Getting my head in the right place

User

Posted 07 Jul 2022 at 15:00

Great news 👍

User

Posted 08 Jul 2022 at 19:19

That’s fantastic news. Thanks for update.

Ido4

User

Posted 09 Jul 2022 at 02:11

🎉🎉🎉

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 15 Jul 2022 at 17:59

Quick note to myself even though I tried drinking water and red wine after dinner then conscience shut down and decided on another wine without water, ended up with me being bad, its my own fault I know I couldn't drink to much with the tablets even though if I took it steady I thought I could get away with it, my own fault but the crack was good and I enjoyed it

So yes I've learnt but cannot say it won't happen again it still seemed a good idea today

User

Posted 15 Jul 2022 at 18:48

Doesn’t bode well for me in the future sadly. I love a drink or three of wine and once that’s taken away as well 🥲

Keep well and strong 💪

User

Posted 18 Jul 2022 at 14:45

Hi Chris just to put your mind at rest i would have been bad even without PC the glasses seemed to get smaller and smaller as the time went by, must admit to having a wobble walking home.

Cheers

User

Posted 28 Jul 2022 at 21:39

Hi airyarris

Read your profile it fills me with joy for you and hope for me that your doing so well I have recently started my journey and my condition is similar to yours and reading your story has given me hope.

Thankyou

User

Posted 29 Jul 2022 at 19:23

Hi Chris

Also read your story..wow and what a story it is,you've had a roller coaster of a ride 👏 bravo and keep the faith and I'll join you with a glass of vino this evening.

User

Posted 29 Jul 2022 at 19:48

Lets all have a drink to each other tonight just 'cause we deserve one, whether its a cup of tea, beer, wine or even water.

Cheers to all and our suffering partners

User

Posted 22 Aug 2022 at 16:39

2 month's have gone by since last PSA test since reducing the Enzalutamide from 4 tabs to 3, the result is another fall to 0.04, and a bone scan as it has been 2 years since the last one, and I've had more niggles from bones recently

User

Posted 22 Aug 2022 at 21:15

Great news on PSA. Hope bone scan provides reassurance alongside low PSA.

Ido4

User

Posted 27 Aug 2022 at 20:11

Hi.
I am in the same boat ; just diagnosed.

PETscan and start hormone tablets this week .

In a terrible state mentally : assume I will be dead inside two years.

I am not dealing with this at all and have reached out to this community forum for help support and advice.

Thanks.

User

Posted 28 Aug 2022 at 01:07

Hi SCM, well you will probably live more than two years, in fact we have people who have been here for five, ten, fifteen years with advanced cancer. But it is also true we have people whose disease has progressed quite fast in two years, so I don't think there is much point in making predictions about your future yet.

Once you have got over the shock you will find everything goes back to being quite mundane. Try and get on with living and enjoying your life. If the treatments stop working then start planning your funeral, but until they stop working plan your life.

Dave

User

Posted 28 Aug 2022 at 07:16

I cannot face this horror without a few beers every day. Simple as that; I just can’t.

is it worth considering suicide,

User

Posted 28 Aug 2022 at 08:49

The only answer I can give to that is of course definitely not SCM.

This is the worst part just being diagnosed and all the waiting for results. Many on here have felt very similar to you at some point but things do get better and life does carry on. I go to a local cancer centre and speak to a counsellor there…maybe check if there is something similar in your area. There are also Maggie’s centres, MacMillan nurses and also the prostate cancer nurses on here. It’s really good to be able to chat to someone about how you’re feeling.

I can’t see any details about your diagnosis. What was your PSA, Gleason score etc??

Prostate cancer research is a constantly changing world. There is so much that is being done and so so many successful treatments being rolled out that have completely changed for many what prostate cancer means. It is constantly evolving and new treatments appearing all the time. Never give up hope that everything will be ok. Make as many positive changes in your life to feel fit and well and also to be able to enjoy life as much as possible.

I don’t have prostate cancer like my husband but I still have no idea what the future holds, so in a lot of respects I’m in no different position to him. I know life can be a bit different when under going treatment but it certainly doesn’t mean it all has to be bad.

Please speak to someone, it could really help. And never give up….you can do this! Best of luck SCM and keep up posted on here x

User

Posted 28 Aug 2022 at 09:11

Hi SCM, Elaine has summed it up very very well.. Gently suggest you start your own thread and give some details of your diagnosis etc.. Tx number, PSA etc etc

User

Posted 28 Aug 2022 at 13:31

Just sent you a private message, basically fill in your bio and talk to the specialist nurses and or your doctors

User

Posted 28 Aug 2022 at 14:13

Thanks mate; I read your message but cannot work out how to reply.

You are very kind and understanding.

I am just so utterly depressed and terrified of the future.

User

Posted 28 Aug 2022 at 14:54

Thanks Elaine.

my wife has been treated for lymphoma fir the past three years and has no COVID immunity; we have been stuck at home all the time since the start of lockdown so life has been Hell.
she is getting worse now so for me to be struck down with APC is the last straw; it’s tipped me over the edge.

I work from home full time now but due to my wife’s shielding situation I haven’t met anyone socially or anything except medical professions in two and a half years.

Yep

User

Posted 29 Aug 2022 at 09:03

Hi SCM

I am 53 diagnosed with advanced prostate cancer with a PSA of over 2000!and kidney failure at 19%.

I was exactly the same as you my world had fallen apart and I thought I wouldn't be around in a year or so.

6 months on I am responding well to treatment PSA 1.9 and kidneys back to 70%,feeling better about life and feeling more positive,there is hope 🙏 be strong

All the best phil

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