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results today is it back..?

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User
Posted 23 Mar 2020 at 11:25

Hi - just got 8 week psa results unfortunately they have jumped to 1.0

 

Husband said he had nippy pee /cloudy and smelly and frequency which stopped 3 days before bloods were taken could this be the reason it has spiked or are we looking at a return of the cancer.....?

 

 

 

Since RT he has been 0.1 0.1 0.2 0.2 0.4 and now 1.0

 

we are devastated to be honest......

 

Radiotherapy stopped November 2018 and HT September 2018

 

thanks

 

Gleason 3+4 T2c/T3a RT and HT route

User
Posted 03 Sep 2020 at 10:27

Results are in.....

5 months since the last one and almost 2 years with no treatment

Today the results were 0.2! 

Just wanted to post some good news on a dreary dreich day!

 4 years since we started the Journey, 2 years post RT no treatment (7 weeks of RT) and Hormones (8 months of hormones)

Its been a bit up and down results have been (post radiotherapy and on no treatment)

<0.1, 0.2 0.2 0.4 1.0 (UTI) 0.4 and 0.2

lots of love

Jen

x

Edited by member 03 Sep 2020 at 10:29  | Reason: Not specified

User
Posted 01 May 2020 at 16:10

Glad to see that fall

Ulsterman

User
Posted 01 May 2020 at 18:23
Brilliant
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 01 May 2020 at 19:08
Great result JenπŸ‘
User
Posted 01 May 2020 at 19:31
Great Jen xx
User
Posted 01 May 2020 at 23:48

Hi Jen,

Great to hear your OH’s results.

Take care both,

Angex

 

User
Posted 06 May 2020 at 18:00

Great news Jen, long may it continue πŸ‘

Phil 

User
Posted 10 May 2020 at 21:15
Nice!
User
Posted 11 May 2020 at 12:49

Great news. 

Ido4

User
Posted 03 Sep 2020 at 11:32

Great to hear good news Jen x

User
Posted 03 Sep 2020 at 11:58
Great news for you both Jenny

User
Posted 03 Sep 2020 at 12:06
That really is excellent but continue to have the PSA tests as prescribed.
Barry
User
Posted 03 Sep 2020 at 13:30

That is great news. Long may it continue.

Ido4

User
Posted 03 Sep 2020 at 14:02

Great news Jen, long may it continue.

I have my PSA test on 14th. Last one was 0.97 so hoping it hasn’t gone any higher. I’m 2 years now since RT finished and 11 months since last HT injection.

Phil

User
Posted 03 Sep 2020 at 14:51

Great news

Really pleased for you both

User
Posted 03 Sep 2020 at 14:59

That is such good news, well done .

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 04 Mar 2021 at 11:43
Great news!!
User
Posted 04 Mar 2021 at 12:53

That is really great news Jen , long may it continue. Did they tell you the PSA may go up after the HT finished ? They told me mine would go back to around 2 so 0.2 is fantastic result.
My PSA has now gone back up to 2.75 in a similar timeframe for RT. Hormones finished just over a year ago. 

Phil

User
Posted 04 Mar 2021 at 12:59

Hi Phil - yes they said it could go up after RT but they said everybody is different. The Consultant said when it bounced up he was within the "bounce timeframe" - 18ths-2 years however it turned out he had a mild UTI which caused the bounce to 1 and it came down again to 0.4 and then 0.2

Its amazing how worrying it is when it goes up even slightly and the wait for the next result is excruciating. I am wishing you all the best with your next result Phil.

Jen

User
Posted 04 Mar 2021 at 13:07
Great news Jenny x
User
Posted 04 Mar 2021 at 13:52

Great news for you both 

User
Posted 04 Mar 2021 at 14:10

Good news, and a lesson for all of us that these figures can bounce around a bit and it does not mean the end of the world.

Dave

User
Posted 06 Mar 2021 at 17:39

That’s great news Jenny. Long may it continue xx

Debbie xxx
User
Posted 06 Mar 2021 at 19:30
Really good news. Delighted for you!

Chris

User
Posted 07 Mar 2021 at 00:38

Great to hear such good news!

Ange x

User
Posted 10 Sep 2021 at 18:09

Results in today almost 3 years (2 years 10 months) post radiotherapy and we are sitting at 0.2 again (thankfully!).
They asked for a kidney function test this time (maybe protocol) which was completely normal. Hospital gave us a little telling off for calling saying we should have waited until our appointment next week however we have always rung 4 days before hand so we can be prepared with questions etc. I get where they are coming from trying to get back to everyone about their results would just add to their huge workload and results don't go to the surgery because if we asked a question they would only refer us to the hospital to answer.

It's been a rollercoaster but I thought I would share some good news (T3a Gleason 3+4 psa 16) Hormones and Radiotherapy.
A little glass or 2 of wine may be needed as the nerves are shredded. After all this time there is still that psa result anxiety.

Have a great weekend everyone

Jen
x

Edited by member 11 Sep 2021 at 11:05  | Reason: spelling

User
Posted 10 Sep 2021 at 19:19
"After all this time there is still that psa result anxiety" - from end of HT Aug 2008 to the present day with PSA ups and downs anxiety is still there. On the positive thats good, for me anyways, as its a push to go get that test.

Good luck

Ray

User
Posted 10 Sep 2021 at 19:44

Jen .

That looks like good news, long may it continue. 

I had an arrangement with my onco nurse, I sent her a text to say blood test was done , she would text me back a couple of days before our appointment with the result. Like you I want to get my head around the result before the meeting, which in my case are always up.

Seven years on I am past the PSA anxiety, I can't control it so I don't worry about it.

Hope all goes well for the future.

Thanks Chris

 

 

User
Posted 10 Sep 2021 at 20:53

Raising a glass to toast your good news πŸ₯‚

User
Posted 10 Sep 2021 at 23:56
Excellent news, enjoy those glasses.
User
Posted 10 Sep 2021 at 23:56

Really great news on your husbands PSA result. We’re just starting the journey, but I can imagine how much anxiety the wait for the result can cause x

User
Posted 11 Sep 2021 at 11:16

Great news Jenny, I'm another one who likes to know my PSA result in advance of Onco appointment, always good to get your head around it first rather than being caught on the hop.

User
Posted 14 Jan 2023 at 12:20

I know you lovely lot love good news so here is some!

PSA time again and after a little jump to 0.3 it was back down again to 0.2!

4 and a bit years since radiotherapy finished (November 2018). A bit of blood for 24 hours in his urine (no UTI urine clear) likely to be a fragile blood vessel they said.

 

So onwards we go! 

User
Posted 14 Jan 2023 at 12:22

Great news jenny keep moving forward πŸ‘

User
Posted 26 Jun 2023 at 15:15

So pleased for you both πŸ‘. Great news. Let’s pray it continues for many, many years . 

Phil

User
Posted 26 Jun 2023 at 15:38

Lovely to read your news Jenny, so pleased for you both.

User
Posted 26 Jun 2023 at 17:09

Great news.

Ido4

User
Posted 26 Jun 2023 at 21:06

Jenny looking good, long may it continue.

Thanks Chris 

User
Posted 27 Jun 2023 at 13:30

So happy to hear your great news Jenny, as you say gives lots of hope to others!!

Ange x

User
Posted 05 Mar 2024 at 13:27

Hi you lovely lot!

I thought I would bob on and let you know that the OH is doing grand - I tend to only come on here once a year. Diagnosed in 2016 and his psa in January remains at 0.2! All good 8 years down the line and on no treatment.

Thought it may cheer some of you up - good news is always well received!

Lots of love

xxx

 

 

Show Most Thanked Posts
User
Posted 23 Mar 2020 at 11:35
It could still be nothing - biochemical recurrence is defined as 2.0 + nadir (in your case, 0.1) so it might simply be his testosterone has recovered and the healthy prostate cells regenerating. And a UTI could push it up temporarily. However, 0.4 to 1.0 is quite a rise in 8 weeks so it is sensible to have scans if the oncologist suggests it.

Fingers crossed it was just the UTI.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 23 Mar 2020 at 11:42

Thanks Lyn

Much appreciated - we are pretty gutted and trying to hold onto any hope possible.

 

Jen

x

User
Posted 24 Mar 2020 at 13:39
Just an update after speaking to the Oncologist - Telephone Consultation.

He still believes Husband is in the realms of the "psa bounce" following RT (he is 16 months post RT)

He wants to retest in 6 weeks especially since there was a potential urine infection.

If it goes up them it will be MRI - he would like to do CT but in the current environment they will hold off for now.

So we are a bit less low today and will get on with life until the results in 6 weeks

Jen

x

User
Posted 01 May 2020 at 15:38

RESULTS IN!
Back to 0.4 - thrilled!

18 months post RT (they jumped to 1 and it looks likely the OH had had a UTI just before his bloods were taken but he didn't want to say anything (???!!!).

post RT psa: <0.1(July 2018 8 weeks after finished HT) then 4 monthly 0.1,0.2, 0.2, 0.4, 1.0 (Burger!) so 6 week test 0.4 today 18 months

Just wanted to share.

RT is definitely a rollercoaster but we are happy with the scores on the doors.

Stay well
Jen
x

Edited by member 01 May 2020 at 16:06  | Reason: Not specified

User
Posted 01 May 2020 at 16:10

Glad to see that fall

Ulsterman

User
Posted 01 May 2020 at 16:13
Gosh Ulsterman so are we! - it was absolute torture waiting on this one and the Surgery couldn't find the results so we rang the Hospital who were great and tracked it down.

Have a good weekend (as good as it can be in lockdown!)

Jen

User
Posted 01 May 2020 at 18:23
Brilliant
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 01 May 2020 at 19:08
Great result JenπŸ‘
User
Posted 01 May 2020 at 19:31
Great Jen xx
User
Posted 01 May 2020 at 23:48

Hi Jen,

Great to hear your OH’s results.

Take care both,

Angex

 

User
Posted 06 May 2020 at 13:40
Just had telephone review with Oncology Consultant and she is delighted with 0.4.

Next due another psa and telephone review August.

All the best

Jen

x

User
Posted 06 May 2020 at 18:00

Great news Jen, long may it continue πŸ‘

Phil 

User
Posted 10 May 2020 at 21:15
Nice!
User
Posted 11 May 2020 at 12:49

Great news. 

Ido4

User
Posted 03 Sep 2020 at 10:27

Results are in.....

5 months since the last one and almost 2 years with no treatment

Today the results were 0.2! 

Just wanted to post some good news on a dreary dreich day!

 4 years since we started the Journey, 2 years post RT no treatment (7 weeks of RT) and Hormones (8 months of hormones)

Its been a bit up and down results have been (post radiotherapy and on no treatment)

<0.1, 0.2 0.2 0.4 1.0 (UTI) 0.4 and 0.2

lots of love

Jen

x

Edited by member 03 Sep 2020 at 10:29  | Reason: Not specified

User
Posted 03 Sep 2020 at 11:32

Great to hear good news Jen x

User
Posted 03 Sep 2020 at 11:58
Great news for you both Jenny

User
Posted 03 Sep 2020 at 12:06
That really is excellent but continue to have the PSA tests as prescribed.
Barry
User
Posted 03 Sep 2020 at 12:11

Hi Barry - have no fear they will be booked into the Diary on a regular basis!

I am guessing he may move from 3 monthly (although it was 4 monthly) to 6 monthly but we are happy with what they suggest as long as its on a regular basis.

 

Jen

 

User
Posted 03 Sep 2020 at 13:30

That is great news. Long may it continue.

Ido4

User
Posted 03 Sep 2020 at 14:02

Great news Jen, long may it continue.

I have my PSA test on 14th. Last one was 0.97 so hoping it hasn’t gone any higher. I’m 2 years now since RT finished and 11 months since last HT injection.

Phil

User
Posted 03 Sep 2020 at 14:51

Great news

Really pleased for you both

User
Posted 03 Sep 2020 at 14:59

That is such good news, well done .

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 04 Mar 2021 at 10:27

Results just in this morning;

2 years 4 months since end of all treatment (end of RT and hormones)

0.2!

The waiting for results remains excruciating however it's part of life now.
Some good news on wet day!
Its been a bit up and down results have been (post radiotherapy and on no treatment)<0.1, 0.2 0.2 0.4 1.0 (UTI) 0.4 and 0.2 (sept 2020) and 0.2 today
Routine telephone call with Onco next Wednesday.
lots of love
Jen
x

Edited by member 04 Mar 2021 at 11:07  | Reason: Not specified

User
Posted 04 Mar 2021 at 11:43
Great news!!
User
Posted 04 Mar 2021 at 12:53

That is really great news Jen , long may it continue. Did they tell you the PSA may go up after the HT finished ? They told me mine would go back to around 2 so 0.2 is fantastic result.
My PSA has now gone back up to 2.75 in a similar timeframe for RT. Hormones finished just over a year ago. 

Phil

User
Posted 04 Mar 2021 at 12:59

Hi Phil - yes they said it could go up after RT but they said everybody is different. The Consultant said when it bounced up he was within the "bounce timeframe" - 18ths-2 years however it turned out he had a mild UTI which caused the bounce to 1 and it came down again to 0.4 and then 0.2

Its amazing how worrying it is when it goes up even slightly and the wait for the next result is excruciating. I am wishing you all the best with your next result Phil.

Jen

User
Posted 04 Mar 2021 at 13:07
Great news Jenny x
User
Posted 04 Mar 2021 at 13:52

Great news for you both 

User
Posted 04 Mar 2021 at 14:10

Good news, and a lesson for all of us that these figures can bounce around a bit and it does not mean the end of the world.

Dave

User
Posted 06 Mar 2021 at 17:39

That’s great news Jenny. Long may it continue xx

Debbie xxx
User
Posted 06 Mar 2021 at 19:30
Really good news. Delighted for you!

Chris

User
Posted 07 Mar 2021 at 00:38

Great to hear such good news!

Ange x

User
Posted 10 Sep 2021 at 18:09

Results in today almost 3 years (2 years 10 months) post radiotherapy and we are sitting at 0.2 again (thankfully!).
They asked for a kidney function test this time (maybe protocol) which was completely normal. Hospital gave us a little telling off for calling saying we should have waited until our appointment next week however we have always rung 4 days before hand so we can be prepared with questions etc. I get where they are coming from trying to get back to everyone about their results would just add to their huge workload and results don't go to the surgery because if we asked a question they would only refer us to the hospital to answer.

It's been a rollercoaster but I thought I would share some good news (T3a Gleason 3+4 psa 16) Hormones and Radiotherapy.
A little glass or 2 of wine may be needed as the nerves are shredded. After all this time there is still that psa result anxiety.

Have a great weekend everyone

Jen
x

Edited by member 11 Sep 2021 at 11:05  | Reason: spelling

User
Posted 10 Sep 2021 at 19:19
"After all this time there is still that psa result anxiety" - from end of HT Aug 2008 to the present day with PSA ups and downs anxiety is still there. On the positive thats good, for me anyways, as its a push to go get that test.

Good luck

Ray

User
Posted 10 Sep 2021 at 19:44

Jen .

That looks like good news, long may it continue. 

I had an arrangement with my onco nurse, I sent her a text to say blood test was done , she would text me back a couple of days before our appointment with the result. Like you I want to get my head around the result before the meeting, which in my case are always up.

Seven years on I am past the PSA anxiety, I can't control it so I don't worry about it.

Hope all goes well for the future.

Thanks Chris

 

 

User
Posted 10 Sep 2021 at 20:53

Raising a glass to toast your good news πŸ₯‚

User
Posted 10 Sep 2021 at 23:56
Excellent news, enjoy those glasses.
User
Posted 10 Sep 2021 at 23:56

Really great news on your husbands PSA result. We’re just starting the journey, but I can imagine how much anxiety the wait for the result can cause x

User
Posted 11 Sep 2021 at 11:16

Great news Jenny, I'm another one who likes to know my PSA result in advance of Onco appointment, always good to get your head around it first rather than being caught on the hop.

User
Posted 14 Jan 2023 at 12:20

I know you lovely lot love good news so here is some!

PSA time again and after a little jump to 0.3 it was back down again to 0.2!

4 and a bit years since radiotherapy finished (November 2018). A bit of blood for 24 hours in his urine (no UTI urine clear) likely to be a fragile blood vessel they said.

 

So onwards we go! 

User
Posted 14 Jan 2023 at 12:22

Great news jenny keep moving forward πŸ‘

User
Posted 14 Jan 2023 at 13:20

Great news Jenny , long may it continue.

Phil

User
Posted 14 Jan 2023 at 13:28

So pleased for you both Jenny. I’ve still got this part of my journey to go through and Hope I can be posting good news in 2 years time.

User
Posted 14 Jan 2023 at 15:23

Fabulous news. Thanks for sharing. 

Ido4

User
Posted 14 Jan 2023 at 16:14

Hi

Great news,long may it continue πŸ‘ 

Regards Phil 

User
Posted 14 Jan 2023 at 20:42

Love a bit of good news.

Leila 

User
Posted 17 Jan 2023 at 16:30
Excellent new Jenny x
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 26 Jun 2023 at 15:11

Hello you lovely bunch;

Just my 6 monthly check in with you all and to share some good news as I know it goes down well.

Scores on the doors for Allan remain at 0.2 

4 years since Radiotherapy finished (November 2018) its been a tiny bit up and down but its been steady for quite some time now and I hope that this gives hope to some of you out there. Gleason 3+4 T2c/3a hormones and radiotherapy psa was 16 when we started the journey.

Lots of love and thinking of you all

x

 

Edited by member 26 Jun 2023 at 15:27  | Reason: added info

 
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