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Possible spread to right hip bone

User
Posted 16 Jun 2020 at 13:55

Thank you Ange, I just wanted reassurance really and Lynn gave me that.


Oh dear Ange, I can just picture the pair of you falling about 🤣.


Funny but I actually started my rides yesterday and again this morning. Only 8 miles along the sea wall but it’s early days. So nice out early morning . My bum tells me i should have a day off tomorrow.....


I hide my cycling shorts under normal shorts.....


Take care


Phil


 

User
Posted 16 Jun 2020 at 14:18

That’s great Phil, cycling 8 miles and breathing in the sea air sounds wonderful....x

User
Posted 09 Jul 2020 at 18:02

Hi,


Update - Keith went for No.3 of 20  Radiotherapy sessions today.  A slight problem as when he puts his hernia back in position prior to Radiotherapy, he was told today that it does not go back into same position each time and may cause a problem with targeting area going forward.  Tomorrow for 4th session they are going to try with hernia in the out position and see what happens and will need to discuss with Oncologist.


Hernia was diagnosed just prior to the prostate cancer and Oncologist wanted Chemotherapy and RT before the hernia op.


Has anyone on this forum had a similar problem?  I seem to recall someone on the forum mentioning her husband having a hernia too.


We’ll see what tomorrow brings, but Keith a bit disheartened today.


Best wishes to all  going forward with your journeys.


Ange

User
Posted 10 Jul 2020 at 10:31

Stress over as all sorted today, so onwards and upwards.  Looking forward to the weekend now, catching up with family and Formula 1 Grand Prix.


Best wishes to all.

User
Posted 10 Jul 2020 at 13:01

Good news , glad it’s all sorted now. They are so accurate with the radiotherapy now everything needs to be the same each time. I couldn’t fault my RT team . They felt like family by the end.


Have a nice weekend. Hope the F1 goes well , maybe another podium for Norris 👍.


Phil

User
Posted 10 Jul 2020 at 15:33

Hi Phil, that’s exactly my thinking good to know that they are so precise. Just keeping our fingers crossed that all goes ok without any damage being caused to bowel, etc.


Yes, we were really pleased for Norris and looking forward to his next race.
Hope everything is going ok for you and for your pal who you were concerned about.
Enjoy the sunshine.


Angex

User
Posted 16 Jul 2020 at 08:31

Update - Keith on 8 of 20 Radiotherapy sessions.  Has had diarrhoea the last two days and his hemorrrhoids are a problem at the moment too (has had this problem for years so I knew this procedure would make this worse).  He has to have a micro-enema (5ml micralax) before each treatment so I suppose after 8 days it is to be expected.  He usually uses anasol  suppositories but will need to check whether ok to use these.  

Any advice re. diet, etc., would be much appreciated.


Many thanks.


Ange x

User
Posted 16 Jul 2020 at 10:21
Hi Ange when I had it last year they dispensed with the micro enemas at the halfway stage.
I got pretty bad trots and they put me on fybogel to bind the poos even though it's a constipation remedy it seemed to help
Not insinuating he's not but Keith just needs to ensure he cleans himself up 100% otherwise the acid in the diarrhoea burns the rectum walls and it becomes inflamed and very sore.
Hope he gets through his last 12 sessions unscathed.
User
Posted 16 Jul 2020 at 10:44

Hi Jasper,


Just read your reply out to Keith. Thank you, very much appreciated.


Hope all going well for you.


Ange x


 

User
Posted 16 Jul 2020 at 14:10

Hi Ange


I've mentioned before that Bepenthan (nappy rash cream) is very good for sore bum.
Recommended by my colorectal consultant who said use as much and often as you want inside or out.


Cheers
Bill

Edited by member 16 Jul 2020 at 14:50  | Reason: Typo

User
Posted 16 Jul 2020 at 19:29

Thank you Bill.  Will give it a try.


Ange x

User
Posted 03 Aug 2020 at 11:37

Hi All,


Keith had his 20th RT session this morning.  Next appointment will be 15th October for phone consultation with his Oncologist.   Hopefully all will go well.  We’ll just try to stay positive and move forward.


Thinking of you all.


Stay strong.


Ange x

User
Posted 09 Oct 2020 at 23:22

Hi, just an update on Keith’s progress.  He had a phone consultation with his Onco yesterday, a week earlier than expected (don’t know which is worse, waiting for the phone to ring or sitting in the waiting room to be called in, but I think face to face is best option).  Pleased with bloods and PSA 0.101, down from 0.873 in June 2020.  We are so happy and relieved 😀 


Will have another PSA test in 3 months.  We are assuming that unless PSA shows any increase next time, and hopefully it will decrease even further, that the Chemo/RT/HT has stopped any progression and that the pelvis/hip lesion was not spread of cancer.  Who knows, there will always be that doubt now, but we are very grateful to be where we are at this stage.


We have decided to try our best not to worry until the next test and live our lives as best as any of us are able under the present circumstances.  


Thinking of all those who have had their lives turned upside down with the anxiety, pain and suffering this awful disease brings.


Keep safe all.


Ange xx


 


 

User
Posted 10 Oct 2020 at 08:04
Hi Ange, great news for Keith. Other members on here have indicated that PSA reaches its nadir 18 months after RT finishes so he should be good for the next few tests.
I'm at the 18 month post RT stage now so my next appointment with my Onco in December is starting to give me the yips..
User
Posted 10 Oct 2020 at 10:03

Thank you Jasper.  We are so relieved and it’s good that Keith can relax for a while.  We were so fortunate that the Covid situation didn’t delay any treatment, as we know this has been the case for some cancer patients.


Good luck with your December appointment, an anxious time waiting.  Hope all goes well for you.


Ange x

User
Posted 10 Oct 2020 at 17:08
Brilliant news!
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 12 Feb 2021 at 15:07

Hi All,


An update on Keith’s progress.  Phone call from Oncologist today, PSA down from 0.10 to 0.068.  So good news, still going in the right direction.  Next PSA test in August 2021 so going to six monthly and by then will have been on HT (three monthly Prostap injections) for 18 months.  We are really happy with this result. 


Good luck to all and keep safe.


Angex

User
Posted 12 Feb 2021 at 16:30
Really good news. Delighted for you!

Best wishes,

Chris
User
Posted 22 Aug 2021 at 15:29

Some good news on Keith’s progress.  After being diagnosed two years ago with PCa and having 6 sessions of chemo followed by radiotherapy, his Oncologist has just confirmed a PSA result of 0.015 and that the three monthly Prostap injection he had last week will be his last one (for the foreseeable future). We are ‘over the moon’ with this result and are determined to stay positive and keep looking to the future.  As we all know, life is so precious.  Bitter/sweet news as my wonderful Brother was diagnosed with Colon Cancer at around the same time two years ago and lost his hard fight/struggle on 11th August.  God Bless all coping with this awful disease.


Ange x

User
Posted 22 Aug 2021 at 22:00
Oh Ange, that is lovely news for you and Keith but how sad for you and your family as well x
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
 
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