Jan 22

1.2: Apr 22

So it seems that approaching three and a half years after RT I'm still at my nadir, which is great.

Waiting for tests never gets easier. If anything I find myself more stressed out waiting for my test results now than ever. In the future I'll try to have a test on a Monday or Tuesday so I won't have to wait over a weekend, I think 😁. I don't know about anyone else, but for me the mental aspects of prostate cancer have been worse than the physical ones, and it's a life sentence. Oh well, I can put it out of my mind again until November now.

Cheers,

Chris

Edited by member 25 Apr 2022 at 15:37  | Reason: Not specified

User
Posted 25 Apr 2022 at 15:38

Good news Chris 👍.

And I agree the mental side of this disease along with the HT have wreaked havoc with my mind. Not so good at the moment waiting to find out if my PCa has become castrate resistant…. 

Take care

Phil

User
Posted 25 Apr 2022 at 17:13

It’s been awhile since I finished treatment. My Triptorelin effect expired October 2020. I was undetectable PSA then, now I’ve had three six monthly checks all at PSA 0.4

User
Posted 25 Apr 2022 at 19:05
Mate that’s REALLY good news and I’m so pleased for you. I’d be a liar if I said I didn’t get stressed with results , but ever since deemed incurable I tend to just crack on with work and keep myself occupied. I guess what will be will be and I can’t change anything. It was emotionally very tough waiting 5 weeks for my latest bone and ct scan results , even though the psa was still good. In honesty I’m more at the stage where I’m concerned about freedom to travel and get insurance and pack in as much as I can , than worry about bad results because they are inevitable ( agent Smith , Matrix ).

Keep on soldiering on 👍👍

User
Posted 25 Apr 2022 at 22:00

Yes Chris, I passed the 70 mark 2 weeks ago and decided to get on with life, got a new grandson very late December, a surprise from my 42 year old youngest girl! Something to look forward to is every weeks visit

shes decided to marry long term partner end of May he’s 51 so I think they must have worked hard at it😂

It seems such a long time ago we were both in the real dark times

 

User
Posted 21 May 2022 at 20:27
Not the best of days 🙁. Nothing to do with prostate cancer, but I was woken up about 3am this morning by the most agonising pain in my groin - like being stabbed. Thought I’d maybe pulled a muscle, but I stuck it out until mid morning then went to my local GP walk-in centre. He reckons I’ve got an “inguinal hernia” and it’ll need surgery. Got to go and see my own GP on Monday and hopefully get an urgent urology referral. Not what I was hoping for. The pain’s eased off a bit, but still extremely uncomfortable. Could have done without this 🙂.

Oh well, such is life…

Chris

User
Posted 21 May 2022 at 20:30

Hope you are sorted soon like most off us on here been through the mill enough let's all have a bit off luck for a change hope you get treatment asap 👍

User
Posted 21 May 2022 at 20:49

Hi Chris 

I agree just as things seem to be going okay there is always something going to jump up and kick you in the nuts

I have been feeling really good lately and two weeks ago I let a friend talk me into cycling the coast to coast route from Whitehaven to Tynemouth. Everything went okay and I survived it over the three days. Two days after getting back my left eye started going black from the bottom upwards. Luckily I saw a specialist who told me I had a detached retina I needed immediate surgery which I got at a specialist eye hospital near me. While I was there they checked my right eye and found a tear in my eye retina which they fixed at the same time.

Initial treatment was seven days laying on my side to allow the retina to reattach after surgery, painful as hell and boring too! I’m allowed up tomorrow for the first time can’t wait

 

User
Posted 22 May 2022 at 06:02
Omg horror story..
User
Posted 22 May 2022 at 09:05

Hope the treatment works 100% - wishing you a speedy recovery

User
Posted 23 May 2022 at 19:35
Just an update on the above. I went to see my own GP this morning, and he doesn't think that the pain is due to a hernia. He suspects that it may be a surgical adhesion. He's arranging an ultrasound scan which will hopefully provide more information.

Chris

User
Posted 23 May 2022 at 19:40

Chris, Hope everything goes well and you get a path to resolution.

User
Posted 23 May 2022 at 19:59
Cheers, TechGuy. I'm somewhat concerned about being left with long-term pain that nobody can do anything about. Fingers crossed that won't happen!

Chris

User
Posted 23 May 2022 at 20:02
Thanks for the supportive messages, Pallance. Very sorry to hear about your eye problems - I do hope everything's on the mend now. As you rightly say, it does seem like a long time ago now that we first spoke. We've both been through a lot since then! Enjoy the new grandson ❤️.

Cheers,

Chris

User
Posted 23 May 2022 at 22:40

Originally Posted by: Online Community Member
Just an update on the above. I went to see my own GP this morning, and he doesn't think that the pain is due to a hernia. He suspects that it may be a surgical adhesion. He's arranging an ultrasound scan which will hopefully provide more information.

Chris

Hope you get sorted out soon chris and will be feeling better 🤞🏼

User
Posted 01 Aug 2022 at 06:10
I'm 60 today! That somehow seems like a significant milestone in my life, and one that I seriously thought that I might not reach when I was first diagnosed in 2018 at the age of 55. It's certainly been an "eventful" four and a bit years since then, but here I am, if not "fit and well" then at least "well", and enjoying life to the full.

Cheers,

Chris

User
Posted 01 Aug 2022 at 07:17

Chris, happy birthday,🎂.

User
Posted 01 Aug 2022 at 07:42
Nice one Chris and Happy Birthday 🥳

That’s my next goal but very unlikely. Strange isn’t it when you get your new debit card that lasts 10 years or a value years supply of cod liver oil , then wonder if you’re still gonna be around.

Have a good celebration 👍👏

User
Posted 01 Aug 2022 at 08:02
Happy birthday Chris...
User
Posted 01 Aug 2022 at 09:29

Hi Chris

hope you had a good birthday. x

 

regards barbara x

User
Posted 01 Aug 2022 at 09:47
Happy 60th Chris, hope you have a lovely day celebrating x
User
Posted 01 Aug 2022 at 10:00

Happy Birthday Chris, have a lovely day 🥳

User
Posted 01 Aug 2022 at 12:32

Happy birthday, enjoy. 
Leila x

User
Posted 01 Aug 2022 at 15:39
Thanks for the kind wishes, everyone!

Chris

User
Posted 02 Aug 2022 at 17:14

Chris,

I have just finished reading your story(to date) and I find it both informative and inspirational, thanks for sharing it. I am very early in this journey and at times finding it hard to come to terms with my diagnosis. The last few days have been tough with mood swings partly down to anxiety (uncertainty over diagnosis and treatment), and partly down to the changes going on in my body. It’s a strange feeling of sadness and emptiness is the best way I can describe it. Your post has helped me considerably and I’m determined to keep as active and busy as possible as I find that keeps me feeling positive.
So, it’s back to long walks.  I also find getting out on my eBike a great way of both having fun and keeping fit.. I bought this during lockdown and it kept me going and smiling through these difficult times. it’s one of the best investments(not cheap) I have made. It is so much fun-some people say it’s cheating but if you’ve not been a regular cyclist it’s a great way of getting into it and keeping fit without overdoing it if your energy levels are not quite what they were….and you can always switch your motor off(as I do frequently) for a more challenging ride.

I will also be rejoining my local council gym to try and build up my muscles as I know muscle loss is a side effect of hormone therapy.

so thanks again and all the best for the future - I will continue to follow your journey closely.

Derek

 

User
Posted 02 Aug 2022 at 22:47
Belated Happy Returns Chris!! Again, many thanks for all the advice early on in my diagnosis, it was extremely helpful in negotiating the minefield of which treatment option to choose. Cheers!!
User
Posted 03 Aug 2022 at 19:37

I had a classmate in graduate school who said “my grandma won’t even buy green bananas”

Funny, but funnier in 1988 than it is now

User
Posted 04 Aug 2022 at 06:17

Happy belated birthday

 
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