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Cheshire Chris's Treatment Thread

User
Posted 11 Feb 2019 at 19:16
Sounds like an adrenaline low CC
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 11 Feb 2019 at 19:56
I'm sure you're right, Lyn. I've been feeling a bit stressed this last couple of weeks. As you know, I went through an awful lot last summer (having a kidney removed, etc), but since then I've basically put all thoughts of cancer behind me and been enjoying life again. It's only in the last week or so that the reality of having to get through the RT has hit me, and it's made me a bit emotional and down in the dumps again. I'm sure I'll get over it once I'm settled into the routine of the daily RT sessions.

Chris

User
Posted 11 Feb 2019 at 20:03
Chris

My advice is to make sure you get plenty of rest and develop a routine. Find things to occupy you and keep your mind off the treatment. I found putting time into more inventive ways to eat a low residue diet distracting and help me avoid eating wallpaper paste all the time 😂

User
Posted 11 Feb 2019 at 20:06
Good advice as always. Thanks, Pete.

Chris

User
Posted 11 Feb 2019 at 20:19
In case anyone's interested in the routine at Clatterbridge, I was shown through into the waiting room, and about 20m before my appointment a nurse brought me a flask of water and a glass.

When my time came, I went into a changing room and was asked to remove just my shoes and trousers. From there, a door at the other end of the changing room led into the treatment area. I lay down on the bed and was then asked to pull down my underpants. About 10m of adjustments and calling out numbers, and then the actual treatment which took about 5m I'd guess, so probably around 20m from going into the changing room to getting dressed again. No hospital gowns!

Chris

User
Posted 11 Feb 2019 at 20:21
If you could see what I’ve achieved with paint-by-numbers in the last 3 years. !!!! Not an artistic bone in my body , but it is totally addictive lol. You don’t have a clue where to start , and then it all starts looking pretty good. Anyone can do it , and I’ve sold two of them. Good luck Chris
User
Posted 11 Feb 2019 at 20:59

Chris

Sounds just like my routine. If you take enemas watch out for ragged arse over time. You may need to give them a break for a few days if the burn gets too much. Also if you start feeling angry and your skin starts changing colour, please notify your Radiotherapy nurse.

User
Posted 11 Feb 2019 at 21:40
CC, did anyone mention to you about not using perfumed shower gel, etc? Kinder to your skin if you can buy either pure or Ph balanced shower gel - such as the ones you can find in the baby section at the supermarket.

Not all hospitals advise or require it although at Jimmy's it was a must do.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 12 Feb 2019 at 08:33

Itis great to be able to get advice on here about personal issues with no stigma👍

I kept myself well  hydrated during my RT but course this depends how well you personally cope with urine retention.

I used Dove shower gel  during my treatment and I liked it so much I have continued using it today.  I also purchased a tub of 99% aloe vera gel which I applied all over the treatment area once I got home and had had a shower I had no skin issues at all which I put down to this routine.

 I also used a moist impregnated toilet tissue to avoid “stinging ring” issues. This worked for me.

 As it seems prudent to add these days, the comments above worked for me, but may not work for you, so take advice from a professional at your treatment centre 

 

User
Posted 12 Feb 2019 at 13:44
Thanks for the advice. Two sessions now completed. Feeling a lot better today - I think it was just nerves yesterday.

Chris

User
Posted 12 Feb 2019 at 13:55

Ref Sore anus from RT or enema etc -

I cant offer advice on RT specifically as I am lucky enough to be reccurrence free since RARP.

However I have sufferred with IBS, Hemorrhoids and Fissures for many years. As my TRUS biopsy was approaching I had an anul fissure, so was desperate to get it sorted before hand. Any one who has had an anul fissure will understand the terror I was feeling. I got the usual cream from my Dr and a referral to a Colo rectal consultant. The consultant booked me in for a colonoscopy after the biopsy, but he also recommended using Bepanthen nappy rash cream, stating that its ok for a babies bum so its ok for you and you cant use to much. I have used it every day since, so over two years and have not had an occurrence of either since. Thats the longest pain free period for about thirty years.

Maybe worth a try if you need it.

Cheers

Bill

Edited by member 12 Feb 2019 at 14:16  | Reason: Hit post before finished

User
Posted 12 Feb 2019 at 16:32

CC, to add to Lyn's post I was advised to use Zero shower gel or babywash during radiotherapy, anything else was a definite no.

On my first day I had already showered with the normal shower gel as no-one had told me prior to that.

I was also advised not to use certain kinds of moisturiser on the treated area (as if!) as many creams and emollients contain metal particles which can interfere with the delivery of the radiation or cause the area irritation.

I never quite understood why some prostate patients were given a special cream to relieve any sunburn type irritation on the skin and I was told I didn't need it. I am not sure if this is because I no longer had a prostate and the radiation was focused deeper. As it turned out my skin didn't really react.

Hope today's blast has gone well.

Ido4

User
Posted 12 Feb 2019 at 16:54
Ido, are you naturally quite dark skinned and find tanning easy? John had no problems but is very dark.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 12 Feb 2019 at 17:11
Strange that nobody at the hospital has mentioned anything about that to me. I'll ask them at tomorrow's session.

User
Posted 12 Feb 2019 at 17:47

Lyn, I am a true Celt! I sunburn very easily. 

Ido4

User
Posted 13 Feb 2019 at 14:58

Three sessions completed and no ill-effects so far. I do find myself obsessed about the state of my bowels each morning, however, and whether they will be in an appropriate state for my RT session smile.

Chris

Edited by member 13 Feb 2019 at 15:03  | Reason: Not specified

User
Posted 13 Feb 2019 at 15:15

All quite  normal so far Chris as far as my experience tells me.  The only symptom I experienced whilst I was undergoing treatment was diarrhoea the other symptoms came in the weeks after treatment had finished. Now 5 months after I finished radiotherapy by far the most common side-effects I have is flatulence and it is constant nearly always through the day.  Most commonly  brought on by walking up and down stairs or bending over to pick something up luckily my wife finds it quite funny 

Edited by member 13 Feb 2019 at 15:17  | Reason: Not specified

User
Posted 13 Feb 2019 at 16:35
I've spun up IBS again which absolutely sucks as it feels like I am passing razor wire through my GI tract. Probably stress related and also I had a relapse back to taking Bang Bang Sriracha sauce with everything which does not help but I need some vices :)
User
Posted 15 Feb 2019 at 15:16
Well, this is slightly annoying. Four sessions successfully completed, but I went in today (a 40 mile journey) only to be told that both the main RT machine and its "mirror" (ie backup) were out of action, which they said was the first time that had ever happened in the 5 years the machine have been in operation. So no treatment today, and another appointment added on the end of my treatment.

Chris

User
Posted 15 Feb 2019 at 15:19

Chris

Hazard of the job. These machines get a hammering and there are a lot of complex mechanical and electrical parts. I think I had it three times. Last session of all for me the MRI scanner thingy broke but they went ahead anyway as I lined up so well on my dots due to my perfectly formed body :)

 

 
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