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My penile implant

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User
Posted 15 Mar 2020 at 09:41

Hello everyone 

I thought I’d log my experience of getting a penile implant.  I’m at the start of this particular journey and updates will probably be irregular.

Last August, my oncologist referred me to a urologist.  7 months later, I finally got to see him.  It must be said that my oncologist, her registrar and the cancer nurse specialist couldn’t answer any questions on implants, either medical ones or bureaucratic ones on referral mechanisms and funding.  They didn’t even know if the hospital did them.  My GP didn’t know anything either.  Now, I have been very well looked after but I did tell them they needed to up their game on this topic.  They should be able to answer basic questions as they are the main point of contact for PCa patients.

 

The urologist will refer me to UCLH for the surgery.  I had non nerve sparing and Invicorp works sometimes but gives me facial flushing and the erections, the five per month I’m entitled to, aren’t always satisfactory.  Nothing else worked.  I’m only 49, so the consultant was confident I’d get the funding.  He told me GPs can’t apply for the funding - a consultant had to assess and then apply. 

So now I’m on a waiting list.  I’ll keep you posted on how things progress.

User
Posted 15 Mar 2020 at 13:27
Fingers crossed Ulsterman.

In the meantime how is your school crisis plan holding up?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 15 Mar 2020 at 13:52

Lyn - let’s just say that it will be interesting what happens in schools, but if we run out of toilet paper, then what are we meant to do?

User
Posted 15 Mar 2020 at 14:37
There are plenty of newspapers that are good for nothing other than bum wiping?

If you are on Twitter, try to pick up my re-tweets on crisis planning. Did you get the DfE email about some schools needing to register as private fostering providers if they have to keep boarders over the Easter hols?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 15 Mar 2020 at 16:35

What a shame there is such a level of ignorance amongst the medical profession about this. I suppose they are very busy now - although I didn’t realise respiratory diseases had such an effect on the organs of generation!

When you see the ‘hard’ man, ask him if they do an implant in the ‘trim’ size or maybe they can make one small enough for me, bespoke😉

p****d off I have had two cruises and a trip to Albania cancelled - you did well to get to Antartica - no Corona virus there...yet.

Keep smiling, keep breathing.

All the best.

Cheers, John😷😷😷😷😷

Edited by member 15 Mar 2020 at 16:38  | Reason: Not specified

User
Posted 15 Mar 2020 at 17:51

John, I’m glad I travelled when I did.  I spent a small fortune but had a great time on each of my trips.  I got to take my son to Greenland, Iceland, Costa Rica, El Salvador, Honduras, Guatemala and Colombia.  I took my daughter to India, Nepal, Georgia, Armenia, Azerbaijan and Belarus.  And I also went to Vietnam Nam, Cambodia, Japan and South Korea.  And, as you say, I got to Antarctica.  I did these trips because I love travelling but also because I don’t know when my travel insurance may become so expensive that travelling becomes unaffordable or I may become too ill to travel.  And I got to make amazing memories with my children.

thankfully, my PSA is still <0.006.  I may well have a lifetime of travel ahead of me but my next journey I’d getting this implant.  After losing a few inches as a result of surgery, radiotherapy or both, it would be good if they did an enlargement but that isn’t on offer.  Mores the pity.

Lyn - some of our overseas boarders have already left, but I do fear that some kids are going to get stuck here and then, yes, we may end up registering as a children’s home and have to conform to a whole different range of standards which in reality don’t apply to us.  Even if schools do close, boarding schools may have people stranded.  I could have to forfeit Easter.

And my implant surgery may be delayed because doctors will be diverted to other duties.

 

 

Edited by member 16 Mar 2020 at 05:42  | Reason: Not specified

User
Posted 15 Mar 2020 at 17:54

And Lyn, the children of 2020 don’t do newspapers on their backsides - that’s very 70s!

User
Posted 15 Mar 2020 at 17:58

It's excellent you have been referred to UCLH. They fund it if you are accepted, so it's not a CCG postcode lottery. I believe UCLH do more than any other UK centre, and you really want to be with a high volume centre for this procedure.

User
Posted 15 Mar 2020 at 18:57
Good luck mate with everything. I’m a school caretaker so am watching what will happen this week. Plenty of jobs for me always though !
User
Posted 15 Mar 2020 at 23:47

Originally Posted by: Online Community Member
but I do fear that some kids are going to get stuck here and then, yes, we may end up registering as a children’s home and have to conform to a whole different range of standards which in reality don’t apply to us.

 

It should be easy - you just call the LA private fostering team and let them know. Registering as a children's home is unnecessary. 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 15 Mar 2020 at 23:47

Originally Posted by: Online Community Member

And Lyn, the children of 2020 don’t do newspapers on their backsides - that’s very 70s!

 

No but the children of 2021 might have to 🤣

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 18 Mar 2020 at 13:18

I'm following this with keen interest as there doesn't seem to be many implant stories on here. Hopefully your op is a total success and without too much delay. Also looking forward to a demo at one of the support meetings 😄

I remember toilet paper at my primary school... it was a cross between tracing paper and greaseproof paper (probably wartime surplus).

Good luck.

Edited by member 18 Mar 2020 at 14:59  | Reason: Not specified

User
Posted 18 Mar 2020 at 20:16

Who would ever have thought that my diary on my penile implant would turn into such an amusing story on toilet paper?  I remember that greaseproof paper well.  Nasty stuff that could make you bleed if you wiped too hard.  As for my implant, I foresee a delay.

User
Posted 18 Mar 2020 at 20:18
It was called Izal medicated. It needed to be medicated to heal the wounds it made to your ring-piece lol
User
Posted 19 Mar 2020 at 02:52

Izal medicated - I saw that still on sale in Tesco only a couple of years ago! Who buys it?

Another similarly hideous competitor was “Bronco” brand - and on each sheet was printed ‘now please wash your hands. A wise maxim even today😷😷😷😷

Finally I remember a greaseproof paper variant in public lavatories (remember them?), printed with: ‘Property of XYZ Borough Council’ to discourage theft. Maybe that will come back in vogue in the current climate?

Keep breathing.

Cheers, John.

http://s10probus.co.uk/the-history-of-izal-joan-jones-7th-march-2016/

Edited by member 19 Mar 2020 at 03:00  | Reason: Not specified

User
Posted 19 Mar 2020 at 07:56

In the history of the forum, I don’t think a thread has ever been hijacked by such a weird topic.  We are indeed living in strange times.

User
Posted 19 Mar 2020 at 16:30

Originally Posted by: Online Community Member

In the history of the forum, I don’t think a thread has ever been hijacked by such a weird topic.  We are indeed living in strange times.

Well, I understand lower bowel problems may be caused by some PCa treatments, so maybe that is a tenuous link to the topics mentioned above?

Strange times indeed. Keep breathing.

Cheers, John.

 
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