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Cheshire Chris's Treatment Thread

User
Posted 15 Feb 2019 at 16:12

Sorry to read that Chris. The machines do break down periodically, it caused me some worry but you will get the full treatment regardless.

Where i was treated there were two machines at that waiting room. The machine i wasn't on was down more than it was up with parts and engineers coming from the USA.

It meant my treatment was often late but we all got treated. Some people were moved to other machines (there were 7 in total at the centre) One of the radiologists told me they just keep working until they treat everyone, amazing people.

 

Ido4

User
Posted 15 Feb 2019 at 19:25
Oh, these things happen. No point in getting upset about it. The almost 90 mile round trip for no purpose is a little frustrating, though.

Chris

User
Posted 18 Feb 2019 at 17:01
Five treatments now completed.

Over the weekend I started having noticeable difficulty urinating, similar to the way it felt after my biopsies, so I suspect that the radiation is starting to make my prostate swell up. It's not yet at the stage where it's a problem, but it's definitely noticeable. I told the nurse about it when I went for my treatment today, and she's arranging for a "radiation support worker" (whatever that might be!) to speak to me at some point this week.

Chris

User
Posted 20 Feb 2019 at 18:53
7 sessions completed.

I saw the doctor today at the cancer center and he's prescribed me Tamsulosin to help with the issues I've started having in urinating, so hopefully that'll solve the problem!

Chris

User
Posted 21 Feb 2019 at 13:29
Hmmm. 8 sessions completed and today I've started getting thick mucus coming out of my backside. I know this is a common side-effect, but I am slightly concerned about getting such side-effects so soon into my treatment. I really hope that this isn't doing too much "collateral damage"!

Chris

User
Posted 21 Feb 2019 at 13:50
I had it occasionally. I would be more concerned about bleeding.
User
Posted 22 Feb 2019 at 16:32
Feeling a lot more cheerful about things today. Two weeks completed: 9 fractions (because of last Friday's machine breakdown) so I'm over a quarter of the way through my treatment. No more mucus since yesterday and the Tamsulosin seems to have done the trick as far as the urinary issues are concerned.

Looking forward to a nice weekend off!

Chris

User
Posted 24 Feb 2019 at 14:11

Chris,  enjoy your weekend off you deserve, it the stress of travelling five days a week for treatment is something I won’t forget in a long time. I know some people have to travel a lot farther than i did! Getting to the centre of the city of Bristol where I was treated was not fun at all,  as there were about 20 parking spaces at the hospital and all the multistories parking locally was very expensive.

 If you remember I completed my RT first week in September last year and i’m still getting bouts of diarrhoea that come back for no reason as I control my diet very well and the mucus discharge is still a problem for me, so much so that to put it simply sometimes my bum cheeks are stuck together!!

 Most of these you can get around by becoming organised and accepting them, but the problem peeing is something  you really need to keep on top of and tell the nurses every time you have a problem.

 I clearly remember being asked every day by the  Radiotherapy staff as I was getting ready for treatment, were there any changes or anything new that I should tell them about before commencing my fraction. 

 They always emphasised that nothing was too small or insignificant and it was better that I told them anything I was unsure of. I consider myself lucky to have got through radiotherapy fairly scot-free I wish you all the best in the rest of your fractions and keep in touch 

User
Posted 24 Feb 2019 at 14:57
Cheers, Alan; I appreciate the good wishes.

One good thing about being treated at a specialist cancer centre is that (unlike the rest of the hospital) they have a separate free car park for people undergoing treatment, so at least that removes the stress of having to find a parking space at the end of a long journey.

Yes, the nurses ask me every day if everything is going OK, and I'm being completely open with them about anything that does happen. I'm also seeing the oncologist once a week during my treatment, so I can raise any concerns with him, too. The Tamsulosin has sorted out the urinary issues for now, but I'll definitely tell them if it stops doing so!

All the best,

Chris

User
Posted 24 Feb 2019 at 16:41

Hope you are enjoying the weekend off and that the remaining treatments go smoothly.

The cancer centre i went to had a separate car park for patients, it takes some of the stress away knowing you will get parked.

 

Ido4

User
Posted 27 Feb 2019 at 21:26
I find myself with an unanticipated worry this evening.

For ages and ages I've had severe pain in my right shoulder if I stretch my arm out sideways (up and down is fine and no pain under normal circumstances). Went to see a physiotherapist about a month ago. After several sessions she diagnosed "frozen shoulder" and advised me to see an orthopaedic surgeon. Went to my GP, got a referral to see said surgeon privately and had an appointment this evening.

Surgeon, after hearing my medical history, casually says that there's a possibility it's bone mets!!!! WTF! He says he doesn't think it is, because that would be more likely to cause constant pain (which I don't have) but he needs to rule it out. He sends me for multiple shoulder X-rays. These look normal, apparently, but now he wants me to have a shoulder MRI scan.

So that's me going to have sleepless nights for the next fortnight until I know the results. I know it's unlikely to be mets, but there's always the little voice that says "but what if...?"

Definitely NOT what I was expecting!

Chris

User
Posted 27 Feb 2019 at 21:30

Chris,

  The likelihood of a bone metastasis bypassing all of the other bones like hip and spine and pelvis and going straight to your shoulder are in my opinion very remote and I wouldn’t worry about it at all.

 I recently recovered from a bad case of frozen shoulder or Bursitis, when I fell off my bike and landed on my shoulder it can take a long time to come good and in my case it took 18 months before I could get a gel out of my back pocket without pain when I was riding.  The shoulder is a very complicated set up do you remember banging it or falling on it in recent times 

Edited by member 27 Feb 2019 at 21:32  | Reason: Not specified

User
Posted 27 Feb 2019 at 21:35
Oh I know you're right, Alan. I'm just a bit paranoid about cancer after everything that's happened in the last year, and when the surgeon mentioned "cancer" (it was more "I don't think it's cancer but we'll make sure") my heart just sank. I'm try not to worry, but sometimes it's difficult not to.

Chris

User
Posted 27 Feb 2019 at 23:16
Better this way than the other - a physio could do serious damage by treating someone with cancer without checking for possible mets, and could be struck off. That was how John ended up with new knees ... referred to physio for back pain, MRI ordered before physio could begin, recognition that it was his knees that were causing the back problems, two new knees supplied 👍🏼

Massage is just as dangerous if not given by someone that has been trained in oncology massage but there is no national regulatory body for masseurs. Massage offered by hospice day centres, Macmillan, etc is safe, obviously.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 28 Feb 2019 at 08:11
Thanks, Lyn. I'm going to try and have a word with my (or another) oncologist about this when I go for my RT later today. It's got me seriously scared.

Chris

User
Posted 28 Feb 2019 at 09:04
It's routine - and sensible so try not to worry - if there had been any bone mets I think they would have been picked up last year when all the other tumours were identified.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 28 Feb 2019 at 14:55
Fortunately my oncologist had a clinic this morning, so I was able to have a chat with him before my treatment. He's put my mind at rest. He told me that I had the "gold standard" most accurate scan for bone mets during my diagnosis which came back absolutely clear, and that the fact that my PSA has been steadily falling while I've been on bicalutamide makes him absolutely certain that there are no mets. He said that surgeons who know nothing about cancer are constantly doing this sort of thing and scaring his patients out of their minds, and that I shouldn't give it a second thought. I'm feeling a lot better after hearing that!

On the treatment front, 13 sessions now completed, so three more and I'll be at the half way point. Everything's fine, as far as symptoms go.

Chris

User
Posted 28 Feb 2019 at 16:45
Well done mate on the RT and so glad you are entering the weekend in a better frame of mind. Best wishes
User
Posted 28 Feb 2019 at 17:51
Thanks Chris!

User
Posted 28 Feb 2019 at 20:06
Glad things are progressing!
 
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