Worry about meeting the consultant on Monday

User

Posted 21 May 2022 at 14:12

DW that is not a nightmare, the real nightmares can still happen ...

User

Posted 21 May 2022 at 14:46

My husband stayed in an extra day but it actually worked out well as he was a bit further on with recovery when he came home, so I didn’t have to worry quite as much. If your husband comes home with a temperature surely that would cause concern for you both, he’ll definitely be better where they can look after him. I know it’s really difficult if they won’t let you see him though. We just had to video call and on one occasion I walked to the hospital and waved to him at the window while speaking on the phone ❤️ Hope he’s home and well soon, best of luck with recovery

User

Posted 21 May 2022 at 17:07

Hi Hermit of Eyam, the rules have been changed, but just because the rules have changed does not mean that hospitals follow those rules. On our hospital web-site it said I can visit him for 1h/day but they only apply that to wards like maternity etc.

But what really is confusing is that yesterday I was not allowed to visit him but today I was invited onto the ward to go through all the discharge papers and medicines with OH and a nurse prior to pick up sitting in his room

User

Posted 21 May 2022 at 17:09

francij1, I know that an awful lot can still go wrong in the next 10 or 20 years

User

Posted 24 May 2022 at 16:28

I hope someone is looking after you too DW xx sending love

User

Posted 24 May 2022 at 20:02

I'm not sure why an extra day in hospital would be a nightmare? Surely it's better to make sure that any potential infection is dealt with before he's discharged, isn't it? I quite enjoyed being in hospital, strange though it may sound!

Hope things are better now?

All the best,

Chris

User

Posted 25 May 2022 at 05:54

Hi Chris, food was one issue and OH really wanted to come home as he did not get any sleep there - each time he fell asleep nurses woke him up to take his temperature/blood pressure etc.

User

Posted 18 Jun 2022 at 17:59

Hi, OH had the catheter removed 1st June. Totally dry at night but getting very frustrated during the day. Needs 2 to 3large pads depending on how active he is and he really likes to be active. He does PFs regularly. Any advice how to help him? Thank you

User

Posted 18 Jun 2022 at 19:21

He needs to be patient - there isn’t any magic thing that will speed up recovery. If he is dry at night, there is no mechanical damage so it is just about his brain relearning bladder control.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 18 Jun 2022 at 22:36

I was probably about the same at that stage after catheter removal. A long walk would gradually cause my bladder virtually empty Being on your feet and active for long periods (walking, gardening etc) are the hardest hardest to master. I'm now eight weeks down the road. I'm not there yet but I'm still gradually improving. I can now do a 12 mile walk and not worry about a pad change. I do all my pelvic floors in the standing position. I think that helps. Chris.

User

Posted 19 Jun 2022 at 09:45

After my catheter was removed it took about 8 weeks before my daily incontinence greatly improved. As mentioned by Chris, going for a long walk resulted in me having virtually no bladder control at all.Each leg forward movement resulted in a leak and meant that when I returned home my pad was soaking wet and my bladder probably completely empty. And as mentioned by Lyn, and as advised by the specialist nurse assigned to me, the brain needs to relearn how to control the bladder following the damage to that area. It is frustrating, but for me and for the people I personally know that have undergone surgery, virtually full bladder control does eventually return. In my case it was an almost overnight experience after about 10 or so weeks when my continence improved to 99 % plus . I only leak a little now when I am lifting a very heavy object.

Ivan

User

Posted 12 Jul 2022 at 19:40

Finally getting the pathology on Tuesday _ delay due to holidays. Will let you know results

. In the mean time e I have a question as I an not sure it is worth asking the surgeon. When OH came home from hospital he had a massive bruise on his left side and whenI say massive I mean from his armpit to his hip and half of his front and back except for a belt round his waist ofa good inch.took several weeks to go and looked as if he had been a substitute for a crash test dummy. Is that normal? Thank you

User

Posted 12 Jul 2022 at 21:02

DW always worth asking questions to put your mind at rest. I belong to a PC Facebook site and a woman has asked almost identical questions about a bruise from the armpit to hip. I did find a reference to bruising appearing remote from the surgery site, but worth asking the surgeon.

Hope the histology is good.

Thanks Chris

User

Posted 13 Jul 2022 at 08:55

I had no bruising at all after surgery, only a slight redness around the areas of the 7 puncture wounds.

Ivan

User

Posted 19 Jul 2022 at 10:30

Phone call with the surgeon this morning. Good news - all margins are negative, bad news - because of what they found during the OP no nerve sparing at all. I asked about it but did not get a clear answer. Will press for full explanation in the next eeting after PSA results

Question as there was no nerve saving is there any point seeing the ED nurse?

User

Posted 19 Jul 2022 at 10:39

Yes absolutely! It will be essential to maintain penile health with a vacuum pump (if your CCG allows these) and if the ED nurse writes to your GP requesting that they prescribe, it is more likely that you will get it than you just asking the GP yourselves. The same applies when he is ready to try injections - support from the ED nurse makes the whole thing smoother.

Also, it will vary depending on the personalities but I found our ED nurse to be a huge support to me as well as John.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 19 Jul 2022 at 12:18

DW, I was supposedly non nerve sparring, but not long after surgery I did get some stirrings in the penis. I was reminded on here that if all the nerves had truly gone then an erection was impossible without a pump or putting something into penis . My surgeon suggested that there were a network of nerves in the area and something could be getting through.

Get the pump, tablets, creams , injections and anything that may be on offer. My ED guy is also a surgeon and a brilliant guy. I was offered, medication because of the stirrings, the pump and injections at my first appointment. I opted for muse pellets instead of injections. The muse pellets is a cream that you put down the eye of the penis with a thin plastic applicator. It took me five years to move on to injections, in hindsight a mistake.

I don't think I will ever get an unaided erection, but eight years on I still get the odd semi erection. You don't need an erection for vaginal intercourse, look up flaccid intercourse or flaccid insertion. We have a very fulfilling love life , think outside the box and above all have fun.

Good news on the margins, hope all goes well for you both.

Thanks Chris

https://community.prostatecanceruk.org/posts/t10993-Erecting-the-Erection---Medication

Lyn also did a thread on sexual recovery but I can't find it.

Edited by member 19 Jul 2022 at 12:24 | Reason: Not specified

User

Posted 20 Jul 2022 at 18:25

Saw the ED nurse today, OH got a pump on loan to see how he gets on with it and if he likes it he will be given his own to keep. That actually makes sense.

Otherwise I am even more confused as the nurse is of the opinion that the doctor would not have prescribed Viagra unless he was able to spare nerves,but she was unable to check as they use different systems - the doctor a Computer and the nurse writes everything down by hand.

She is a youngster, early 30s.

User

Posted 20 Jul 2022 at 20:01

The ED nurse is likely to know better than the urologist - it is her specialist area!

Did the surgeon prescribe the viagra before the op? Perhaps didn't anticipate removing ALL nerves?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 21 Jul 2022 at 06:08

Viagra was prescribed when OH left hospital, but it was not the urologist who told OH no nerve sparing was done, but the surgeon. I assume he knows what he did.

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