We are now 8 weeks post op and have just been to see the surgeon for our follow up appointment and the ED nurse, so thought this would be a good time to update my thread.
GLEASON 4+3=7 (was 3+3=6 on biopsy)
GLEASON GROUP = 3
VASCULAR INVASION = NO
INVASION OF SEMINAL VESICLES = NO
PERINEURAL INVASION = YES
EPE PERINEURAL INVASION = NO
MICROSCOPIC INVASION OF BLADDER NECK = NO
MARGINS = NEGATIVE
pT2CN0M0 (down graded from T3a)
PSA <0.05 ( I think that's right, they said it was undetectable)
The surgeon was very pleased, and said he was glad the we had the op as obviously there was a more aggressive cancer in there up from G6 to G7. I was worried about this but he seemed to think it was ok and probably better to have a G7 with a T2, rather than a G6 with a T3, I'm not sure but happy that he's happy. I did forget to ask about the perineural invasion, but have been told it's only significant if picked up on biopsy, but not if it's only noted in the post op pathology. We are not due to see the surgeon for another 4 months, when Pete will have his next PSA test.
We also saw the ED nurse, she asked how things were going continence wise and was pleased to hear Pete has been pad free since week 5 or 6, then onto the ED issues, we told her that he has had one spontaneous semi erection, and like I said above a couple of times when he had had a Donald Trump!! (for you John). She claimed he is doing very well and has prescribed him Cialis 10mg, 2 tablets per week, however she seemed reluctant to give him a pump. I wonder if this is something I should have insisted upon?
So that's pretty much the update. I can't tell you how pleased we are to have this outcome, I know it's early days but long may this continue. Thanks again to everyone that has answered my many question, and has really kept me sane throughout the past 3 months.
I'd appreciate any thoughts on the above.