Possible spread to right hip bone

😂 Yes we all need a laugh at times like these.

take care.

Ange

Thank you so much Phil.  The phone appointment was for 11.45 and I just had this feeling that the secretary had forgotten to put it in the diary, guess what I was right, I’ve just phoned and she has now managed to fit Keith’s call in sometime after 12.30.  Gosh, we could have waited anxiously all day and not heard.  We’re not very pushy normally but this awful disease is changing things.  I have a long list of questions.

Hope all ok with you and your wife and that you managed to take some time out together during the recent sunny days.

Angexx

Keith received his phone call from Oncologist.  I’m hesitant to say it’s great news, but he has given us a lot of hope.  He has a MDT meeting next Tuesday (I think his secretary had only just told him about phone call and has not had time to discuss the scans) and will phone Keith again next week after obtaining their views. However, he is of the opinion that the lesion in hip area is not spread of the disease and also said no lymph node involvement.  Comparing Keith’s CT scan from before his chemo and the one taken recently, he does not personally think there is any change in lesion in hip area following chemo and would have seen a change if it was cancer spread from prostate. Pleased with blood results and PSA 0.85. Yay, we are in a spin, but must wait until next week before we celebrate..

Its Keith’s 67th Birthday tomorrow and we are having afternoon tea in our youngest daughter’s garden, with our eldest daughter and our two lovely Granddaughters.  I think we’ll have beaming smiles on our faces from now until next week.

Keep strong all.

Angexx

That sounds like good news Ange, and no lymph node involvement is nice to hear.

Enjoy your tea party and fingers crossed for next week .

Phil

Hi All,

Some Fantastic News!  Keith has just had phone consultation with his Oncologist following on from their MDT meeting on Tuesday.  After reviewing all scans he is going to assume the lesion to the pelvic bone is not spread of the disease (metastasised) and therefore nothing to worry about as there has been no change to this lesion following chemo, so will be treating the PCa as ‘curative’ with 20 sessions of radiotherapy to the prostate and seminal vesicles.  Will have CT Scan in the next week or so for tattoos to mark out for the radiotherapy. So start radiotherapy at QE Birmingham in about 4 weeks.  Will stay on HT three monthly injections for now.

We really feel we can move forward now. after being anxious and very apprehensive for the last 10 months.

When we think back, this all started from Keith going to see his GP to have a hernia checked out and he mentioned his Dad had lived with prostate cancer (although passed away with a different cancer at the age of 87) and asked if he should have a PSA test........

Good luck to everyone waiting for scans/results.

Phil - have you received your PSA result from Monday?  Hope it’s a good one.

Onwards and Upwards.

Angexx

Edited by member 18 Jul 2020 at 17:08  | Reason: Not specified

They will also be in the zone for radiation treatment

Hi Ange, great news regarding the lesions. A weight off your minds.

I had HD Brachytherapy with EB Radiotherapy and they zapped my Seminal Vesicles as well. Mine had spread there but I get the impression they do it anyway. I didn’t consider surgery as I was pretty determined to go the RT route. 
I don’t know much about the surgery I’m afraid but I’m sure the RP guys will pop on soon.

I am hoping to get my PSA result back tomorrow. It’s an odd period as I know it’s likely gone up a bit as the HT wears off and it gets back to a normal level . Another 3 months to find out how the Testosterone is coming along. Must admit I’m looking forward to my next counselling even though it’s going to be my last 😢 I will miss it , wish I’d done it years ago. 

I’ve been on the phone this morning to a pal who’s PCa has come back within months of having seed implant Brachytherapy. He’s bricking it a bit as they realised in February it was back but still waiting for some kind of detailed scan to see where it is before they decide if they can do anything. I really feel for him as he was diagnosed after me and it was supposedly only small and slow growing and now I’m coming out the other side and he’s still unsure if the future. Shame we can’t go down the Pub to drown our sorrows.

Take care 

Phil

Hi All,

Keith received a phone call yesterday from QE Birmingham confirming this Friday 19th June to have CT planning scan and tattoo markings ready for RT.  We can’t fault our NHS, everything moving along so fast.  We just hope this is the right way to go and we are trying to be as positive as we can but every now and then we both throw a wobbly.
Hopefully, when RT sessions are completed Keith can have his hernia sorted out as that causes him a lot of discomfort.  It’s something he’s had to keep under control with a truss for almost twelve months now.

It’s our youngest Grandson’s 5th Birthday tomorrow and his garden is just at the back of ours so we’ll be over there to celebrate (just six of us social distancing of course).  Just hope we don’t have any thunder storms.

Good luck and best wishes to all on the forum.

Ange x

P.S.  Has anyone heard news from Bazza?

Thanks Phil, that’s really appreciated.

I’m pleased Lyn was able to give you some reassurance about your PSA.  It’s just what you need during these worrying times. You’ve come so far on your journey, which gives us all hope.

Hope this makes you smile 😃 Keith’s new truss arrived this morning for his hernia.  He has to lie down to push his hernia back into place and he said this morning ‘I hope I’m pushing the correct bit in’ as he can’t always be sure as it’s so close to his other bits.  We both ended up in fits of laughter.  

Take good care of yourself and I hope you feel like getting out on your bike soon.  Keith mentioned to his Onco that he’s started cycling again (used to belong to a cycling club in his younger days and I think he is reminiscing as he’s purchased the Lycra shorts, etc., to look the part, much to our Daughters’ disgust). Anyway, I digress, Onco said don’t go falling off and undo all the good work we’ve done.  Perish the thought!!
Angex