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Worry about meeting the consultant on Monday

User
Posted 13 May 2022 at 12:55

Hi,


I was in and out of hospital within a day, but the reason my OH did not visit, was that my surgery wasn't until the late afternoon, and by the time I was awake and out of recovery it was well past visiting hours. My surgeon was kind enough to call her after the surgery to say all had gone according to plan, which was appreciated. By the next afternoon I was home. 


 


P.


 

User
Posted 13 May 2022 at 13:00

DW, I haven't had an RP, but I did have a nephrectomy operation (kidney removal) in 2018 after my prostate MRI scans also showed that I had kidney cancer. The first 12 hours after my surgery I spent being violently ill as a side-effect of the general anaesthetic. The last thing I would have wanted was to have any visitors! My surgeon was also kind enough to phone my sister (my next of kin) to let her know that everything had gone fine. 


Best wishes,


Chris

Edited by member 13 May 2022 at 13:02  | Reason: Not specified

User
Posted 13 May 2022 at 16:23

DW, I was in for two nights after my RARP, my surgery was in the morning and my wife visited in the late afternoon. I was given some tramadol which instantly disagreed with me , my wife grabbed a sick bowl and I managed to get the vomit in the bowl but it was going that fast it came out the other side all over my wife. I seem to recall falling asleep while she was there. My recovery seemed to involve alot of sleeping, perhaps because the wards are so noisy at night and the nurses disturb you to take BP etc. 


My ward was a 4 bed bay with a reasonably friendly bunch of people, to keep us all occupied.


I did go out of area for another op a few years ago and spent two days and nights in hospital without any visitors, again plenty of sleeping and some friendly inmates.


Make the most of a bit of You time, he shouldn't need much looking after when at home but make the most of the peace and quiet.


We are all told to do pelvic floor exercises, at one of Andy's zoom meetings Victoria the physio expert also suggested practicing tensing the pelvic muscles when standing up and lifting.


Hope all goes well. 

User
Posted 13 May 2022 at 18:01

I had surgery start at 9 a.m. by 4.30 p.m. I was in the ward after being in high dependency for a few hours.
I was over the moon to see my wife and my three boys that evening. If you want to visit that is surely your right? 

Ido4

User
Posted 13 May 2022 at 18:25

I had RARP in Guildford. My wife dropped me off in the car park at 11.00. The surgeon saw me and I signed the forms. He asked who he could ring afterwards - and he did, personally, which was very kind of him. I was in theatre at 12.00 having my spinal block and other attachments. I came to at 4.00 in recovery. I was just happy to be out of surgery. My wife knew everything had gone well, so wasn't worried and I received a text from her. To be honest, I did not want her there afterwards. I was processing everything. She had already been fantastic in keeping me cheerful in the run up to the operation and I felt we both needed a bit of space. The other guys in the ward (of six) were good company and although the night seemed to drag, you're so drugged up it doesn't seem a problem. At 11.30 the next day I was discharged. I walked with my bag to the car park and met my wife, who drove me the 1.5 hours home. Sometimes, you just need some space. I didn't want to see anyone from my family in the hospital environment because I would have felt responsible for their worry and concern and that would have been another pressure on me. Selfish or what... I don't know. But I was so pleased to see her when she came to pick me up. And she was pleased to see me!  Ian

Edited by member 13 May 2022 at 18:27  | Reason: Not specified

User
Posted 17 May 2022 at 01:14
I think a lot depends on the time slot - whether he is on the morning or afternoon list. John was an afternoon list patient - he didn't come out of theatre until after 9pm due to complications; the surgeon rang me to let me know he was okay.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 17 May 2022 at 07:57
I didn't know at the time but my wife was having an affair with my neighbour, needless to say she didn't want to visit me at all and was pleased when I ended up staying in hospital for 3weeks with complications. Because I was seriously ill (or maybe because I knew deep down our relationship was dead?) I felt very vulnerable in hospital and lived for the visits I did get.

When I was in for 3 nights recently for a new hip my lovely second wife was keen to visit but wasn't allowed because of covid. Because I was confident in my wife and my treatment I never once felt vulnerable and hence was more than happy with WhatsApp calls.

I guess what I am saying is do what's right for you two! I must say though hospitals seem to work better without visitors!
User
Posted 20 May 2022 at 05:45
OH had RARP yesterday, all went well (we have been told, but it took 4.5h). We got the appointment letter for the catheter removal, it states that it is an all day affair. Is it normal that it takes that long?
User
Posted 20 May 2022 at 06:08
Mine took over five hours. It was nerve sparing one side

Cheers
Bill
User
Posted 20 May 2022 at 06:08
Mine took over five hours. It was nerve sparing one side

Cheers
Bill
User
Posted 20 May 2022 at 07:17
It doesn't really take all day. Removing the catheter takes about 2 seconds 😁. You then, though, have to drink lots of water and show that you're able to pass water (three times in my case) before they let you go. It's that part of the process that tends to take several hours.

Glad to hear that the surgery went well.

All the best,

Chris
User
Posted 20 May 2022 at 08:27

DW, hope all goes well with the recovery, make sure he takes it easy but keeps mobile. It is good to avoid getting constipation and no straining to pass that first motion.


I have had around 12 trial without catheter and never failed.  Mine never took longer than five hours, usually they have been around three hours. To speed things up I drink plenty of water before getting to the hospital, I find that if i am well hydrated before getting to the hospital the water they give me to drink at the TWOC passes through me far quicker. It is better to leak a bit than have a catheter put back in because you failed the TWOC.


Make sure you have some pads, the hospital will normally give you some, but as a work colleague used to say better to be looking at some than looking for some. I took a towel and cover for the car seat in case of a "major" leak but it never happened. I also had a urine bottle in the car in case of an emergency. The towel is useful if stuck in a traffic jam with a coachload of people at the side of you😀. A spare pair of trousers and pants, again never needed. Elasticated waist trousers make it very easy to change the pad in a hurry. 


Hope all goes well.


Thanks Chris


 

Edited by member 20 May 2022 at 09:24  | Reason: Spelling

User
Posted 20 May 2022 at 11:33

DW, don't be surprised if he bypasses a little urine and a trace of blood out of the the penis. It often happened to me when passing a motion, a bit of tissue under the penis while sat on the toilet helps save wet underwear.  I was told Rosé colour in the bag should be okay but red wine colour needs attention. Don't forget to adk for some instilagel in case the catheter makes the penis sore. 


 


Get a couple of extra thigh straps, use one around your ankle to secure the night bag tube when in bed, it saves putting any strain on the bag joint. Make sure the catheter joints are tight, and make sure the leg bag tap is shut before disconnecting the night bag and don't forget to open the leg bag tap when you attach the night bag.


 


The extra thigh straps are useful when showering. I empty my bag a let it hang on the thigh strap ,when i finish showering I put a dry strap on the other leg and transfer the catheter and bag to the dry strap. Some hospitals use adhesive catheter fixation devices so the strap idea would not apply , the statlock adhesive device id waterproof, they should be changed after 7 days but will last for 14 days.


 


Make sure you empty your day bag before it gets more than half full. 


Thanks Chris

Edited by member 20 May 2022 at 11:40  | Reason: Not specified

User
Posted 20 May 2022 at 16:13

Originally Posted by: Online Community Member
Mine took over five hours. It was nerve sparing one side

Cheers
Bill


Sorry  I should have been  clear the RARP took over 5 hours


The TWOC was done by the district nurse. She came round in the morning, I actually removed it myself under her supervision because I wanted full control if there was pain or resistance while getting through the new anastomosis. She left a log sheet and I recorded quantity of water in and water out then she returned later that day to check urine left in bladder after a pee with ultrasound. 


Good luck to your OH with his


Cheers


Bill

Edited by member 20 May 2022 at 17:43  | Reason: Not specified

User
Posted 20 May 2022 at 18:32

Glad the op is all over. Not too bad 3 months from diagnosis to treatment. I assume TWOC is about two weeks time. A catheter isn't much fun, though I found it quite useful when at the pub. Hope all goes well.

Dave

User
Posted 20 May 2022 at 23:15
Glad the op is over. Small steps now and wishing you both well x
User
Posted 21 May 2022 at 08:27

Absolutely not! My hubby and I (who is now 74) have had a very active life post his treatment. His PSA was 87 at diagnosis and he required radiotherapy and hormone therapy. Since then we’ve largely managed to enjoy active lives - we don’t fly as much as unfortunately his bowels were affected by radiotherapy so we go on cruises instead. 
with regards impotence- it’s taken nearly 9 years for hubby to accept help from a nurse specialist- I don’t think we were really supported by the first hospital that treated him, but now getting loads of support. 

User
Posted 21 May 2022 at 12:21

Wish the urologist had never mentioned RARP, OH is still stuck in hospital, he is in utter despair, they are not letting me see him and they are not doing anything for his mental health.  He was supposed to come home yesterday, delayed due to a slightly raised temperature.  He does not think he is going to come home today as apparently they have been waiting for his medications since this morning.


What an utter nightmare. 

User
Posted 21 May 2022 at 14:02

Trying to get discharged on a weekend is a nightmare. I went in Friday before a bank holiday and was due out Saturday. I had a minor problem and it was looking like they were going to keep me in until Tuesday just because there was no senior doctor to sign me out. Fortunately it was resolved and I got out in the afternoon.

Dave

User
Posted 21 May 2022 at 14:07

If his temperature is raised, that could indicate an infection, in which case he will be better off in hospital where it can be properly treated. Hospitals are full of pathogens! But his prostate is no longer there, so his cancer is no longer there, and the oncologists can look at it and make a fuller evaluation of how developed it was. So, reason to be cheerful ...?


As to not letting you see him, I thought the rules had been changed nationally to stop hospitals from preventing family members from visiting patients? I might be wrong about that, but I feel that I read that somewhere weeks ago, and if you can show that you are covid-free ....? https://www.sth.nhs.uk/visitors/visiting-times


Hospital pharmacies are notoriously slow in delivering medicines. I was in hospital with Lyme disease some years ago, and it took 4 hours for the pharmacy to deliver my month's supply of doxycyclin before I could be released! It's usually too few staff, too many patients needing drugs.

Edited by member 21 May 2022 at 14:24  | Reason: typos! I can spell, I just can't type.

 
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