I'm interested in conversations about and I want to talk about

Know exactly what you want?

Show search

Notification

Error

Tony starting on Diethylstilbestrol

Email this conversation Print this conversation

User

Posted 18 Oct 2021 at 10:26

Hope he gets home today.

Ido4

User

Posted 19 Oct 2021 at 09:21

Tony is home, hard work and shattered but home.

regards Barbara xx

User

Posted 19 Oct 2021 at 10:49

That's wonderful news - what a relief. Don't forget to take care of yourself while you are taking care of Tony - who nurtures the nurturer?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 19 Oct 2021 at 11:06

Fabulous news. Take care.

Ido4

User

Posted 19 Oct 2021 at 14:26

Great news Barbara. All the very best to you both and a “Happy Anniversary” for tomorrow!

Ange x

User

Posted 20 Oct 2021 at 23:02

I just read your profile. Pleased to read he's home.
Best Wishes
Peter

User

Posted 01 Nov 2021 at 07:47

Update on Tony,

He is doing quite a lot better at home but is quite exhausted after doing anything, he has no appetite and the renal dietician is precribing special milk shake type drinks to try to get him to put some wait back on, he can now get up and down the stairs as they put grab rails etc in place and hopefully he will move back in to our bedroom upsatairs very soon. Tony is still in pain although not as much as he was. Tony is due an appt this month with his oncologist but i am not looking forward to it as this what has come back from the

Xray and scan he had after the fall. (Thoracic spine structure (Xa9ZC) - Abnormal marrow deposits, within inferior aspect of T9 and T4 as well as left aspect of C5 - suspicious for metastatic deposits (New Episode)Suspected malignancy (1J0..) - Suspected bone mets)

I havent mentioned this to Tony but it does not look good to me but will just wait to see with my fingers crossed,

regards Barbara x

User

Posted 01 Nov 2021 at 09:18

Barbara, I really feel for you and Tony.

I hope he feels a bit better soon and can get back up the stairs.
Fingers crossed your appointment goes as well as it can 🤞

Goid luck, thinking of you both x

Phil

User

Posted 01 Nov 2021 at 14:06

Thinking of you both Barbara and keeping my fingers crossed for Tony’s next meeting with his Oncologist.

With very best wishes,

Ange xx

User

Posted 16 Nov 2021 at 17:02

Tony has his appt with oncologist tomorow after dialysis so it will be a long day, feeling very aprehensive about it, Telephone appt again. I just have a feeling it will be not very good news, really hope i am wrong.

barbara x

User

Posted 16 Nov 2021 at 17:18

Here is a virtual hug Barbara; update us when you can x

< <<<< hug >>>>

Edited by member 16 Nov 2021 at 17:19 | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 16 Nov 2021 at 22:34

Hey Barbara, I've been following Tony's story for a while, so many ups and downs. Lets hope its not as bad as you fear tomorrow. Take care and all the very best, Nick.

User

Posted 18 Nov 2021 at 07:55

Tony had his appt with his oncologist, as usual he said he was ok , Dr P asked how he was after his fall and what damage had he done etc. He then said Tony's PSA had risen to 9 now but he was happy to keep on same treatment as he is already on, he was not to worried about the scan as he has no swelling or anything like that, he has made a note of how much weight Tony has lost (almost 3 stones) and has said we can keep him going for a while yet so that was a promising thing. Tony is now having high calorie medical milk shakes twice a day so hopefully that will build him up a bit, I feel a bit better about things now. onwards and upwards till next appt.

thanks all

Barbara x

User

Posted 30 Dec 2021 at 08:56

Tony had another fall yesterday. not a bad one but i heard a loud bang and when i went up he had fallen on the floor in the bedroom while getting dressed. it was dialysis day and he always has a sleep after so this was late afternoon, when i went in there he started crying and said he was useless and cannot get anything right, so we where both in tears. It took about half hour to get him up and he said about his life revolving round dialysis and not being able to do anything. Tony was sick on christmas eve and didnt have any dinner christmas day, sat in the front room while the family where round eating dinner in the back room. My daughter who lives in Kent was up and she kept getting tearful, i dont think she realised how downhill he had gone since she last saw him, he did rally round a bit later on. When he agreed to go on dialysis as his function had gone to 5% he thought it would give him a bit more energy but think it has made him worse. sorry for the long post just needed to get it out of my head.

regards Barbara x

ps Happy new year all xx

User

Posted 30 Dec 2021 at 13:57

Oh bless you Barbara. It’s good to be able to let it all out on a forum such as this one, where everyone is there for you! I’ve followed Tony’s journey and what a warrior he is.

Wishing you both all the very best going forward.

Ange x

User

Posted 30 Dec 2021 at 16:40

I am so sad to see this Barbara; it must have been very upsetting for all of you and a shock for your daughter particularly. You have been amazing throughout Tony's illness but especially this last few months - do remember while you are being strong for everyone else that you also need someone to be strong for you sometimes. We used to have a wives' / partners' mantra on the forum ... who cares for the carer? Sometimes, we can be that support but you also need something real and tangible; a short break to get your hair done or walk in the rain or to just be Tony's wife and not his nurse. I hope that you have that support around you.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 31 Dec 2021 at 22:14

icing on the cake i now have covid xx

User

Posted 01 Jan 2022 at 12:13

So sad to read your post Barbara. Really hope Tony is feeling a bit better.

Hope you shake off the covid too and not too poorly with it.

Take care

Elaine

User

Posted 06 Jan 2022 at 07:25

How are you coping with COVID do you know how you contacted it and has Tony not contacted from you

User

Posted 06 Jan 2022 at 10:20

I just have a really nasty cough and an occasional headache, Tony has not caught it and hopefully will not. I am being really careful around him , wear a mask and sanitizing hand etc. He goes to dialysis 3 times a week and he is in isolation room there and they check him for covid every time at the moment. We are lucky that we have a front room and back room so i can keep well distanced from him. I did a test today and it is still coming up positive so cant come out of isolation early.

regards

Barbara x

ps I went to the Vine hotel in skegness on boxing day with my daughter and grandaughter, so that is where i got it.

Email this conversation Print this conversation

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.