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After Hormone Therapy

User
Posted 22 Jul 2021 at 13:22

I really hate how this disease can raise its ugly head again. Sorry to read this, hope you get a good response with Zoladex and like others have said “many more years and lots of adventures still to be had”.

 

Ido4

User
Posted 22 Jul 2021 at 14:20

Thanks Ido4 , fingers crossed for the Zoladex…

We just have to play with the cards we are dealt, can’t ask for a new deck 🤣🤣

Phil

User
Posted 22 Jul 2021 at 14:33
Arghh Phil so sorry to hear this , especially as you hated the HT before. We’ll hold hands and do it together ok. Strangely seems a replica of my spread apart from all the bones etc. I also have lymph’s up in abdomen , between lungs and near a collar bone :-(

Take care fella.

If life gives you lemons , then make lemonade

User
Posted 22 Jul 2021 at 16:08

So sorry to hear this Phil.  We hope the Zoladex is kinder to you than the Prostap and that you have many more years of happy times to come.

Ange & Keith x

User
Posted 22 Jul 2021 at 17:12

Thank you Ange, let’s hope we all have time for some more happy memories to be made 👍

Chris, I conjured up this picture of us 2 skipping off , holding hands and shouting ‘F*** Off Cancer ‘ 🤣🤣

Phil

User
Posted 22 Jul 2021 at 18:32
Haha made me laugh. We all need a crutch occasionally ( to coin a phrase ). Contact me anytime brother and we can share the woes

If life gives you lemons , then make lemonade

User
Posted 22 Jul 2021 at 18:34

Haha made me laugh. We all need a crutch occasionally ( to coin a phrase ). Contact me anytime brother and we can share the woes

👍

User
Posted 22 Jul 2021 at 23:27
Sorry to see this Phil but a plan is always a good thing to have. Make sure you use antibacterial gel before you start holding hands with anyone - you don't know where they have been.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 23 Jul 2021 at 12:28

Did you not discuss Decapeptyl Phil ?

I say this cos my nurse said Zoladex is the hardest to give. It’s a pellet that is injected into the abdomen and big needle / bruising  etc. Good luck 🤞 

 

Edited by member 23 Jul 2021 at 12:32  | Reason: Not specified

If life gives you lemons , then make lemonade

User
Posted 23 Jul 2021 at 12:59

Hi Chris, must admit although I guessed what he’d say I was still a bit numb, especially when he said there’s too many places to zap with RT. But I said I wanted to try another type to Prostap and he said Zoladex as the Prostap had worked really well except for my mental issues.

My counsellor did say she thought I wouldn’t be so bad second time round . She says I was dealing with childhood stuff I’d never confronted properly and it took its toll. So hopefully I’ll be ok this time 👍.

Just come off the phone with a friend who’s  treatment didn’t work and he’s on HT Prostap for life now. He suffered at the beginning but he’s come out of it now. It’s certainly a different emotion to getting the initial diagnosis when you are full of confidence that you’ll be cured 🤷🏼‍♂️.

Anyways, how are you feeling Chris ? Making the most of this weather I hope 🤣

Phil

User
Posted 23 Jul 2021 at 14:25
Phil it’s a strange one. Outwardly no one would guess I was ill at all. Only 54 , 12 1/2 stone , quite well muscled , problems with my knees only. My back better than ever due targeted RT and now HT working.

All my other man-bits are still fine but I’d be a liar if I said my libido wasn’t fading. It is and it bothers me. And when we do I can’t orgasm mostly which is distressing.

Some days I’m on top of the world , busy and fixing up home and as many holidays as we can etc. Other days I just sit in the garden and inwardly weep as I’m not ready to die by a long way , but surely edging nearer.

Sometimes when I’m happiest the cloud comes heavier , because I know it can’t last. I’m sure you get it. Keep well and in touch

If life gives you lemons , then make lemonade

User
Posted 26 Jul 2021 at 10:00

Chris, I really understand the mental anguish. I’m still not sure how I’m gonna be after the Zoladex starts working. First injection 3rd August…….
I’ve finished counselling now and hoping I don’t need to go back. I’ve read the stories on here of the many very brave souls who went through wretched times towards the end and I’m not sure how I would deal with that.  Just gotta keep busy and my mind off that stuff.
Just sold our home of 38 years and living with MiL till we can move in our new house in mid August. But first, off to Jersey for our sons wedding ( they got married last year but they are re-doing it with all the guests this time) so plenty to think about for a while.

Take care buddy 👍 Nobody said it’d be easy 🤦‍♀️

Phil

 

User
Posted 26 Jul 2021 at 11:38

Hope the Zoladex treatment works well for you Phil.  Enjoy your Son’s Wedding celebrations in Jersey with your family and friends.

You’ve certainly got a lot to focus on with your house move too.  Keep looking forward and enjoy these precious times.

With best wishes,

Ange & Keith x

User
Posted 26 Jul 2021 at 12:24

Thank you Ange. Yes plenty of things to keep me occupied. 

Now things are easing up Covid wise I think I need to start planning our next big holiday 🤔.

Hope all is running smoothly for you and Keith?

Phil

User
Posted 26 Jul 2021 at 13:41
Aww congratulations to your son - have a great time in Jersey.

You don't really need to know this yet (and hopefully won't need to know for many years) but not all PCa deaths are terrible - some men just slip gently away when the time comes.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 26 Jul 2021 at 13:54

Thank you 👍.

Yep, like all of us hoping for a few years yet and then quietly slip away …..

And as a friend of mine said there’s always the possibility of some new treatment coming along .

Phil

User
Posted 09 Sep 2021 at 15:24

Just a very short update: Zoladex started 5 weeks ago and unlike the Prostap I can feel it working already. I am definitely feeling more tired and unfortunately I can feel the libido slipping away already. I will have the next one in October and see my consultant on 28th October . If I still feel the same I may ask about going back onto Prostap. I was really lucky with Prostap with respect to physical side effects but it did affect me quite badly mentally but I am getting mood swings and a bit depressed with the Zoladex.

Anybody else had the chance to compare both Prostap and Zoladex ?

Phil

User
Posted 09 Sep 2021 at 22:00
Hi Phil,

Please see my previous post where I was switched from Zoladex to Prostap by GP for their admin purposes. I reacted poorly and arranged to switch back to Zoladex.

I have to say it is now about a month since the return to the 3-monthly Zoladex and I feel much better!!

I don’t think it is psychosomatic!!

I suppose it shows how we all react differently to medication.

Hope it improves for you whichever one you end up on.

Chris

User
Posted 10 Sep 2021 at 09:12

Hi Chris . Thanks for your reply. I’m going to have the next Zoladex and see how it goes. But I feel like I will likely ask for the change. I never lost my libido completely with the Prostap but with the Zoladex I can almost feel it draining away.

I saw in your previous post you asked about duration of HT. I asked my consultant and he said that he wanted me to stay on it for 2 years as it can wipe out any micro mets left behind. Didn’t actually work for me and not sure if that’s even possible. 

Good luck with whichever duration you/they decide on. 

Phil

User
Posted 16 Sep 2021 at 15:08

And here we are again 6 months later.

3.5 years on from Salvage Radiotherapy and 2.5 years on from ending Hormone Therapy.

Still firmly in remission thank goodness with PSA at <0.02 and Testosterone up a bit to 10.1.

Looking good but I never feel that I am in the clear - I am all too aware that this thing could come back to bite me.

Always in the back of my mind and I can never forget about it.

Edited by member 16 Sep 2021 at 15:10  | Reason: Not specified

User
Posted 16 Sep 2021 at 15:17

Brilliant news Pete. 👍. Long may it continue. It’s so good to hear the treatments do work for most people, especially for the newly diagnosed.

I’m hoping they will come up with something new to deal with the mets in my lymph nodes 😬 🙏

Good luck for the future Pete.

Phil

 

User
Posted 16 Sep 2021 at 15:24

Excellent result Pete. Yes you're right PCa is always at the back of the mind.

I am wondering if this could be useful for people post treatment?

https://www.bbc.co.uk/news/health-58544874

Particularly for people who have had RT but not had surgery. We still have healthy prostate cells producing PSA, what we don't know is if we have cancerous prostate cells producing PSA. Though the intention seems to be to use this for pre treatment investigation, my thought is that this test would detect the presence of post treatment tumours so we would have a better idea of whether cancer remains. 

 

Dave

User
Posted 17 Sep 2021 at 15:00

Great news Pete.

Ido4

 
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