In October I had a phone appointment with the urologist. Nothing very interesting in that, so I decided to await my PSA test results before posting an update.
The most notable thing about the urologists chat was that having failed to identify me as a patient for the last four years he asked about the oncology follow ups. I told him they are now yearly, next one January. He said "well we like to interleave ours with theirs, so we will say July". I thought it was a bit of a cheek implying it is a coordinated plan, when they didn't know I existed for four years. Having had my little rant, there is nothing much for urology to do: oncology has been doing everything right.
On Friday 9th I had my blood tests, in readiness for the January meeting. Latest PSA has just came up on my phone as 0.1, which is very good, as I still have a prostate. I don't know if the actual result is <0.1 as the app doesn't know about the < symbol.
So my post HT results every six months have been (No. 1) 0.1, (No.2) 0.2, (No.3) 0.1, (No.4) 0.2 and latest (No. 5)0.1. I'm very happy with that. Immediately post treatment one doesn't know if psa will just be a steady upward path hopefully leveling out, or perhaps just continuing up, which would not be good. So I was happy with result number 3, suggesting it has leveled out between 0.1 and 0.2. Result number 4 was still in the briefly established range. Result number 5 means I have now had two years post treatment with no sign of increase. I know this is still early days, but I'm feeling more confident that I'll die of something more fun than prostate cancer.
Good luck to everyone, I'm aware not everyone is in as good a place as me, and aware that luck can turn at any moment.
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User
Nice one Dave. All looking pretty steady and even if not gone itβs well fast asleep. The worry never goes even for those cured and sadly we all suffer side effects wise for the rest of lives, not mental and physical. Most days Iβm up and on it. Itβs been so long now 7 1/2 yrs itβs easy to forget mostly , but now Iβm 2 yrs into lifetime HT I realise the end canβt be that far round the corner. Just try to stay busy I do and make the most of each day month year.
Good luck and best wishes
User
It’s so good to read this. Pleased for you.
Leila
User
Amazing news Dave. So pleased to read this and also good learning for me re PSA up/down. Dads is due in March so hoping for similar. Yes, it can change at anytime, but so can anything. That is life. Just love your positivity!
User
Being confident of dying of something more fun is probably the best attitude you could find on these pages!
Love it Dave.
Jamie
User
Amazing news Dave ππ hope I follow the same path ππ so pleased for you and the family ππ
User
Brilliant news Dave, great everything is going so well x
User
Hi Dave, When you're happy that is the main thing. All the best Peter
User
Well it's six months since my last post on this thread and that means another PSA result <0.1 . For anyone new here, I was diagnosed March 2018, I had HDR brachy, RT in August 2018. I was on HT for two years until April 2020.
All PSA results prior to December 2020 were whilst under HT; the results were good, but I only consider the results post Dec 2020 to give any reliable idea of my prostates status. Those results have all been 0.2 or 0.1 with the majority being 0.1, as any result under 2.1 would be considered a success I am very happy with these consistently low results.
Supposedly I have an appointment with the urologist soon, they accidentally spotted a small kidney stone last year, and seem to want to follow up on this, but then they cancel appointments. I have no interest in chasing this up, so I will go with the flow, and discharge myself if the hospital appointments become more troublesome than the disease.
Edited by member 30 Jun 2023 at 01:46
| Reason: Just noticed it's a less than. So lower than any recent result.
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User
Great stuff Dave. Love your shoulder shrug attitude. Its exactly whats required. Good man.
Jamie.
User
So pleased for you Dave, I can’t wait for the day when I finish Prostap!
User
Dave , great news on the PSA. I had a kidney stone, which caused a bit of discomfort until I passed it. Hope all continues to go well.
Thanks Chris
User
Great news Dave long may it continue gaz π