There isn't much you can do until you hear exactly what the diagnosis is, and what treatments are offered, if cancer is diagnosed at all.
Unless you are being diagnosed at a hospital which offers focal treatments (HIFU, Cryotherapy, Nanoknife), you are unlikely to be offered them. Do ask about your suitability for them, but bare in mind the consultants there won't be expert and might even be against focal treatments on principle, but it's still worth asking. Based on what you know so far, it doesn't sound like a high risk cancer, so you should have plenty of time to go away and think things through and to get more information.
If you live in England, you can ask to be referred to any NHS hospital in England for treatment. UCLH has the largest focal therapy department in the world (according to them, at least) and offer all the treatments, so that might be an option, where they can discuss the most appropriate one if you're suitable. There are other focal therapy deparments too, and it's worth going somewhere which does more than one type so they can suggest which is better for your case.
In terms of concern about impotence, do tell the consultant, because they need to know what your preferences and concerns are, and too few patients say so (and too few clinicians ask). If you are offered a prostatectomy, you will certainly want to ask about the likelihood of nerve sparing surgery, and Neurosafe. Radiotherapy is usually less likely to impact erections. Focal therapies vary enormously depending which one and where the cancer is. If it's near the nerves, they will impact it, and less likely to the further away - you would discuss this with the focal therapy consultant. No treatment is completely safe from this risk.
I advise patients in preparing for a consultation to leave a pad and pen out beforehand, and write down any question which springs into your mind. I mentioned some here (nerve sparing and Neurosafe, suitability for focal treatments, and note to say erectile function is important to you). Take the paper and pen with you to the consultation, so you can ask the questions and note the answers.
Don't forget you can ask us here anything - we're all happy to share our experiences.
Wishing you the best for Monday, and let us know how it goes.
Edited by member 19 Feb 2022 at 14:35
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