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Getting my head in the right place

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User
Posted 25 Oct 2022 at 11:21
Well back home again after a little of bit sun and it’s back to reality, hospital appointment for bloods and collect tablets plus results of bone scan which showed no change from last scan and no particular hotspots, with a PSA of 0.4. and its also 3 years since I joined this club!!

So I’m a happy chappie just taking three tablets a day seems to be keeping me stable. yeah

User
Posted 09 Nov 2022 at 15:49
What a difference a few days makes form being on top of the world to what the heck hit me, picked up a sore throat and cough, checked not corvid, so treat as a cold, Wrong ten days later rang surgery, doc rang back come in the next 20 minutes need to listen to your chest, now on antibiotics! I never realised what a weakened immune system meant till now, also didn't realise how energy I had before honest I won't complain of lack of energy due to meds
User
Posted 09 Nov 2022 at 15:59
Get well soon Airy
User
Posted 09 Nov 2022 at 18:38

Great news Phil and airy news like this lifts everyone 👍

User
Posted 18 Feb 2023 at 16:36
Back again for Bloods and collect Enzalutamide, they actually found a vein at the elbow, the last few have had to be taken from my hand, still carrying a cough it's looking like another trip to he Docs if it doesn't improve on its own. Being sent for a flow test sometime and unusually didn't get a call with my PSA results presuming they okay but I'll have to ask in 2 months
User
Posted 18 Feb 2023 at 16:36
Back again for Bloods and collect Enzalutamide, they actually found a vein at the elbow, the last few have had to be taken from my hand, still carrying a cough it's looking like another trip to he Docs if it doesn't improve on its own. Being sent for a flow test sometime and unusually didn't get a call with my PSA results presuming they okay but I'll have to ask in 2 months
User
Posted 28 Feb 2023 at 13:17
Just had a phone call from urology my Feb PSA result is no change really 0.044 so I'm a happy chappie still, that cough is still being an irritation two more lots of penicillin booked in for an X ray at weekend, hopefully getting to the bottom of the problem
User
Posted 01 Mar 2023 at 15:48

Great PSA result, hope you get the cough resolved soon.

Ido4

User
Posted 01 Mar 2023 at 16:09

Great news 👍 but hope they can get your cough sorted out x

User
Posted 01 Mar 2023 at 16:44

Great result, keep it up 👍

Phil

User
Posted 24 Jun 2023 at 17:11
This week has been a week in two halves Monday bloods etc at Sunderland last appointment two months ago, PSA result was 0.032 the lowest ever for me, over the moon, Friday 24 week Decapeptyl injection and PSA results from last Mondays blood test 0.052, that came as a shock! Okay my glass is still half full it’s still low and it cannot keep going down, also it was the last 1/3 of the 24 week Decapeptyl injection cycle so some tail could be the cause, but the main bit I’m still feeling well able to go for a red wine or two etc, so forget about PSA till next appointment. Honest
User
Posted 24 Jun 2023 at 17:32
We all worry , naturally , but that’s a gnats f**t tbh. Probably a machine blip or the tester had eaten salt or vinegar crisps. All epic mate and keep up the wine. It’s working for me
User
Posted 24 Jun 2023 at 17:39
Thanks Chris for the humour the thought ot lab techies eating salt and vinegar crisps has tickled me
User
Posted 24 Jun 2023 at 23:00

Red wine works for us too….. every day is a good one 

Leila 

User
Posted 11 Sep 2023 at 17:00
My PSA last blood test is still below 0.1 but, Well how can I put it on Sept 17 2019 I was told an incurable cancer which I would die with it or because of it, and like an idiot in my now I asked for a prognosis which was 40% chance of surviving 4 years as I had an allergic reaction to chemo

Well wind on four years and I’m glad I didn’t have chemo as other people I know who had chemo. had a lot of other side effects which Did not affect me. only thing is now I‘ve hung onto that date like an anchor, now it’s here and I’ve got to reassess and start to think that whatever happens will happen when ever, and boy that is a difficult mindset to change. Everyone says I am looking well but they only see me when I feel good and want to be out, has anyone had a similar experience and do you have any coping ideas that I could take on board and adapt to suit me and my lifestyle, any comments would be welcome? I am getting a lot of help from my Gp’s, and other services but if other members have been thro’ this lucky position any advice would be great.++++

User
Posted 11 Sep 2023 at 19:25
Hey Airy , I’m now past 8 yrs of a T4 diagnosis after surgery. I picked my own path of treatment. Maybe naively but it has worked so far touch wood. My Onco grits his teeth when he sees me as I turn his advice upside down. I kind of expect to croak it in the next 2 yrs as reaching the 10 yr club is kind of difficult. I’m just 56 yrs old. I too get told each day I look so well and tanned and healthy. I make people happy and smile and laugh but inside I’m crumbling tbh. My saving grace has been learning to fly model planes and go fishing. New hobbies mean the world and stop that horrible nagging noise in my head of doom and gloom. Yes it’s going to happen but I’m too busy to be worrying about it if I’m honest. It’s easy to be lazy and not get moving , but try to find something you like and push yourself ok. You won’t regret it 👍
User
Posted 11 Sep 2023 at 19:36
Great post, Chris.

I love and will steal that line: 'Yes, its going to happen, but I'm too busy to be worrying about it'.

I think I am through the current version of my PCa, but I have just lost my son at the unreasonable age of 38. It's ever so easy to give in, but : Live it or lose it....

User
Posted 11 Sep 2023 at 21:48
So very very sorry to hear of your loss. Humbles us doesn’t it. Stay strong and may your prognosis continue.
User
Posted 12 Sep 2023 at 12:58

Airy Harris,

people are very good at saying how well you look. I had a former nurse tell me I didn’t look like a cancer victim and a month later I had a high grade recurrence going on!

I agree with Chris, find things you enjoy doing and “lose yourself “ in them.

It calms the noise down for a lot of the time.

All the best,

 

Ido4

User
Posted 03 Oct 2023 at 13:56
Here we are again back home from sunny Sunderland weight, BP fine, bloods okay but PSA still going up at present but still nothing to worry about but 0.067 yesterday, (Chris hope that techie finishes his salt and vinegar crisps soon)
 
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