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Getting my head in the right place

User
Posted 27 Nov 2023 at 17:40

Back home from a soggy Sunderland weight, BP fine, bloods okay but PSA still going up at present but still nothing to worry about, but
up to 0.078 now, wish that techie would finish his bait, Now its my 24 week hormone injection to look forward to in a couple weeks, then Christmas and January holidays to look forward to.

Edited by member 27 Nov 2023 at 22:09  | Reason: Not specified

User
Posted 13 Jan 2024 at 17:13
Another rise in PSA now up to 0.084 so still nothing to worry about the worst news was still to come, my Kidney function had dropped due to a new prescription of blood pressure tablets which had to be stopped right away, and get another kidney function test before I restart my meds again anyway result was back to normal so our break in the sun was back on, Thanks to the Enza clinic at Sunderland
User
Posted 13 Jan 2024 at 23:43
Great news Airy - have a great holiday!
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 27 Feb 2024 at 13:07
Back from Tenerife now and into hospital visits and updates, having to have a couple of blood test’s whilst over there was different just because of a new blood pressure tablet, but I’m glad we could still go on holiday so a couple of trips to the clinic was a better alternative to cancelling.
PSA still rising very slowly now 0.108 apparently whilst it’s moving slowly it doesn’t give ‘cause for worry
User
Posted 28 Feb 2024 at 17:46

PSA still rising very slowly now 0.108 apparently whilst it’s moving slowly it doesn’t give ‘cause for worry


Fingers crossed for you it’s stays like it has and you’ll have loads of years before there’s any concern. Keep it up buddy 👍


Phil


 

User
Posted 21 May 2024 at 13:06
It’s been a while since I came on the page so a couple of results, even though the PSA is still rising slowly, apparently still no need to be concerned it has risen to 0.16 in May and 0.185 yesterday, also had a bone scan which confirmed the cancer is behaving itself, Just showed arthritis and old age so relax again and enjoy life Red wine plus water must be good for me?
User
Posted 21 May 2024 at 14:33
Well done Airy keep it up!
User
Posted 12 Sep 2024 at 12:03
Just had my appointment at the Enza clinic. my PSA had risen again to 0.3, not alarming. but now thinking of adding a low dose steroid, along with Enza, after my 6 month hormone injection due in October and blood tests including Testosterone after my November appt’ just to give me something to think about, Last steroids just before my 4 minute Chemo session four year ago had me feeling agitated and irritable 'explained that was a high dose and it shouldn’t happen with a low dose', here's hoping
User
Posted 12 Sep 2024 at 20:16

Hi Dave, thanks for your update. I hadn't heard of adding a steroid alongside enza like I had with abiraterone. It's good that there's that option for you to think about. 


Best of wishes


Loz

User
Posted 29 Jun 2025 at 12:13
Can anyone explain this blooming cancer?
For months my PSA has been rising albeit slowly, and I have had a bone scan cause of a few niggles and it showed a hotspot on the LHS of my sacrum bone, yes, recently sitting on harder seats wasn't much fun but a cushion sorted it. Well my PSA fell slightly last blood test, happie chappie.
Did some exercises for a arthritic knee as usual in the morning then during that night my right thigh had a burning and tingling senation all over, spoke to specialist nurse the next day, you're seeing enza team on Monday mention it them, by now the burning has eased but tingling is now constant from ankle to groin and hip.
The Monday meeting changed from the normal chat and collect tablets, to a phone call to oncology, then go to pharmacy for more steroids (hate them) and some food to eat before taking tablets, meanwhile a mri scan had been sorted for Tuesday morning, on that evening got a call to say spine looks clear you can stop taking the dreaded steroids and we'll continue to check the scan. On Thursday at prearranged call with the oncology consultant he explained a spot has been found that could be causing symptoms, now I'm being put forward for one off radiotherapy within a couple of week's.
I didn't see that coming before doing the simple exercises for my knee, all I can say is a massive thank you to all the team looking out for me at Sunderland.
Who says exercise is good for you!! :-)
User
Posted 30 Jun 2025 at 08:21
It is good for you, if you hadn't done it they might not have found it!
User
Posted 30 Jun 2025 at 09:11

Hi Dave.


I'm sorry to hear that you are still having problems. I've gone through your profile and like several others in a similar situation to you. I don't seem to be able to exactly understand, what you must be going through. I realise the significance of disease spread especially to bones but don't know when Chemo and various different types of drug injections and further radiology is used.


There are now about a dozen blokes on here,  including your good self, who are my cancer heroes. The resilience you all display is phenomenal and you're an inspiration to us all.


I hope that they sort out your latest problem mate. Good luck. 👍


On a lighter note has any of the treatment ever affected your 'airiness'?

Edited by member 30 Jun 2025 at 09:14  | Reason: Additional text

User
Posted 30 Jun 2025 at 09:18

A, having similar aches and pains myself, try to find the reason for mine. Hope you get sorted.


Thanks Chris 

User
Posted 30 Jun 2025 at 14:21

Yes Adrian, I have never had curly hair in my life but after the 2 four minutes of failed chemo sessions the hair on the back of my head has now grown curls, strange things happen. 

User
Posted 30 Jun 2025 at 14:57

I’ve always had straight hair but the 7 sessions I endured of chemo has caused the hair on my crown to grow a nice curl. Doesn’t seem to be going either. Still at least I still have some … 


Phil

 
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