Latest news.
After a few days as an out patient getting bloods/scans etc. I've now ended up in hospital for at least 10 days so I've been told.
Cause of pain/swelling may be cancer or pituitary/adrulan gland driven. Getting all the tests done to determine where the root cause is coming from.
Bodies own Cortisol level is triple what it should be so now they may be thinking the body is trying to fight off the R223 therapy. Face/legs/hands swollen so not looking too pretty at the moment haha.
Pumpped up with daetatoxomol to counter the cortisol. Brain scan planned, amongst others, for Monday.
I only posted this so others can ask the question if they are posed with the decision to go for R223 or not. Oncologist did say that there wasn't much data on R223. A bit confused that one oncologist did state it wasn't the R223 and another states it may be. As Lynne stated previously that new meds are lacking data.
I've already posted that I don't regret any of my decisions as you never know what is out there as it just may be the golden bullet.
Just the thought of being stuck in hospital for 10 days with no visitors is a nightmare.
Keep safe all.
Sandy.